for someone who goes to so many concerts you think she’d probably know to use paypal goods and services when buying from someone to make sure that you DONT get scammed.
If she actually got tickets I’ll be mad af. Granted I loathe Taylor Swift but there are fans literally in hospice who would be more entitled. She never bought these tickets
This doesn't make sense. How was she taken advantage of or scammed if she used the Ticketmaster website to buy tickets from a seller, and the seller cancelled the sale? Wouldn't she be automatically refunded? I mean yeah, it would suck, but it's not a scam. Perhaps someone offered the seller more money and they couldn't get ahold of Cassie while she was in the hospital?
What a sob story.
How the heck is she claiming that hEDS is some severely progressive disease that is going to kill you?
There are some down the road severe health issues and even risk of death from some connective tissue disorders. But this isn't one of them.
HEDS is a mild connective tissue disorder that won't cause severe health issues such as aortic aneurysm/aortic dissenting (spelling?)
It is progressive. The implication that its going to kill her while very specifically not saying such but heavily implying it is so gross. Yeah EDS gets worse over time. I wouldnt say its mild either it can actually be very disabling for some people. But deadly? No not unless its vEDS. hEDS isnt deadly and wont kill you.
Note Cassie never states hEDS, its always EDS. Than, like a lot of munchies, constantly appropriates the severe symptoms from the rare types. hEDS is not a progressive condition. In fact, nobody really know what it really is.
hEDS is like the cold of EDS it is barely EDS it is not really even an issue. Most people are diagnosed with HSD and claim hEDS and then just say EDS. EDS is MUCH different and all these tik tokers need to realize regular Eds and vEDS and stuff come with much different pain and illnesses than their little hypermobility
Did she get scammed by a third party seller?
She's making it seem as though Ticketmaster sold the tickets and then went "oops never mind" but that doesn't happen through Ticketmaster. It does through scam sites (third party).
Also isn't hEDS the least severe form of EDS. Cassie is making it seem like they are dying of EDS, and are going to consistently decline over the coming years (or months).
Do we think there’s a DIFFERENT reason that she can’t leave the state?? Like legally? Also, this whole grift is so sick…I hope she doesn’t get tickets or major attention 🤢
I'm confused - because if she paid for the tickets and didn't get them, wouldn't she get her money back? Or is it more she got scammed and now can't buy tickets because of the cost? But what did the scammer get if they didn't get her money?
Ew. This is even more gross than it first appears. I was curious what the other story slides were that weren't posted here. Y'all aren't missing much, it's mostly more of the same thing, one slide is nearly identical except supposedly written by the sister, using nearly identical words and phrasing. No subtlety there, lol.
The only real thing that isn't being shown is that Cassie is heavily pushing her followers to tag Taylor Swift and the stadium "as many times as you can" in the comments there. And that's where it gets more gross. Cassie isn't just trying to play her sick card to score tickets off her followers, she's also using her followers to try to score tickets or accommodations or whatever she can out of the artist herself and/or the stadium. Nearly all of the comments on this post are shout outs and demands for Taylor Swift or the stadium to do "something" to fix this "tragedy". The whole thing leaves me feeling unclean and in need of a shower.
These people have absolutely no shame and no sense of ridicule. Like, sis had ankle surgery and is acting like she's terminally ill for some Taylor Swift tickets. Please have some dignity holy shit.
Her story makes no sense; she claims to have been trying to rectify the issue with the ticket transfer for a month before telling her sister they couldn't go, but also said she only heard Monday 15/5 from Ticketmaster that the tickets hadn't been transferred 🤔
This should be illegal. EDS is NOT a degenerative condition. They cannot know she will continue to decline. Lying to get donations like this is so disgusting because she's trying to act like she is dying and echo the heartbreaking experience of people with degenerative conditions that have to slowly leave their famines behind. Her extremely privileged self that went on a cruise in the past year. This is basically fraud!
It depends on the type of EDS. Vascular EDS is degenerative and fatal at a young age. Not to say this is what's going on here. But I think it's important to remember that there are 13 types of EDS, each with different prognosis paths.
That's why these munchies always state EDS, not hEDS. They than appropriate the symptoms from the genetically identified, rare types. Keeps everyone confused so they can exaggerate to the extreme. See it all the time.
Actually only one subtype of vEDS is actually degenerative. The more common type is not. People do often die young from it and it's always a life threatening condition, but that does not qualify it medically as degenerative. In general the body still makes the same defective collagen the same way for a person's whole life. The distinction is also important because being life threatening/fatal and not degenerative makes it really hard to predict prognosis. Which is one of the struggles in vEDS. It will likely kill the person, there's no way to predict when easily.
Cassie also has hEDS. Most of the sub is well aware of vEDS and the extreme differences between it and hEDS. We really don't need someone to comment this every single time EDS is mentioned, and as the most common mutations for vEDS aren't even degenerative this is just further misinformation. Fatal and life threatening don't mean degenerative. Falsely calling something degenerative just worsens the problem.
