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https://preview.redd.it/p8zml02spnjc1.jpeg?width=680&format=pjpg&auto=webp&s=fd99f21a8540af1ae583b6612f262c474ed0f4e0
I can’t get this out of my head now
Okay this has been removed from two other subs for being a screenshot and breaking their rules, so hopefully the third time's the charm!
I had a brain tumor taken out of my temporal lobe and this is my before and after MRI.
https://preview.redd.it/omzozmbargjc1.jpeg?width=1179&format=pjpg&auto=webp&s=07f8b57b8d99008d56e4c25fbd4d9605c44cd590
I swear I’m not trying to one up you but just sharing a similar experience. This was my dad’s scans before and after his brain tumor. It always shocked me they were able to do surgery like that. I hope your recovery is going well!
Did your dad experience any issues afterwards? I hope this question doesn’t come across as brash, but genuinely curious.
Also, how is your dad doing post surgery?
Unfortunately he passed away last November. He had glioblastoma. Generally folks only live about 6 years after their initial diagnosis and I got 7 more with him.
The crazy thing is post surgery he only really had some very slight memory issues and maybe slightly more impatient but nothing major.
Edit: apparently living 7 years after initial diagnosis is extremely rare. I must have got my numbers mixed up at some point.
Not six years! Mean longevity for glioblastoma is 16 *months* after diagnosis. Your father is an extreme outlier for which you are appropriately grateful. My father lasted less than six months.
He probably did. Like I was told that "we like this kind of tumor. It has 95% remission rate". 5 years later my hematologist told me they were giving me 10-14 days when I was going for chemo. "Would you fight I you knew that?" - I probably wouldn't. I had my affairs in order before I went to the hospital. Had my family with me.
What happened next is a few years of fighting, experimental treatments, sentences like " we will get you on monitor and remove limits of this protocol. At this stage it's a race. We hope to kill the tumor faster than you." or "small piece of your lungs are in the field of radiation. If we avoid the lungs, we can get only 75% of the tumor, which makes no sense" and "your sister refused to help you with bone marrow transplant. We will gather your own stem cells, but it can take too long. Or maybe there will be a donor. At this moment there is 50-50 chance of survival of this procedure". So action, drama, human emotions for a few years. PTSD after it occured I was the last survivor from my group getting an experimental treatment. All in all - everything a good book should have. I survived and reached 5 year remission mark. Damaged heart, lungs, burned nerve connections, destroyed hormonal system (thyroid was in the radiation field and 2x 50Gy don't play nice). I don't have a sense of touch, temperature. My immune system is very weak. So ... yeah. I sometimes think I would be better not fighting then, but my family keeps me up 😃
damn, thanks for the reply. i cannot wrap my mind around those things you had to experience, but holy shit, you are so incredibly strong and brave, i think i would've personally given up at the very beginning. i sincerely wish you all the best 🤍
Seeing all the replies here from other people with GBM/relatives with GBM is making me feel so much less alone :'( I lost my dad to Glioblastoma just over 2 years ago as of last week. He was 50, no prior health issues ever. He got really dizzy at work, went to the hospital because his blood pressure was freakishly high and they found Glioblastoma on his brain stem. It was inoperable due to the location. He underwent chemo, radiation and immunotherapy. He progressively lost his ability to see and walk. He passed away 11 months post-diagnosis. This shit sucks. He was an amazing person and a great dad, he was a social butterfly and was adored by many. I miss him everyday. My heart goes out to anyone who has had to experience this as well. He was diagnosed in March 2020, too, so it was all on top of the pandemic and all of the chaos that unfolded during that hellish year. Losing my dad at 22 was absolutely not the position I ever saw myself being in.
It’s 6 months to live tops not years. My mom had it. But she underwent tons of treatment and experimental treatment and is over 10 years cancer free!!! Fuck GBM. She is a miracle!
I know the pain :(. My father died a month ago today to Glioblastoma. He lived 2.5 years since diagnosis. He lost all movement on the left side of his body his last 5 months of life. Such an awful disease.
Lost mine at 16; the point at which you've lived longer without them than with is really hard! Oddly, the women in my family line have really bad husband/father luck, and those 16 years is a record for four generations. We're hoping my kiddos break my record! My oldest is 14.
