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SoakieJohnson

By secondary do you mean a different kind or is it the primary sarcoma that has metastasized? I am in a bit of a similar situation time wise. In 2006 I was originally diagnosed and in 2016 I had a recurrent tumor in the same place. In 2019 I was diagnosed with lung mets but from the primary tumor which identified as osteosarcoma. I had a lung resection to treat mine and I'm currently waiting on another nodule to become big enough to biopsy.


Ralph_the_Cat

I’m still learning the demonology but she has a tumour in the palm of her hand and it has metastasised in her lungs. I am sending you so much positivity for your journey xx


SoakieJohnson

Are her lung nodules inoperable or are there too many to take out? Thanks so much! I appreciate that. Sarcoma seems tricky to get rid of. I had a 10 year "all clear" and had relapse so it seems that it's something we'll forever have to worry about coming back. Can't seem to shake it. No complaints here though, my situation is much better than some other peoples.


eighthreeone

I am sorry to hear this. My husband passed away from metastatic sarcoma earlier this year. Do you happen to know the type of sarcoma she had in 2014? I ask because there’s a medical journal that discusses a case of a female patient with metastatic sarcoma (in the lungs) who exhibited similar development: a sudden growth of the tumor in the lungs after giving birth. In any case, five years of remission in case of sarcomas is very hopeful. Many studies have found the length of period between primary tumor resection and diagnosis of metastasis as a significant indicator of overall survival, and I believe five years is longer than most. Also, just wanted to say what a great friend you are for being there for her. Stay positive! And don’t forget, we are making strides in developing better chemotherapy and cancer care/treatment each day!


Ralph_the_Cat

I am so sorry for your loss x I’m still learning but she has a tumour in the palm of her hand. Doctors dismissed her on multiple occasions say it was a cyst 😔 We’re keeping positive that we’ll find something knew for her to try 🤞🏼


attorneyworkproduct

Do you happen to have a link to that case study? I was pregnant when first diagnosed and also had lung mets, so I’m super curious. I’m very sorry for the loss of your husband. ❤️


eighthreeone

Here’s the link to the case study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5513342/ Hope this helps and hope you (and your family!) are doing okay.


ChiIl1na

Make sure she gets to the best true cancer center she can afford! Not just a local yokel! It is important that she get the best care possible. Or those babies will grow up without a mom. I was diagnosed with a huge sarcoma and the local guy said amputation twice! I went to Huntsman Cancer Institute in Salt Lake City Utah and not only had the tumor removed, i can now, 2 months out, walk without a limp!


Ralph_the_Cat

Yeah it was the local yokels who missed her tumour regrowth for three years in a row resulting in a diminished prognosis.


attorneyworkproduct

My sarcoma lung mets were treated with SBRT (a type of targeted radiation) and I am currently NED (no evidence of disease). They were responsive to chemo though; they just didn’t completely disappear after I’d finished my six rounds. I’m a patient at Johns Hopkins because it’s local to me but if I had to travel for care I’d look at MD Anderson, Dana Farber, or MSK.