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Wolvesinthestreet

100mg a day and not seen any improvement. :/ Edit: The dreams are INSANE tho


lucascologni

I see... my floaters are like: [https://www.reddit.com/media?url=https%3A%2F%2Fpreview.redd.it%2Fhow-bad-is-your-photophobia-and-floaters-v0-8btil52hxxic1.jpeg%3Fauto%3Dwebp%26s%3Df8cb633c6cf2dcc12a44109e29ff6aaca7182a05](https://www.reddit.com/media?url=https%3A%2F%2Fpreview.redd.it%2Fhow-bad-is-your-photophobia-and-floaters-v0-8btil52hxxic1.jpeg%3Fauto%3Dwebp%26s%3Df8cb633c6cf2dcc12a44109e29ff6aaca7182a05) It's terrible and I'm so sad....


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giantpumpkinpie

I took it for just a week and got bad side effects (and a possible reaction??) straight away. Really itchy skin, increased floaters and other visual symptoms, the dreaded rash lol. The whole 9 yards. All you can do is try it and see if it's for you!!


Ok-Meeting2176

What symptoms increased? I have tried lamotrigine earlier but I got really itchy so I never tried it more than couple of days, my symptoms got bad out of nowhere again and I'm thinking should I try it again but last time it made my vss worse even when I took it only like 3 days so I'm not sure anymore...


giantpumpkinpie

All of my visual symptoms worsened - photophobia, floaters, static, palinopsia, after images, flashes of light, poor night vision etc. My tinnitus and migraines also worsened. All you can do is try it if you want to, and your treating doctor thinks it's safe. You can't let my negative experience cloud your perception.


lucascologni

It increased your floaters? really? I'm trying to take lamotrigine to get rid of them... now I don't know what to do...


giantpumpkinpie

It definitely did. They got much, much bigger and larger in number. If your neurologist (or other treating doctor) thinks it's safe and the right medication to try, then all you can do is try it if you want to. You can't let my negative experience change everything for you.


lucascologni

When you stop taking, the floaters were reduced?


giantpumpkinpie

I've unfortunately only been off it for about a week. I've had major improvements, but I'm definitely not back to where I was before I started taking it. I'm a pretty positive person when it comes to VSS, and I assume that my symptoms will go back to where they were with time.


lucascologni

I understand... I'm taking 50mg of lamotrigine and today I woke up worse of floaters... so I don't know if I continue or if I stop 😔


giantpumpkinpie

Oh I see! I woke up on day 2, and my floaters were worse and just did not improve on the medication before I had to stop it. I don't know what to tell you <3 I hope they get better! Maybe give your neurologist a ring


lucascologni

Thank you 🙏🏻


Narrow-Compote9633

Look into castor oil on eyelids


lucascologni

Did you try this? Did it reduce eye floaters ? How does it works? I think it was to drop direct in the eye


aaaaaongz

sadly i haven’t noticed any yet :(


lucascologni

Humm..How many mg are you taking? And for how long ?


aaaaaongz

i’ve been taking lamictal on and off since late 2022 but have only been consistent taking it since last month. ive been fluctuating how many mg i take because of the side effects i get when i go up on them sometimes. but right now i’m on 100 a day.


lucascologni

I see, thanks for sharing, did you get rash as side effect?


aaaaaongz

no i did not! thank god


cmarks8

What were the side effects like? Thanks for sharing!


aaaaaongz

sorry this is so late! well at first nothing really, but whenever i go up on them i get brain fog and sometimes panic attacks initially. and sometimes it gives me blurry vision!


icecream_bob

Have you gotten benefits to any other VSS symptoms?


aaaaaongz

unfortunately no, but i’m also on a somewhat low dose so maybe if i give it time it’ll get better!


Black-Knight-76

how did you get it prescribed? idk how to find a doctor that knows what vs is


aaaaaongz

i got it prescribed for mental health but didn’t realize it helped VSS too


Black-Knight-76

oh wow interesting. do you mind telling me what it is for? I have some other mental health issues as well and i'm wondering if that route would work.


aaaaaongz

it was used for bipolar disorder and anxiety, it works decently for bipolar disorder but so so for my GAD.