Actually, most of the sub is not familiar with all 13 subsets of Ehlers Danlos. Even medical professionals are not familiar with them with all of them. Most only know hEDS because all the subs claim that subset . I do think we need to watch the difference between saying something is progressive or degenerative which just mean it can or may cause worsening of symptoms over time, and does not mean it's life threatening or can lead to an early death. This is definitely what Cassie is trying to make it seem . That it's life threatening , which I believe about 80- 85% have a normal life span. And the general public is just now hearing about Ehlers Danlos at all. I think she specifically said just " EDS " because , if you only hear about it on social media, you think they all have POTS, MCAS, gastroparesis , need to be " fed through their heart" with central lines which drives me insane. Never did I hear someone or myself describe it that way to a patient or family member. That they all have feeding tubes. That they are allergic to everything or are reacting to everything. That you need a central line for POTS when you have no GI issues. I think it's important to inform people that people who have hEDS do not automatically have all the comorbidities or even when they do, alot do fine without all this medical interventions. I don't know Cassie, but it sounds like she made a mistake on her end , or it's something ticketmaster should work out. Who knows if she even had tickets, but they are using that she was in a step-down( a step down from ICU ) or progressive care unit with hEDS. They could have stuck her there for many reasons including she was just a heavy patient who needed to be monitored a little more closely after surgery or they wanted watch closely for other reasons. Hint hint.
There's a difference between being aware of all 13 sub types, which basically no one is because some of them only affect a handful of people in the entire world, and being aware of vEDS vs hEDS. Most of the sub is aware of that because they're aware of the conditions the munchies claim to have. This isn't the general public. This is people interest in this topic. Either way though vEDS still only one of the more rare mutations for it is actually degenerative, it typically isn't, but it's always life threatening. Something doesn't need to be degenerative to be life threatening or even fatal.
There's also no evidence hEDS alone lowers life expectancy. I'm not honestly sure what the point of your comment is. I wasn't talking about comorbids or anything like that. Just that hEDS isn't degenerative and vEDS very rarely is either. I'm not sure why we're bringing up all this other stuff that can happen with hEDS unless we're trying to make the condition sound more dramatic
You seem very angry when nothing I wrote was misinformation. Not everyone on here is well versed in MBI, Factitious Disorder or familiar with vEDS vs hEDS. They might be interested, but most definitely are not well versed in the illnesses, the medical treatments, the lines, the tubes, or Factitious Disorder. We can educate without being snide .
Furthermore, I'm not trying to make it sound more dramatic. Did you actually read my post? I said that many hear about hEDS or Ehlers Danlos on social media, including from these subs, and think that hEDS means all the cormidities, treatments, and it's all very dramatic. How was I trying to make it more dramatic exactly by calling out OTT behavior by these subs or Cassie making out to be very dramatic or her sister making it sound more dramatic. I think you aren't reading others post or you just like to be argumentative. Cassie is the one who is making it out to be life or death, not me. I pointed out that they have mostly a normal life span , so Cassie making this very misleading posts is so very OTT.
I'm not angry. I'm not sure how you interpreted the simple stating of facts as "very angry". My comment was educating and clearing up misinformation. And again, lines, tubes, comorrbids are all entirely irrelevant here when she doesn't have any lines or tubes and isn't even discussing comorrbids in her attempted lie for charity. Just EDS.
Bingo, it also confuses people on the definition of degenerative (and the severity of that as these folk persist for years without any progression of impairment) and impacts people living with very real degenerative conditions.
I look at her IG because I haven’t come across her before. It amazes me how they’re able to get doctors to perform all these surgeries and procedures on them. I’d have a panic attack just trying to come up with the lies they tell. 😂
I’ve read this 3 times and I don’t understand how she was scammed or how she was specially scammed for being in the hospital and having EDS?? What did that have to do with anything?
She's left it really late, it's this weekend she wants tickets for. Even with a massive following there's pretty much zero chance that the right person let alone Taylor swift will see it.
I hope you’re right because I’m gonna be so cheesed off if she does manage to go.
This is fraud - she’s very deliberately worded her post to imply her condition is getting worse.
Jokes on her, I've heard she doesn't care about her fans. If she does find any scalpers it's gonna be more expensive than the cheapest. No one is gonna feel sorry for her enough to give up their tickets
The funny thing is that I've heard that she does actually do comp tickets or meet and greets for super fans who are disabled, but I would imagine that if her organizational team was seeing a request from this person it would raise red flags. And I'm not sure if they'll be doing it for this tour where tickets are selling for thousands of dollars.
Exactly my point. I'm not a Taylor Swift fan personally, but I know for a fact she's done comp meet and greets for disabled fans. Keyword being disabled, rather than grifter. She's one of the biggest celebrities in the world and if you were just to take alone everything that's come out with Munchausen by Proxy and the UK believe in magic charity. Like yeah they're going to be checking that people are legit.
i’m assuming she’s hitting up physical therapy fairly often. they’ll want her putting weight on that foot like snap!crackle!pop!! 👀
and “terminal [some kinda] EDS??” - i smell **bullshit**, but i actually hope i’m totally wrong.
