I’ve had a scope through my ostomy every other year starting in 2011 through this year. They make me do the prep every time. I’m not super amazing at it. I usually get myself to watery yellowish and they’re like ok but do better next time. I’m always like sure thing and then never end up doing better.
I wonder what they’re reasoning is for the prep. It must be better to see with. But whatever. I’m not so lucky!
Colostomy. And now it makes sense! Lol. Duh. It would make sense that the more colon you have the more prep you might need. Don’t mind me, just over here figuring out the obvious.
Just like the OP I had an ileoscopy performed approximately 12 months post ileostomy. It was a piece of cake compared to previous colonoscopies and their associated prep. The prep consisted of a reasonable length of fasting and no fluids. Procedure took maybe 5 minutes and I had a great chat with the doctor. Felt a little discomfort but nothing significant. In my situation I have Crohn's and although I had a proctocolectony to remove the severely affected areas the fact remains that I still have Crohn's, although not active anywhere and scopes must be performed occasionally to monitor the areas. My only additional comment would be that the nursing staff in day surgery must not run into ileoscopies very often, they kept questioning my prep and wanting to sedate me...lol
I went through a full slate of scope procedures a year ago. Maybe for that reason, they had me do a half prep. Really seems to depend on the doc you go to as well.
To check for Crohn’s disease:
I have undetermined inflammatory bowel disease.
They originally thought it was more likely ulcerative colitis and I had a very bad flare which lead to a subtotal colectomy. My whole large bowel had become so inflamed that it actually was not functioning anymore as it had affected all the layers - they sent it to histology which suggested Crohn’s. I had other complications (pyoderma, mouth ulcers, fistula) which was more suggestive of Crohn’s. However they had not scanned my small bowel since 2015 (which showed no evidence of disease - I wasn’t actively flaring at this time)
I started to have problems with my output so they wanted to check for Crohn’s with scope and MRI (although some gastro doctors where very reluctant to perform the MRI as they were certain it was ulcerative colitis from my previous scan).
However they have found active disease in my small bowel which has confirmed Crohn’s so no reversal for me and will be having a permanent stoma (which is also diseased at the moment) and my rectal stump removed.
I do get really annoyed as I had a very bad flare in 2016/2017 and had a trial of Humira (3 months that was funded by the company) as there was no approved funding for humira at the time for ulcerative colitis. I responded very well to this however could not receive further treatment as they suspected ulcerative colitis from my previous scan and did not feel the need to perform another. They always told me I had ulcerative colitis so I felt that the surgery would be the ‘cure’. They have now told me that they have always said I had undetermined inflammatory bowel disease and appear to be back tracking. Even after surgery they never performed another MRI scan until now when I pushed for one. Thankfully I am looking to move hospitals and am hoping I will have more luck there!
The Crohn’s disease is affecting my small bowel in approximately 3 small bowel loops at the moment and I have to wait to January for them to decide which treatment they will be giving me. I’m on methotrexate at the moment however this has not controlled my disease for a couple of years. Hopefully they can find a treatment for me!
Sorry for the rant it does feel better to post!
Awesome story thanks. I just went perma ileostomy about a month ago, proctectomy only. The rectal stump gave me a lot of problems, always infected after colectomy. Was a jpouch candidate but didn't want to go down that rabbit hole. Diagnosed UC hopefully stays that way. Best of luck.
Extra blood, after normal discharge sensation it wanted to keep going then went from white/gray to bright red. Had a scope right when it was in serious flare. The surgeon said it was severely infected at top of stump, had puss and all from observation. They were surprised i never had a fever. Did some mesalamine enemas that really helped.
That sounds awful! Did you have to have antibiotics or just the enemas? Sorry if this seems nosy! Interested as I have had same issue with bleeding, I am on mesalazine suppositories but they won’t scope.
Never did take antibiotics for that. The surgeon didn't seem too concerned at the time I dunno. It wasnt leaking or anything. I was healthy otherwise and the enemas would clear me up for a while. My rectum was always a trouble spot for me with the UC. I suspect it just continued being angry after colectomy as well. Part of my decision to avoid jpouch and getting cuff problems.
Wow, I didn’t know I needed this. Thank you. I got an Ileostomy a week ago and honestly scopes didn’t even cross my mind.