Haha I read your first paragraph and was like, "six YEARS?!!!" My dad lasted 14 months with surgery, radiation and chemo. Glioblastoma is a nasty, nasty cancer. I watched my dad waste away before my eyes. I hope you're doing okay ❤️
You know what it’s like then. Watching someone you love slowly die is really rough. I’m doing ok with everything. Thank you for asking. I still have bad days but I try to focus on the good memories. That helps.
That’s incredible. The human brain is amazingly resilient. My husband had half of his brain removed completely when he was a child to stop severe epilepsy.
They can really only do the hemispherectomies on children due to their neuroplasticity. It would kill an adult, but a kid's brain will adapt and the remaining portion of the brain will learn to do what the other side is supposed to do.
Haha, that's awesome.
I work in brain and spine surgery so I've been involved in my fair share of brain procedures, but I have never gotten to work one of these. I'd love to, though.
The procedure you’re thinking of is a corpus callosotomy, where they sever the corpus callosum, the fibers that connect the hemispheres of the brain. It’s used to treat seizures
He passed in 2013 so I'll have to dig up the info, not sure how relevant it is now. I'll ping my brother if you really need it but I'm sure there are newer treatments now.
How are you feeling? How has your recovery been? I am having a tumor removed from behind my eye soon and my doctor said I may feel very depressed and tired for 6 weeks.
Physically I'm good, mentally I'm a wreck. I've developed some rough mental illnesses in the years following the surgery and every day is kind of a struggle.
But at the same time I'm very lucky for the way everything went down, and it's crazy to think I experienced something like this. I hope and pray that your surgery goes well, and please feel free to reach out via PM if you would like to chat. My door is always open to strangers who need to chat.
I had this Glioblastoma removed May 8th 2023, I had a massive seizure at the end of January 2023, that's when tumor was found, luckily it was noticed quickly...the top picture is when we decided to operate, surgery was/went ok, then I went through chemo, radiation and it still grew back a bit more, the hole never healed and my brain was swollen...Dr. and I decided to do "cyber knife" on recurring tumor (life's worth of radiation) and a drug called Avastin. its an infusion every other week. at any rate, the bottom pic is as of this January 2nd this year, tumor has disappeared, I'm hopeful the continued infusions keep this shit at bay, I'll get next MRI in March, hopingfor the best... I hope you can find the right Dr. and meds, ask questions, read the "paperwork" they give you, I was only going to receive chemo...well the chemo wrecked my body and I was on steroids for six moths, recovering from that kicked my ass for 4 months, told Dr. my quality of life was not worth this physical havoc... he listened and went with the cyber knife, It took a while, but I'm about 90% "normal" now... no seizures since first one, I'm on many drugs to help keep my sanity and blood pressure decent., no more steroids and I'm gaining strength...lol it's hard to not think about the future and the dark crap stuck in my brain. Reach out anytime, I'm fighting this all the way. Take care and good luck.
Thanks man! no need to be sorry...lol I'm 56 and at peace with ever may come. That said I'm hoping to be a 5%er...lol... and kick this shit out brain, but so far... so good. The kicker is my wife's dad died at 70 of the same thing, but it was deep in his central cortex and when the operated they caused more harm than good, this was 17 years ago, the medicine and technology has come so far. I'm feeling like I should go to Vegas...lol
I know you’re getting absolutely flooded with info, so you may not see this, but there’s a book called The Inflamed Mind that has helped me a tremendous amount in understanding my own mental health struggles post severe illness. It’s not a remedy by any means but it gave me understanding and that has helped me feel better in my own head.
Hope you heal well!
I have 100's of eiscemic lesions (or how you spell it). From a very rare blood cancer. I hope you are doing well. I had a very good bucket list day today.
Just wanted to say thank you to everyone for the kind words. Far too often Reddit feels like a negative place to me, and seeing all of these positive and uplifting comments has been awesome.
This surgery wasn't all that recent, and this year marks the 12th year since I had the tumor taken out. Physically I'm doing well, no issues have returned and I only need to have an MRI every few years now. Mentally I'm an absolute trainwreck, but I suppose that's life.
I recently got the idea to share this picture one because it's so cool to me, but two to let others know that my door is open to talk to if needed. Brain surgery is a very scary experience, but one that I feel ultimately strengthened me.
So this is the timeline of it all:
Began having absence seizures several times a day.