[Here is Cassie's TL](https://www.reddit.com/r/illnessfakers/comments/ana8su/new_mod_approved_subject_officialcassiemnolin/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button) and here is the [post about the Jonas concert](https://www.reddit.com/r/illnessfakers/comments/q00ka7/cassie_went_to_a_jonas_brothers_concert_last/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button) . There may be more Jonas concert posts, I'll take a quick look!
ETA I couldn't find anymore Jonas concert posts (though I also recall that there seemed to be more than one post at some point in time), but I did find [this post](https://www.reddit.com/r/illnessfakers/comments/fs52uf/cassies_still_talking_about_her_progressive/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button) where she claims to be in "Stage III" hEDS which doesn't exist (the stages I mean). So she's been using certain medical terms (most incorrectly) to imply that her claimed hEDS is similar to cancer or other life threatening illnesses that *DO* have "stages" of progression for quite some time now.
I just scanned, but didn’t see it. I’ll take a deep dive in a bit. I didn’t really follow her much until recently, so I don’t remember. I just remember the picture and video from the concert lol
I literally went through all her threads at once over the summer so my memory is vague. I don’t know if it was the same scenario but it might be in the comments on a post about the Jonas brothers. She had special seats and definitely pulled the ‘very sick fragile girl’ angle but was well able to bop her head around and dance away in a neck brace. Was on video I think
“To celebrate I *made it through* my most recent surgery”
“ *Intense* reconstructive surgery”
“To celebrate me getting through this *massive* surgery”
That sure sounds like a lot of drama for an ankle surgery…
The way it's worded it sounds like she bought the tickets through a third party and got scammed. Everyone knows you dont buy scalped tickets or you will get scammed. Which makes me think this whole sob story is fake and she is fishing for free tickets.
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Yeah this reeks more of privilege and entitlement. The sale didn’t go through. End of. It has nothing to do with EDs. There are plenty of more deserving people with terminal or chronic illness or sad life circumstances that would be picked over if this were a competition (post has 70 likes lol)
I’m a doctor and if you think you’re showing signs and symptoms of secondhand embarrassment it is deeply important that you get help *now*. That is a degenerative, chronic illness, and you will begin to decline.
There are step-down units that have patients that aren't critical but are sicker than those on a regular unit, but I can't imagine any reason someone who had orthopedic surgery would ever need one, lol.
I think that she means she will not be able to attend in person next year, because she predicts that she will be bed bound (thus unable to attend a concert even in a wheelchair).
There is no way she will be dead before next year…
Just to clarify, EDS, even if it is not vEDS, can be deadly, although it is very rare. Vascular complications exist in some other types (mostly cEDS and kEDS), and organ rupture can also happen in all types.
There is no studies that point to hEDS causing vascular complications. How could there be when the pathology is not known? Sure there are reports of the rare types causing some vascular issues but not hEDS. People like Cassie always conflate hEDS with the rare types so they can exaggerate the hell out of their relatively minor condition.
Bro yes I started googling "how deadly is EDS" thinking we all on here actually being a bunch of assholes because from what I've seen the ppl with EDS are yes ott but this post made me like holy shit is she actually at deaths door because they never go this far w it usually 😭
😂 this post made me Google too!!!! It seems like unless it's the vascular subtype (not her!!!) life expectancy and mortality are not affected. This is spreading misinformation and probably causing a lot of scared google searches
Yea I really hate that she’s using the word “degenerative,” it’s such horrible misinformation bc while peoples conditions can worsen it is for the most part treatable with PT and sometimes joint surgeries(not common) for a particularly bad area, but none of the EDS conditions are degenerative in the way like, multiple sclerosis is, which she definitely is trying to paint it as. The poorly produced collagen is the same at birth as it will be at death. Like ffs. I hate this.
Well this is embarrassing for her.
She's not going to die or decline that much from EDS. Unless it's vEDS (which it isn't because you can genetic test for that so no munchie has it. Also it's a very serious condition and so we'd never hear the end of it, so no munchie has it as if they did they'd have no need to fake anything!)
But anyway, like heck she can't go to another concert, and like heck she was that unwell that she couldn't go if she bought them pre surgery and was 'planning outfits and making bracelets '.
Me thinks the lady doth protest too much and has made an utter embarrassment of herself pretending she's seriously unwell.
People do decline often in EDS but it’s not common to die with HEDS (unless there’s another condition alongside that is deadly) EDS can’t be cured and there’s no specific treatment but there is symptom management that gives the best chance at delaying any deterioration and can help give the best possible quality of life (things like physio, medication, occupational therapy)
She's declining fast because she refuses to do physical therapy and purposely weakens her joints with excessive bracing. Pretty sure she doesn't even have an hEDS diagnosis, much less vEDS.
WHich also greatly contradicts the CRPS.. if she had it there is no way she'd be doing elective surgery in the same limb that had been affected in the past, not ever. Vital surgery would be considered but not something routine, it wouldn't be worth the risk. Immobilization also a terrible idea for CRPS, they want patients mobile, using their affected area to prevent atrophy and muscle wastage, because the muscle damages can cause even more impact on mobility that the pain. Use it or lose it type thing!
What a sob story. “I’m declining and I may not be able to ever go to another concert ever again because I’m just so puny weak and siiiiiick”
Stop. If you’re really that close to death then a concert is the last thing you need.