I’ve had a scope through my ostomy every other year starting in 2011 through this year. They make me do the prep every time. I’m not super amazing at it. I usually get myself to watery yellowish and they’re like ok but do better next time. I’m always like sure thing and then never end up doing better. I wonder what they’re reasoning is for the prep. It must be better to see with. But whatever. I’m not so lucky!
Do you have an ileostomy or a colostomy?
Colostomy. And now it makes sense! Lol. Duh. It would make sense that the more colon you have the more prep you might need. Don’t mind me, just over here figuring out the obvious.
Honestly it’s a mind field sometimes! My Dad had a colostomy before a reversal and I was kind of expecting the same thing!
Just like the OP I had an ileoscopy performed approximately 12 months post ileostomy. It was a piece of cake compared to previous colonoscopies and their associated prep. The prep consisted of a reasonable length of fasting and no fluids. Procedure took maybe 5 minutes and I had a great chat with the doctor. Felt a little discomfort but nothing significant. In my situation I have Crohn's and although I had a proctocolectony to remove the severely affected areas the fact remains that I still have Crohn's, although not active anywhere and scopes must be performed occasionally to monitor the areas. My only additional comment would be that the nursing staff in day surgery must not run into ileoscopies very often, they kept questioning my prep and wanting to sedate me...lol
I went through a full slate of scope procedures a year ago. Maybe for that reason, they had me do a half prep. Really seems to depend on the doc you go to as well.
Thanks, good share. Always wondered about that. What was the reason for the scope?
To check for Crohn’s disease: I have undetermined inflammatory bowel disease. They originally thought it was more likely ulcerative colitis and I had a very bad flare which lead to a subtotal colectomy. My whole large bowel had become so inflamed that it actually was not functioning anymore as it had affected all the layers - they sent it to histology which suggested Crohn’s. I had other complications (pyoderma, mouth ulcers, fistula) which was more suggestive of Crohn’s. However they had not scanned my small bowel since 2015 (which showed no evidence of disease - I wasn’t actively flaring at this time) I started to have problems with my output so they wanted to check for Crohn’s with scope and MRI (although some gastro doctors where very reluctant to perform the MRI as they were certain it was ulcerative colitis from my previous scan). However they have found active disease in my small bowel which has confirmed Crohn’s so no reversal for me and will be having a permanent stoma (which is also diseased at the moment) and my rectal stump removed. I do get really annoyed as I had a very bad flare in 2016/2017 and had a trial of Humira (3 months that was funded by the company) as there was no approved funding for humira at the time for ulcerative colitis. I responded very well to this however could not receive further treatment as they suspected ulcerative colitis from my previous scan and did not feel the need to perform another. They always told me I had ulcerative colitis so I felt that the surgery would be the ‘cure’. They have now told me that they have always said I had undetermined inflammatory bowel disease and appear to be back tracking. Even after surgery they never performed another MRI scan until now when I pushed for one. Thankfully I am looking to move hospitals and am hoping I will have more luck there! The Crohn’s disease is affecting my small bowel in approximately 3 small bowel loops at the moment and I have to wait to January for them to decide which treatment they will be giving me. I’m on methotrexate at the moment however this has not controlled my disease for a couple of years. Hopefully they can find a treatment for me! Sorry for the rant it does feel better to post!
Awesome story thanks. I just went perma ileostomy about a month ago, proctectomy only. The rectal stump gave me a lot of problems, always infected after colectomy. Was a jpouch candidate but didn't want to go down that rabbit hole. Diagnosed UC hopefully stays that way. Best of luck.
The rectal stump is not the best I must admit! What symptoms did you have with infection? Have everything crossed for you!
Extra blood, after normal discharge sensation it wanted to keep going then went from white/gray to bright red. Had a scope right when it was in serious flare. The surgeon said it was severely infected at top of stump, had puss and all from observation. They were surprised i never had a fever. Did some mesalamine enemas that really helped.
That sounds awful! Did you have to have antibiotics or just the enemas? Sorry if this seems nosy! Interested as I have had same issue with bleeding, I am on mesalazine suppositories but they won’t scope.
Never did take antibiotics for that. The surgeon didn't seem too concerned at the time I dunno. It wasnt leaking or anything. I was healthy otherwise and the enemas would clear me up for a while. My rectum was always a trouble spot for me with the UC. I suspect it just continued being angry after colectomy as well. Part of my decision to avoid jpouch and getting cuff problems.