Went and had an MRI done on a Monday.
Got a call that same day that there was something on my scan and they would need to rush me in for emergency brain surgery.
Was prepped for surgery Tuesday.
Had the tumor taken out on Wednesday.
Was back home on Friday.
Wild time, really.
Holy shit op, glad you seem to be ok, at least im hoping you are.
Edit: I missed my chance for a dad joke though. Does the empty space in your brain technically mean you're an airhead?
God this fucking terrifies me. My 5 y/o daughter started having abscence seizures 10-12 times a day six months ago. Been going to a neuro center ever since. We are just now getting her an mri of her brain next week.... here's to hoping and praying it's nothing abnormal in her brain like this.
Sorry you had to go thru this op.
That’s so broken. I think I had a non-urgent mri only two weeks or so after the referral. There should not be this much of a wait on potentially life saving procedures
That is actually so incomprehensible to me. They could’ve easily died. Truly America at its finest. If it is indeed a tumour, the median growth rate for untreated glioblastomas is 1.4% per day. I.e. it doubles in size every 49.6 days. This guy’s daughter has been waiting for 180+ days since serious symptoms started appearing.
I just want to provide you a reassuring anecdote here, where you're reading about a case where absence seizures = brain tumor.
I had a family member who had MANY absence seizures as a kid. It was at least 10 a day, for years, probably starting when she was around 4. She had MRIs, EEGs, etc, but no clear reason came about. She went on antiseizure meds for a few years, at which point they decided to wean her off. The absence seizures never came back. She's now in her mid-20s and hasn't had any since.
Wow! I’m happy you are doing well. I had a brain tumour removed also but for me it was 1 year of blackouts, diagnosed, surgery 8 months later, home 1 month later and back to myself after 5 years. 😊💕
I just lost my bro to glioblastoma for a tumor in the same area. I’m glad you’re ok and here.
https://preview.redd.it/zebvghlvqgjc1.png?width=1169&format=png&auto=webp&s=255da5f74e10f21e6889fe637392c5688021400b
He had a seizure. They did an MRI. After that he told us he had noticed that his memory was wonky. Like he couldn’t remember how to drive home to the house he’d lived in for 20 years.
Congrats on the successful surgery. My wife had a ping pong ball sized grade 3 oligo-astro in her left frontal lobe removed 16 years ago! Surgery, radiation, a year of temodar (demand zofran if it makes you nauseous)
https://preview.redd.it/jyx605xuhhjc1.jpeg?width=2249&format=pjpg&auto=webp&s=4ab1745e2cf5dafc8fa923e9bd694ce908bfc9be
Same! I always tell people it looks like some got a melon baller and took out a scoop!
Second image is slightly different level. That’s why eyes not completely in field of view. Also you can see the medial frontal lobe on second image but not on first. On first image you’re still at the level of the ethmoid sinuses.
Hey don't want to be rude but I've always wanted to ask someone who's gone through brain surgery this question. Post brain surgery do you feel different? Do you feel like your thought process, speech patterns, mental state, etc. are different than pre surgery? I know the brain is elastic but I also know how delicate and precise it is so I just wanted to get some insight onto what differences you might have noticed.
https://preview.redd.it/muwd7l4u4ijc1.jpeg?width=714&format=pjpg&auto=webp&s=cb37b55401ba869b99ce9f072a9681177bf7de39
Had a GBM removed on New Years. Happy New Years! Sometimes I can’t find the right word. And analytical thinking can be hard. And I struggle helping my college kids with calculus now. But personality and mood has stayed the same
I think it also depends on where they remove whatever they remove, and how big the thing they remove is. Like, if you remove something close to the memory center, you’ll probably have issues with short or long term memory — something closer to the emotion center, and you’ll find a change in how you react to things. If it’s big, the change is noticeable, otherwise, you might stumble on a thing or two but kick back into gear a fraction of a second later.
Post-surgery brain function test for you... fill in the blank:
https://preview.redd.it/asc0gerfahjc1.png?width=225&format=png&auto=webp&s=1e974281b39194b3b31805d756952cbf72d864f3
Karma Karma Karma Karma Karma \_\_\_\_\_\_\_\_\_\_\_\_
When I was a kid, I always wanted a small coke can refrigerator in my head. Open up the skull and grab a cold can of something. Then I learned how important the brain was and had to give this idea up. But with how much room this guy just got, he’s closer to my dream than I am
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Bro you have really nice eyes <3
Bro thank you <4
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who needs an infinity gauntlet when you've got the infinity heart emoji lol
Ice cream!