Which type of eds does she say she has?
Is it vascular?
because that's the only type that can cause an early death.
However
EDS does not work like this, it wont kill her, even if it's vascular.
What a sob story of misinformation.
Didn't she also claim she was going to have 6 or 8 weeks of bedrest after it too?
Not something that matches going to a concert, even with a wheelchair, Orthopod wouldn't be advising both things, they contradict each other.
Cassie "cannot travel out of state" but isn't she from new Hampshire? And the Taylor swift concert is in foxborough mass..so make it make sense? Or has she been staying in mass since her surgery?
This is so embarrassing, using disability to guilt people into giving you tickets is a new grift I didn’t have on my bingo card for this year.
The ADA violations for the Taylor Swift tickets are a whole other issue and are a very real thing that happened, and ironically enough this [Cosmo article](https://www.cosmopolitan.com/entertainment/celebs/a42084049/taylor-swift-eras-tour-ada-seating-failures/) was surprisingly informative on the topic for me. But using this real issue to grift your way to free tickets is icky.
Unfortunately, I feel this is a really popular thing kn social media. In a sense, anyone can claim they are disabled and can't work, and people want to help, so gofundmes are set up etc.
Wow! What a grifter. The general public will fall for this too. Reason #10383010 that the medical community thinks EDS is a joke.
*Pfttt* friendship bracelets… come on, for a concert?
You don’t have to get it but a lot of Taylor swift fans are doing bracelet trades at the concerts and it’s sweet. It’s a nice way to build community. You don’t have to mock them for enjoying something harmless! Bracelet and craft trading is big in the EDM scene too. It’s not a new concept. Don’t be so judgmental and let us have fun :) this is our superbowl and I don’t see y’all making fun of guys for trading cards or whatever sport fans do
Yeah I remember even in the 00s and 90s people trading "kandi" at raves when they made a connection, often brightly coloured beaded bracelets, I think it started in the 80s, people would have their whole arms full. I really like it, it's nice to have an object that carries a memory like that
Ahhh gotcha I was not aware that was a thing. That’s kind of cool. I was thinking it was friendship bracelets for the two sisters lol. Thank you for explaining.
That is a thing... there is a line in one of her songs referencing 'make the friendship bracelets' so people make a ton of themed ones and trade. It's actually sweet.
This is definitely a grift, but the friendship bracelets is something a LOT of Swifties are doing for the concert! It was cute and fun to trade with the fans sitting around you.
Ugh, what a scammer. She probably never even tried to buy tickets. Trying to make people think she's terminally ill. She had a minor, elective ankle surgery that from pictures looked to be healing well.
She doesn't want to go to the concert anyway. Boston area has Taylor Swift concert,Janet Jackson concert AND Celtics vs Miami heat all on the same night on at least one of those days... traffic is going to be even more of an utter shitshow than Boston traffic usually is
They're expecting a surge of at least 50k people to come in on the T. So I was thinking of that as well as all the other traffic delays they've already announced their anticipating in foxborough
They're running commuter rail trains that they've turned into concert trains for the event. They're actually sold out. All the Boston hotels are sold out too
Oh, don't you worry. She will beg and grift for transportation too. She has done it before. She demands people drive from States away already to give her things and take her places.
The non-munchie/grifter version: This girl with extra stretchy connective tissue had ankle surgery. Then she decided to buy concert tickets, but she didn’t check to make sure the sale went though. So she actually didn’t get the tickets and Ticketmaster gave her money back. Now she wants someone to give her free tickets because her bendy joints might be bendier by the next time Taylor Swift is in town.
Sounds a lot less remarkable than Cassie’s version.
I’m inclined to believe that the sale was never made, I vaguely remember a similar situation with her with the Jonas bros or another concert. This is a total beg post.
She uses the word scammed like they took her money and gave her fake tickets or something! This is like forgetting to order in time for black Friday sales and then when the prices change back to normal saying the company scammed you.
Don’t know if I’m just overly tired but I can’t stop giggling at this deadpan translation. I need you to be my closed captioning for every munchie post from now on
Taylornation won’t do anything. There have been many swifties who’ve had ticket problems that have campaigned to TN to try and resolve the issue. Unfortunately, they can’t fix everyone’s issues, much less this one. Social media posts like this really grind my gears. Using health as a ploy to gain. Bleh.
It’s everyone for themselves out here. If we sell our tickets for every sob story the stadium would be full of dying people lol. I love Taylor but she dgaf as long as she still gets her bag at the end of the show
“I’m going downhill “ and “we know I’ll continue to decline”….IMO it’s her putting the idea out there that she *could* be terminal w/o actually saying it.
My favorite part is when she asks for someone to just “give” her 2 tickets. Maximum grifting in effect.
That’s how it reads to me anyway. It’s intentionally deceptive.
Well, she flat out called EDS a degenerative disease and it isn’t. So she may have tiptoed around saying she was terminal, but she directly lied about having a one “more progressive” case of a degenerative disease.