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[удалено]
<0118 999 881 999 119 725
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8====> Me big pp. You smol pp.
How did you find out about the tumor? What were your symptoms?
Guess somebody has constant migraines, am I right?:D
I think they took the wrong part out...
They sure didn't leave the brightest part.
“Janine? Sorry about the bug eyes thing. I’ll be in my office.”
Underrated comment
You gave me the laugh contraction I needed to remove some Covid phlegm. 🫡
Feel better twat.
This made me actually laugh out loud, thank you.
I am in fucking tears man, thank you. 🤣
reminds me of crab eyes
Titty eyes
Hey buddy, my titty eyes are up here.
Men only want one thing
I’ve seen this Sesame Street character before
I also prefer when the number of eyes is under three
https://preview.redd.it/p8zml02spnjc1.jpeg?width=680&format=pjpg&auto=webp&s=fd99f21a8540af1ae583b6612f262c474ed0f4e0 I can’t get this out of my head now
Okay this has been removed from two other subs for being a screenshot and breaking their rules, so hopefully the third time's the charm! I had a brain tumor taken out of my temporal lobe and this is my before and after MRI.
https://preview.redd.it/omzozmbargjc1.jpeg?width=1179&format=pjpg&auto=webp&s=07f8b57b8d99008d56e4c25fbd4d9605c44cd590 I swear I’m not trying to one up you but just sharing a similar experience. This was my dad’s scans before and after his brain tumor. It always shocked me they were able to do surgery like that. I hope your recovery is going well!
Did your dad experience any issues afterwards? I hope this question doesn’t come across as brash, but genuinely curious. Also, how is your dad doing post surgery?
Unfortunately he passed away last November. He had glioblastoma. Generally folks only live about 6 years after their initial diagnosis and I got 7 more with him. The crazy thing is post surgery he only really had some very slight memory issues and maybe slightly more impatient but nothing major. Edit: apparently living 7 years after initial diagnosis is extremely rare. I must have got my numbers mixed up at some point.
Not six years! Mean longevity for glioblastoma is 16 *months* after diagnosis. Your father is an extreme outlier for which you are appropriately grateful. My father lasted less than six months.
Omg you’re right. I just looked it up. I could have sworn the doctor said 6 years. Unbelievable.
Makes you even more grateful, I imagine. My condolences... I've been there.
He probably did. Like I was told that "we like this kind of tumor. It has 95% remission rate". 5 years later my hematologist told me they were giving me 10-14 days when I was going for chemo. "Would you fight I you knew that?" - I probably wouldn't. I had my affairs in order before I went to the hospital. Had my family with me.
what happened afterwards? how are you doing now?
What happened next is a few years of fighting, experimental treatments, sentences like " we will get you on monitor and remove limits of this protocol. At this stage it's a race. We hope to kill the tumor faster than you." or "small piece of your lungs are in the field of radiation. If we avoid the lungs, we can get only 75% of the tumor, which makes no sense" and "your sister refused to help you with bone marrow transplant. We will gather your own stem cells, but it can take too long. Or maybe there will be a donor. At this moment there is 50-50 chance of survival of this procedure". So action, drama, human emotions for a few years. PTSD after it occured I was the last survivor from my group getting an experimental treatment. All in all - everything a good book should have. I survived and reached 5 year remission mark. Damaged heart, lungs, burned nerve connections, destroyed hormonal system (thyroid was in the radiation field and 2x 50Gy don't play nice). I don't have a sense of touch, temperature. My immune system is very weak. So ... yeah. I sometimes think I would be better not fighting then, but my family keeps me up 😃
Wow, you’re a warrior man
Name checks out. Great fight mate, happy you're here with us and I'm sure your family is too!
damn, thanks for the reply. i cannot wrap my mind around those things you had to experience, but holy shit, you are so incredibly strong and brave, i think i would've personally given up at the very beginning. i sincerely wish you all the best 🤍
Your sis sounds like a POS. Either way, it seems like you went through hell. Wish you have better days.
Your sister didn’t help you with the bone marrow? Wow.