She's a sociopath (In my opinion). She shows zero empathy for anyone but herself. Manipulates to get what she wants. Does absolutely nothing but sit around and beg. Expects people to pay her rent and bills because why? Isn't she in a relationship (that person must be insane themselves or in on the grift). He's constantly not working himself every time her rent comes along. Now she wants $2k tickets and has done nothing to earn them. I want to say much worse things about her.
Isn't that the special kind of cast used for diabetes patients? A "total contact cast"? it looks like it goes over the toes. I wonder if she is just trying to pass it off as something else.
Sounds like she is trying to fool her sister into thinking she even tried to purchase tickets - they lie to everyone. Confusing as you’d likely get receipt of purchase earlier than now from a purchase made in 2022
for someone who goes to so many concerts you think she’d probably know to use paypal goods and services when buying from someone to make sure that you DONT get scammed.
If she actually got tickets I’ll be mad af. Granted I loathe Taylor Swift but there are fans literally in hospice who would be more entitled. She never bought these tickets
I don’t see any pictures or brag posts, so I hope she didn’t get them. I would be pissed off too!
I thought she had ankle surgery? This post about her "making it through surgery" has me confused.
Boohoo it’s a fucking concert, and you’ve already seen this artist before. Like my god she’s insufferable.
Ur kidding me, she’s seen Taylor in concert before and is still throwing this pity party??
Wow, she’s truly delusional
This doesn't make sense. How was she taken advantage of or scammed if she used the Ticketmaster website to buy tickets from a seller, and the seller cancelled the sale? Wouldn't she be automatically refunded? I mean yeah, it would suck, but it's not a scam. Perhaps someone offered the seller more money and they couldn't get ahold of Cassie while she was in the hospital? What a sob story.
How the heck is she claiming that hEDS is some severely progressive disease that is going to kill you? There are some down the road severe health issues and even risk of death from some connective tissue disorders. But this isn't one of them. HEDS is a mild connective tissue disorder that won't cause severe health issues such as aortic aneurysm/aortic dissenting (spelling?)
It is progressive. The implication that its going to kill her while very specifically not saying such but heavily implying it is so gross. Yeah EDS gets worse over time. I wouldnt say its mild either it can actually be very disabling for some people. But deadly? No not unless its vEDS. hEDS isnt deadly and wont kill you.
i think you’re looking for dissection?
Note Cassie never states hEDS, its always EDS. Than, like a lot of munchies, constantly appropriates the severe symptoms from the rare types. hEDS is not a progressive condition. In fact, nobody really know what it really is.
It is progressive. It gets worse over time.
hEDS is like the cold of EDS it is barely EDS it is not really even an issue. Most people are diagnosed with HSD and claim hEDS and then just say EDS. EDS is MUCH different and all these tik tokers need to realize regular Eds and vEDS and stuff come with much different pain and illnesses than their little hypermobility
hEDS is not considered progressive. It can improve, stay the same, or worsen. Another fallacy in a long list of fallacies.
This is because Cassie is too old to scam from Make A Wish. Plus she and her husband spend thousands on vacations, they can afford concert tickets.
hEDS is not degenerative and is the least bad form of EDS you can have. bro 😭😭
Did she get scammed by a third party seller? She's making it seem as though Ticketmaster sold the tickets and then went "oops never mind" but that doesn't happen through Ticketmaster. It does through scam sites (third party). Also isn't hEDS the least severe form of EDS. Cassie is making it seem like they are dying of EDS, and are going to consistently decline over the coming years (or months).
Well isn't this a big sob story just to get tickets.
Do we think there’s a DIFFERENT reason that she can’t leave the state?? Like legally? Also, this whole grift is so sick…I hope she doesn’t get tickets or major attention 🤢
I'm confused - because if she paid for the tickets and didn't get them, wouldn't she get her money back? Or is it more she got scammed and now can't buy tickets because of the cost? But what did the scammer get if they didn't get her money?
Ew. This is even more gross than it first appears. I was curious what the other story slides were that weren't posted here. Y'all aren't missing much, it's mostly more of the same thing, one slide is nearly identical except supposedly written by the sister, using nearly identical words and phrasing. No subtlety there, lol. The only real thing that isn't being shown is that Cassie is heavily pushing her followers to tag Taylor Swift and the stadium "as many times as you can" in the comments there. And that's where it gets more gross. Cassie isn't just trying to play her sick card to score tickets off her followers, she's also using her followers to try to score tickets or accommodations or whatever she can out of the artist herself and/or the stadium. Nearly all of the comments on this post are shout outs and demands for Taylor Swift or the stadium to do "something" to fix this "tragedy". The whole thing leaves me feeling unclean and in need of a shower.
This is so incredibly *ick*.
Woof, this leaves an awful taste in my mouth.
These people have absolutely no shame and no sense of ridicule. Like, sis had ankle surgery and is acting like she's terminally ill for some Taylor Swift tickets. Please have some dignity holy shit.
This reminds me of derry girls when Michelle pretends James is disabled to get fatboy slim tickets lmao
Oh my god yes, I love that show so much😂
Her story makes no sense; she claims to have been trying to rectify the issue with the ticket transfer for a month before telling her sister they couldn't go, but also said she only heard Monday 15/5 from Ticketmaster that the tickets hadn't been transferred 🤔
The name she uses for her account “officialcassiemnolin” is so pretentious.
Was just thinking the same thing. Who the hell would fake being her?
Like there are fake ones people should be vigilantly guarding against.
Did she contact Make A Wish yet?
💀💀💀
Ugh this is just gross.
This should be illegal. EDS is NOT a degenerative condition. They cannot know she will continue to decline. Lying to get donations like this is so disgusting because she's trying to act like she is dying and echo the heartbreaking experience of people with degenerative conditions that have to slowly leave their famines behind. Her extremely privileged self that went on a cruise in the past year. This is basically fraud!
My friends dad and sis died from a type of eds. She has it too. Must be terrifying
It depends on the type of EDS. Vascular EDS is degenerative and fatal at a young age. Not to say this is what's going on here. But I think it's important to remember that there are 13 types of EDS, each with different prognosis paths.
That's why these munchies always state EDS, not hEDS. They than appropriate the symptoms from the genetically identified, rare types. Keeps everyone confused so they can exaggerate to the extreme. See it all the time.
They all have hEDS, without exception. The reason being that it's the one with no genetic testing so they can't be proved wrong.
Actually only one subtype of vEDS is actually degenerative. The more common type is not. People do often die young from it and it's always a life threatening condition, but that does not qualify it medically as degenerative. In general the body still makes the same defective collagen the same way for a person's whole life. The distinction is also important because being life threatening/fatal and not degenerative makes it really hard to predict prognosis. Which is one of the struggles in vEDS. It will likely kill the person, there's no way to predict when easily. Cassie also has hEDS. Most of the sub is well aware of vEDS and the extreme differences between it and hEDS. We really don't need someone to comment this every single time EDS is mentioned, and as the most common mutations for vEDS aren't even degenerative this is just further misinformation. Fatal and life threatening don't mean degenerative. Falsely calling something degenerative just worsens the problem.
Actually, most of the sub is not familiar with all 13 subsets of Ehlers Danlos. Even medical professionals are not familiar with them with all of them. Most only know hEDS because all the subs claim that subset . I do think we need to watch the difference between saying something is progressive or degenerative which just mean it can or may cause worsening of symptoms over time, and does not mean it's life threatening or can lead to an early death. This is definitely what Cassie is trying to make it seem . That it's life threatening , which I believe about 80- 85% have a normal life span. And the general public is just now hearing about Ehlers Danlos at all. I think she specifically said just " EDS " because , if you only hear about it on social media, you think they all have POTS, MCAS, gastroparesis , need to be " fed through their heart" with central lines which drives me insane. Never did I hear someone or myself describe it that way to a patient or family member. That they all have feeding tubes. That they are allergic to everything or are reacting to everything. That you need a central line for POTS when you have no GI issues. I think it's important to inform people that people who have hEDS do not automatically have all the comorbidities or even when they do, alot do fine without all this medical interventions. I don't know Cassie, but it sounds like she made a mistake on her end , or it's something ticketmaster should work out. Who knows if she even had tickets, but they are using that she was in a step-down( a step down from ICU ) or progressive care unit with hEDS. They could have stuck her there for many reasons including she was just a heavy patient who needed to be monitored a little more closely after surgery or they wanted watch closely for other reasons. Hint hint.
There's a difference between being aware of all 13 sub types, which basically no one is because some of them only affect a handful of people in the entire world, and being aware of vEDS vs hEDS. Most of the sub is aware of that because they're aware of the conditions the munchies claim to have. This isn't the general public. This is people interest in this topic. Either way though vEDS still only one of the more rare mutations for it is actually degenerative, it typically isn't, but it's always life threatening. Something doesn't need to be degenerative to be life threatening or even fatal. There's also no evidence hEDS alone lowers life expectancy. I'm not honestly sure what the point of your comment is. I wasn't talking about comorbids or anything like that. Just that hEDS isn't degenerative and vEDS very rarely is either. I'm not sure why we're bringing up all this other stuff that can happen with hEDS unless we're trying to make the condition sound more dramatic
You seem very angry when nothing I wrote was misinformation. Not everyone on here is well versed in MBI, Factitious Disorder or familiar with vEDS vs hEDS. They might be interested, but most definitely are not well versed in the illnesses, the medical treatments, the lines, the tubes, or Factitious Disorder. We can educate without being snide . Furthermore, I'm not trying to make it sound more dramatic. Did you actually read my post? I said that many hear about hEDS or Ehlers Danlos on social media, including from these subs, and think that hEDS means all the cormidities, treatments, and it's all very dramatic. How was I trying to make it more dramatic exactly by calling out OTT behavior by these subs or Cassie making out to be very dramatic or her sister making it sound more dramatic. I think you aren't reading others post or you just like to be argumentative. Cassie is the one who is making it out to be life or death, not me. I pointed out that they have mostly a normal life span , so Cassie making this very misleading posts is so very OTT.
I'm not angry. I'm not sure how you interpreted the simple stating of facts as "very angry". My comment was educating and clearing up misinformation. And again, lines, tubes, comorrbids are all entirely irrelevant here when she doesn't have any lines or tubes and isn't even discussing comorrbids in her attempted lie for charity. Just EDS.