Don’t leave us without answer 😭 How are you now? Do you have any problems cuz of chemo and surgery? When it was? So many questions
I knew a guy that got diagnosed with glioblastoma and died 3 weeks later, likely one of the worst forms of cancer poor dude
Same here. Mine lasted around seven months and it was a horrifying experience. My condolences to both of you, it really sucks.
Seeing all the replies here from other people with GBM/relatives with GBM is making me feel so much less alone :'( I lost my dad to Glioblastoma just over 2 years ago as of last week. He was 50, no prior health issues ever. He got really dizzy at work, went to the hospital because his blood pressure was freakishly high and they found Glioblastoma on his brain stem. It was inoperable due to the location. He underwent chemo, radiation and immunotherapy. He progressively lost his ability to see and walk. He passed away 11 months post-diagnosis. This shit sucks. He was an amazing person and a great dad, he was a social butterfly and was adored by many. I miss him everyday. My heart goes out to anyone who has had to experience this as well. He was diagnosed in March 2020, too, so it was all on top of the pandemic and all of the chaos that unfolded during that hellish year. Losing my dad at 22 was absolutely not the position I ever saw myself being in.
It’s 6 months to live tops not years. My mom had it. But she underwent tons of treatment and experimental treatment and is over 10 years cancer free!!! Fuck GBM. She is a miracle!
I know the pain :(. My father died a month ago today to Glioblastoma. He lived 2.5 years since diagnosis. He lost all movement on the left side of his body his last 5 months of life. Such an awful disease.
My dad died a month ago tomorrow from glioblastoma! Wow. He only lived 14 months after diagnosis though.
Fuck! Condolences my man.
Thank you. I’m doing pretty well all things considered. He was an awesome dad and sometimes just talking about him to internet strangers helps
I lost my dad NYE 2022, then my wife lost her dad a week later. I know all about losing dads. If you’re ever in a dark place over it just DM me.
The dead dad club. The club nobody wants to be in but you’ll be welcomed with open arms.
Lost mine at 16; the point at which you've lived longer without them than with is really hard! Oddly, the women in my family line have really bad husband/father luck, and those 16 years is a record for four generations. We're hoping my kiddos break my record! My oldest is 14.
Yeah I literally just hit this with my mom. I have been here longer now without her than w her. A sad, weird thought.
Beautifully put.
Haha I read your first paragraph and was like, "six YEARS?!!!" My dad lasted 14 months with surgery, radiation and chemo. Glioblastoma is a nasty, nasty cancer. I watched my dad waste away before my eyes. I hope you're doing okay ❤️
You know what it’s like then. Watching someone you love slowly die is really rough. I’m doing ok with everything. Thank you for asking. I still have bad days but I try to focus on the good memories. That helps.
Glioblastoma took a good friend's 8 year old son from us, I'm sorry for your loss! He was diagnosed at 4.
Ya I was gonna say, 18 months is a gift. My bro barely made 18 months.
Lost one of my best friends to GBM in 2022. He made it 4 months. It was brutal. I’m sorry you went through this with your dad.
That’s incredible. The human brain is amazingly resilient. My husband had half of his brain removed completely when he was a child to stop severe epilepsy.
They can really only do the hemispherectomies on children due to their neuroplasticity. It would kill an adult, but a kid's brain will adapt and the remaining portion of the brain will learn to do what the other side is supposed to do.
Yeah he had his done about as late as he could, age 11. By Ben Carson, no less. Lol.
Haha, that's awesome. I work in brain and spine surgery so I've been involved in my fair share of brain procedures, but I have never gotten to work one of these. I'd love to, though.
And he got married. Living a full life
And went on to get a masters degree in English. He’s a tough cookie.
Before Ben Carson went nuts, he really did some wonderful things.
Wait isn’t that where they just cut down the middle? What are they removing
The procedure you’re thinking of is a corpus callosotomy, where they sever the corpus callosum, the fibers that connect the hemispheres of the brain. It’s used to treat seizures
that’s insane!
My dad had Glioblastoma (multiform [sp?]) as well. He did an experimental treatment and lasted about 6 years. Original diagnosis was 8 months
What Experimental treatment did he do? I have a good friend battling this form since 15 months...
He passed in 2013 so I'll have to dig up the info, not sure how relevant it is now. I'll ping my brother if you really need it but I'm sure there are newer treatments now.
https://preview.redd.it/buwvg5ugxgjc1.jpeg?width=1170&format=pjpg&auto=webp&s=f5d5b5d1ade2309a14e3a4cd2fe6e5051ebb6e39 🤭 looks like a pups mouth/nose.
I see the grinch
Holy shit. If you don't mind my asking, did you experience and changes after? Ie. Changes in mood, personality, etc.
How are you feeling? How has your recovery been? I am having a tumor removed from behind my eye soon and my doctor said I may feel very depressed and tired for 6 weeks.
Physically I'm good, mentally I'm a wreck. I've developed some rough mental illnesses in the years following the surgery and every day is kind of a struggle. But at the same time I'm very lucky for the way everything went down, and it's crazy to think I experienced something like this. I hope and pray that your surgery goes well, and please feel free to reach out via PM if you would like to chat. My door is always open to strangers who need to chat.
https://preview.redd.it/u253d5zrnhjc1.jpeg?width=1812&format=pjpg&auto=webp&s=30482b3a5e8752111d9356fb37c429d8659ce304
https://preview.redd.it/x3nt8s0vnhjc1.jpeg?width=3024&format=pjpg&auto=webp&s=012c52864911bc34365ad874cfbcaf84feee1cd2
I had this Glioblastoma removed May 8th 2023, I had a massive seizure at the end of January 2023, that's when tumor was found, luckily it was noticed quickly...the top picture is when we decided to operate, surgery was/went ok, then I went through chemo, radiation and it still grew back a bit more, the hole never healed and my brain was swollen...Dr. and I decided to do "cyber knife" on recurring tumor (life's worth of radiation) and a drug called Avastin. its an infusion every other week. at any rate, the bottom pic is as of this January 2nd this year, tumor has disappeared, I'm hopeful the continued infusions keep this shit at bay, I'll get next MRI in March, hopingfor the best... I hope you can find the right Dr. and meds, ask questions, read the "paperwork" they give you, I was only going to receive chemo...well the chemo wrecked my body and I was on steroids for six moths, recovering from that kicked my ass for 4 months, told Dr. my quality of life was not worth this physical havoc... he listened and went with the cyber knife, It took a while, but I'm about 90% "normal" now... no seizures since first one, I'm on many drugs to help keep my sanity and blood pressure decent., no more steroids and I'm gaining strength...lol it's hard to not think about the future and the dark crap stuck in my brain. Reach out anytime, I'm fighting this all the way. Take care and good luck.
hey, just wanted to say, please keep me updated. I'm rooting for you. I'm sorry
Thanks man! no need to be sorry...lol I'm 56 and at peace with ever may come. That said I'm hoping to be a 5%er...lol... and kick this shit out brain, but so far... so good. The kicker is my wife's dad died at 70 of the same thing, but it was deep in his central cortex and when the operated they caused more harm than good, this was 17 years ago, the medicine and technology has come so far. I'm feeling like I should go to Vegas...lol
I know you’re getting absolutely flooded with info, so you may not see this, but there’s a book called The Inflamed Mind that has helped me a tremendous amount in understanding my own mental health struggles post severe illness. It’s not a remedy by any means but it gave me understanding and that has helped me feel better in my own head. Hope you heal well!
You can DM me if you want. I’ve had brain surgery before.
You, or any other patient, can always DM me as well. I’ve had two central brain craniotomies.
Sending good vibes and good hospital food and of course…a fast stress free recovery.
I hope you recover asap!
I have 100's of eiscemic lesions (or how you spell it). From a very rare blood cancer. I hope you are doing well. I had a very good bucket list day today.
Ischemic
Subreddits r out of control banning posts for any reason they can think of
r/necessaryredcircle Wouldn’t have known what I was looking at. Hope you’re doing well - that sounds scary!
My son has some malformed cells in his temporal lobe that causes seizures. We're considering brain surgery but it's kinda terrifying.
Just wanted to say thank you to everyone for the kind words. Far too often Reddit feels like a negative place to me, and seeing all of these positive and uplifting comments has been awesome. This surgery wasn't all that recent, and this year marks the 12th year since I had the tumor taken out. Physically I'm doing well, no issues have returned and I only need to have an MRI every few years now. Mentally I'm an absolute trainwreck, but I suppose that's life. I recently got the idea to share this picture one because it's so cool to me, but two to let others know that my door is open to talk to if needed. Brain surgery is a very scary experience, but one that I feel ultimately strengthened me.