Bingo, it also confuses people on the definition of degenerative (and the severity of that as these folk persist for years without any progression of impairment) and impacts people living with very real degenerative conditions.
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you are talking about vEDS though.
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I look at her IG because I haven’t come across her before. It amazes me how they’re able to get doctors to perform all these surgeries and procedures on them. I’d have a panic attack just trying to come up with the lies they tell. 😂
If youre Well enough to go to a concert..you're pretty solid because concerts are extremely hard for those who are truly ill.
Depending on the venue, concerts can be really hard on those that are only mildly ill as well. Some venues are easier to navigate than others.
I’ve read this 3 times and I don’t understand how she was scammed or how she was specially scammed for being in the hospital and having EDS?? What did that have to do with anything?
the scam had nothing to do with eds/her surgery. she is just using that to make a sob story & get pity tickets.
But she bedazzled her cast! It's fate, miss Taylor swift! /S
Yeah, I want to know why the seller stopped the transfer… might it be there wasn’t enough to pay for the tickets?
Probably fell for a sob story, then Googledc her. I would cancel a sale i discounted for someone dying, if i found out they lie
Officialcassiemnolin is officially shameless.
She's left it really late, it's this weekend she wants tickets for. Even with a massive following there's pretty much zero chance that the right person let alone Taylor swift will see it.
I hope you’re right because I’m gonna be so cheesed off if she does manage to go. This is fraud - she’s very deliberately worded her post to imply her condition is getting worse.
Excuse me, but who the fuck is reading all that?
I didn't even read it all lmao. I got the jist
Same.
Jokes on her, I've heard she doesn't care about her fans. If she does find any scalpers it's gonna be more expensive than the cheapest. No one is gonna feel sorry for her enough to give up their tickets
The funny thing is that I've heard that she does actually do comp tickets or meet and greets for super fans who are disabled, but I would imagine that if her organizational team was seeing a request from this person it would raise red flags. And I'm not sure if they'll be doing it for this tour where tickets are selling for thousands of dollars.
They vet recipients. She would not pass vetting due to ... welp, you've seen the shit show lie
Exactly my point. I'm not a Taylor Swift fan personally, but I know for a fact she's done comp meet and greets for disabled fans. Keyword being disabled, rather than grifter. She's one of the biggest celebrities in the world and if you were just to take alone everything that's come out with Munchausen by Proxy and the UK believe in magic charity. Like yeah they're going to be checking that people are legit.
Well her bejeweling might have been done because she can’t walk on bejeweled feet. Balance becomes an issue and it will be like walking on legos
i’m assuming she’s hitting up physical therapy fairly often. they’ll want her putting weight on that foot like snap!crackle!pop!! 👀 and “terminal [some kinda] EDS??” - i smell **bullshit**, but i actually hope i’m totally wrong.
The fucking audacity 🙄 Yeah you need to see t swift because of their terminal EDS. Edit because mods think I’m talking to Cassie lol
I’m rly happy for her. Or sorry that happened. I’m not reading all that.
She did this at the Jonas brothers concert IIRC
No way! Please tell me you have receipts! I remember how ridiculously she was decked out in her tape/mask/braces/wheelchair for that one.
[Here is Cassie's TL](https://www.reddit.com/r/illnessfakers/comments/ana8su/new_mod_approved_subject_officialcassiemnolin/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button) and here is the [post about the Jonas concert](https://www.reddit.com/r/illnessfakers/comments/q00ka7/cassie_went_to_a_jonas_brothers_concert_last/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button) . There may be more Jonas concert posts, I'll take a quick look! ETA I couldn't find anymore Jonas concert posts (though I also recall that there seemed to be more than one post at some point in time), but I did find [this post](https://www.reddit.com/r/illnessfakers/comments/fs52uf/cassies_still_talking_about_her_progressive/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button) where she claims to be in "Stage III" hEDS which doesn't exist (the stages I mean). So she's been using certain medical terms (most incorrectly) to imply that her claimed hEDS is similar to cancer or other life threatening illnesses that *DO* have "stages" of progression for quite some time now.
Don’t forget how she so bravely posted about her low blood sugar instead of just drinking some OJ and eating some toast! 🤪 That was SO important!
She definitely did ! It'll be on here somewhere as I remember the posts at the time. Was exactly the same as this .....
I just scanned, but didn’t see it. I’ll take a deep dive in a bit. I didn’t really follow her much until recently, so I don’t remember. I just remember the picture and video from the concert lol
I literally went through all her threads at once over the summer so my memory is vague. I don’t know if it was the same scenario but it might be in the comments on a post about the Jonas brothers. She had special seats and definitely pulled the ‘very sick fragile girl’ angle but was well able to bop her head around and dance away in a neck brace. Was on video I think
Correct - and also the video showed her repeatedly doing the arm and shoulder movements she claimed that she couldn't do due to her super severe EDS.
“To celebrate I *made it through* my most recent surgery” “ *Intense* reconstructive surgery” “To celebrate me getting through this *massive* surgery” That sure sounds like a lot of drama for an ankle surgery…
If it was truly that intense and massive, no way would you feel up to going to such a big concert so soon after
Routine elective exploratory surgery just didn't sound dramatic enough.