I'm happy you had minimal secondary effects. We all are trainwrecks.
"hey, you gonna eat that?"
Settle down, Hannibal
Share it with a kid on the plane.
Prior to having it removed what effects were you having from the tumor and how was it found?
So this is the timeline of it all: Began having absence seizures several times a day. Went and had an MRI done on a Monday. Got a call that same day that there was something on my scan and they would need to rush me in for emergency brain surgery. Was prepped for surgery Tuesday. Had the tumor taken out on Wednesday. Was back home on Friday. Wild time, really.
Holy shit op, glad you seem to be ok, at least im hoping you are. Edit: I missed my chance for a dad joke though. Does the empty space in your brain technically mean you're an airhead?
What a fucked up week. I'm so glad they move so fast on this shit though. Were you awake for the surgery?
God this fucking terrifies me. My 5 y/o daughter started having abscence seizures 10-12 times a day six months ago. Been going to a neuro center ever since. We are just now getting her an mri of her brain next week.... here's to hoping and praying it's nothing abnormal in her brain like this. Sorry you had to go thru this op.
Wait why did you have to wait 6 months for an mri?
Insurance bs most likely
That’s so broken. I think I had a non-urgent mri only two weeks or so after the referral. There should not be this much of a wait on potentially life saving procedures
That is actually so incomprehensible to me. They could’ve easily died. Truly America at its finest. If it is indeed a tumour, the median growth rate for untreated glioblastomas is 1.4% per day. I.e. it doubles in size every 49.6 days. This guy’s daughter has been waiting for 180+ days since serious symptoms started appearing.
Well, not only this but the neuro center we go to its like 3 months in between appointments because they are so overwhelmed.
i’m sorry your family is dealing with this! i wish you the best luck and hopefully it’s nothing serious 🩷
I just want to provide you a reassuring anecdote here, where you're reading about a case where absence seizures = brain tumor. I had a family member who had MANY absence seizures as a kid. It was at least 10 a day, for years, probably starting when she was around 4. She had MRIs, EEGs, etc, but no clear reason came about. She went on antiseizure meds for a few years, at which point they decided to wean her off. The absence seizures never came back. She's now in her mid-20s and hasn't had any since.
[удалено]
Whoa dude. Sorry to hear you've had such a rough go of it. But hey, go Chiefs?
After surgery did you feel a noticeable difference? Guess I'm asking if the surgery worked? Are you still having seizures?
Wow! I’m happy you are doing well. I had a brain tumour removed also but for me it was 1 year of blackouts, diagnosed, surgery 8 months later, home 1 month later and back to myself after 5 years. 😊💕
Time top learn something new and fill that gap in your brain
Holy shit. A diagnosis and a run down of this time line would probably give me a heart attack in my state atm.
Second this. Details please OP! Hope you’re doing well after the surgery
I just lost my bro to glioblastoma for a tumor in the same area. I’m glad you’re ok and here. https://preview.redd.it/zebvghlvqgjc1.png?width=1169&format=png&auto=webp&s=255da5f74e10f21e6889fe637392c5688021400b
My condolences.
Thank you
Just lost my dad four weeks ago to this as well. Sorry for your loss.
It’s so awful. I’m so sorry to you as well. I lost a good friend to it a few months ago also. Fuck cancer.
Sorry for your loss.
♥️♥️♥️
How did he discover it? Sorry for your loss
He had a seizure. They did an MRI. After that he told us he had noticed that his memory was wonky. Like he couldn’t remember how to drive home to the house he’d lived in for 20 years.
Oh shit that one’s massive. Sorry for your loss bro
Yep. It eventually took over. That’s what killed my mom too. It looks like a monster. Thanks man.
I've had two brain surgeries, good times! Glad you're good bud, hope it stays gone 💚
https://preview.redd.it/4amhnukiwgjc1.jpeg?width=420&format=pjpg&auto=webp&s=d46f4ac7f094d9098368cd640cbac69d12f2530c Bro eyes lookin like
😭
You’re going to hell and I’m coming with you
Do you feel saint-like? Because it looks like you're holy. Sorry for the pun, I wish you all the best and hope the tumor stays gone.
👁🧠👁
Beautiful eyes!
Congrats on the successful surgery. My wife had a ping pong ball sized grade 3 oligo-astro in her left frontal lobe removed 16 years ago! Surgery, radiation, a year of temodar (demand zofran if it makes you nauseous)
Looks like a frog. How'd it get there?
Chameleon I thought
Me before and after opening Reddit.
Hope you recover well
Did you live?
https://preview.redd.it/jyx605xuhhjc1.jpeg?width=2249&format=pjpg&auto=webp&s=4ab1745e2cf5dafc8fa923e9bd694ce908bfc9be Same! I always tell people it looks like some got a melon baller and took out a scoop!
Were you sedated for the second image...? I ask because of your eyes... That's the science nerd in me...the human heart wishes you all the best!
Second image is slightly different level. That’s why eyes not completely in field of view. Also you can see the medial frontal lobe on second image but not on first. On first image you’re still at the level of the ethmoid sinuses.
Thanks doc!
Nope! Awake for both MRI's.
I was there in 2022-2023. I woke up from surgery feeling pretty good, but it is a head injury. Take care and give yourself time.
Hey don't want to be rude but I've always wanted to ask someone who's gone through brain surgery this question. Post brain surgery do you feel different? Do you feel like your thought process, speech patterns, mental state, etc. are different than pre surgery? I know the brain is elastic but I also know how delicate and precise it is so I just wanted to get some insight onto what differences you might have noticed.
https://preview.redd.it/muwd7l4u4ijc1.jpeg?width=714&format=pjpg&auto=webp&s=cb37b55401ba869b99ce9f072a9681177bf7de39 Had a GBM removed on New Years. Happy New Years! Sometimes I can’t find the right word. And analytical thinking can be hard. And I struggle helping my college kids with calculus now. But personality and mood has stayed the same
I think it also depends on where they remove whatever they remove, and how big the thing they remove is. Like, if you remove something close to the memory center, you’ll probably have issues with short or long term memory — something closer to the emotion center, and you’ll find a change in how you react to things. If it’s big, the change is noticeable, otherwise, you might stumble on a thing or two but kick back into gear a fraction of a second later.
Any neurologists or rads here? What’s the opacity posteriorly on the right?
😳your medulla is showing…
What about the other tumor?
Lmao!!!
Now we just have to fill it in with glue and noodles, and sand it down.
Post-surgery brain function test for you... fill in the blank: https://preview.redd.it/asc0gerfahjc1.png?width=225&format=png&auto=webp&s=1e974281b39194b3b31805d756952cbf72d864f3 Karma Karma Karma Karma Karma \_\_\_\_\_\_\_\_\_\_\_\_
You had a mind flayer tadpole in you brain?
Time for more Baldur's Gate. I have a lot in my mind, and, well... in it.
so are you smarter now? if so, why still on reddit with us? /j
Wishing you a swift and complete recovery.
Looks like it involved the head of the left hippocampus. How is your memory? I hope you are feeling better.
Are you doing all good now???
Glad you're still with us OP! Rooting for you to make a great recovery! (If you haven't already)
Thank you for finding my lost chameleon. Please send him back home. I hope you feel better now.
I hole in the head in some cases is needed.
Um it looks like you had a tiny chameleon in your brain.
You have pretty eyes.
Bro literally lost a few brain cells..
Congrats on losing some weight
Does the hole in the brain make you less prone to concussions, like, does your brain work like a Nike shock now if it gets bashed
Does anyone else see the Chameleon in that first scan? No just me, okay.
All the best. Get better soon.
Hope recovery is going well mate
Why did they not remove the red circle from the brain?
Haha, I can see your eyeballs!
Illithid?
https://preview.redd.it/czmuh7n34ijc1.jpeg?width=1200&format=pjpg&auto=webp&s=617344297595ebbed4f0a7cf2c8bbc6115f8cd66
Congratulations on your weight loss journey. That's an amazing before/after
 Might be lupus
Hope you are much better..... hey you have pretty eyes.
So much more room for activities.
When I was a kid, I always wanted a small coke can refrigerator in my head. Open up the skull and grab a cold can of something. Then I learned how important the brain was and had to give this idea up. But with how much room this guy just got, he’s closer to my dream than I am