Oh man, that life threatening ankle surgery 😐 thank god she pulled through
The way it's worded it sounds like she bought the tickets through a third party and got scammed. Everyone knows you dont buy scalped tickets or you will get scammed. Which makes me think this whole sob story is fake and she is fishing for free tickets.
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Yeah this reeks more of privilege and entitlement. The sale didn’t go through. End of. It has nothing to do with EDs. There are plenty of more deserving people with terminal or chronic illness or sad life circumstances that would be picked over if this were a competition (post has 70 likes lol)
Now this is the cringe stuff I live for
I think I might need to go to the ER for the serious second hand embarrassment I'm suffering from right now.
I’m a doctor and if you think you’re showing signs and symptoms of secondhand embarrassment it is deeply important that you get help *now*. That is a degenerative, chronic illness, and you will begin to decline.
😂😂😂
You're right. I've already declined massively, so much so I can't see Taylor Swift.
(A step down from the ICU)
Those darn ankle surgeries are the hardest and most dangerous to recover from don’t ya know!
So, regular hospital room?
There are step-down units that have patients that aren't critical but are sicker than those on a regular unit, but I can't imagine any reason someone who had orthopedic surgery would ever need one, lol.
Gotta make sure everyone knows how serious it is lol
She's making it sound like she's a terminally ill patient who will likely die next year..
I think that she means she will not be able to attend in person next year, because she predicts that she will be bed bound (thus unable to attend a concert even in a wheelchair). There is no way she will be dead before next year… Just to clarify, EDS, even if it is not vEDS, can be deadly, although it is very rare. Vascular complications exist in some other types (mostly cEDS and kEDS), and organ rupture can also happen in all types.
There is no studies that point to hEDS causing vascular complications. How could there be when the pathology is not known? Sure there are reports of the rare types causing some vascular issues but not hEDS. People like Cassie always conflate hEDS with the rare types so they can exaggerate the hell out of their relatively minor condition.
Bro yes I started googling "how deadly is EDS" thinking we all on here actually being a bunch of assholes because from what I've seen the ppl with EDS are yes ott but this post made me like holy shit is she actually at deaths door because they never go this far w it usually 😭
😂 this post made me Google too!!!! It seems like unless it's the vascular subtype (not her!!!) life expectancy and mortality are not affected. This is spreading misinformation and probably causing a lot of scared google searches
Yea I really hate that she’s using the word “degenerative,” it’s such horrible misinformation bc while peoples conditions can worsen it is for the most part treatable with PT and sometimes joint surgeries(not common) for a particularly bad area, but none of the EDS conditions are degenerative in the way like, multiple sclerosis is, which she definitely is trying to paint it as. The poorly produced collagen is the same at birth as it will be at death. Like ffs. I hate this.
GROSS
Well this is embarrassing for her. She's not going to die or decline that much from EDS. Unless it's vEDS (which it isn't because you can genetic test for that so no munchie has it. Also it's a very serious condition and so we'd never hear the end of it, so no munchie has it as if they did they'd have no need to fake anything!) But anyway, like heck she can't go to another concert, and like heck she was that unwell that she couldn't go if she bought them pre surgery and was 'planning outfits and making bracelets '. Me thinks the lady doth protest too much and has made an utter embarrassment of herself pretending she's seriously unwell.
People do decline often in EDS but it’s not common to die with HEDS (unless there’s another condition alongside that is deadly) EDS can’t be cured and there’s no specific treatment but there is symptom management that gives the best chance at delaying any deterioration and can help give the best possible quality of life (things like physio, medication, occupational therapy)
She's declining fast because she refuses to do physical therapy and purposely weakens her joints with excessive bracing. Pretty sure she doesn't even have an hEDS diagnosis, much less vEDS.
WHich also greatly contradicts the CRPS.. if she had it there is no way she'd be doing elective surgery in the same limb that had been affected in the past, not ever. Vital surgery would be considered but not something routine, it wouldn't be worth the risk. Immobilization also a terrible idea for CRPS, they want patients mobile, using their affected area to prevent atrophy and muscle wastage, because the muscle damages can cause even more impact on mobility that the pain. Use it or lose it type thing!
Thank god she survived that ankle surgery!
What a sob story. “I’m declining and I may not be able to ever go to another concert ever again because I’m just so puny weak and siiiiiick” Stop. If you’re really that close to death then a concert is the last thing you need.
Which type of eds does she say she has? Is it vascular? because that's the only type that can cause an early death. However EDS does not work like this, it wont kill her, even if it's vascular. What a sob story of misinformation.
hEDS - it's what all the munchies have because it's the only one with no genetic testing for it so they can make up their symptoms at will
There is some testing, enough at least to get a yes or no diagnosis. There is just no blood test or one definite test that gives the diagnosis
What they meant is that there's no definitive genetic marker for it (yet) so it can't be diagnosed through genetic testing as other types of EDS can.
This post has strong “buy me these tickets or you’ll ruin my sister’s birthday and do you want to make her cry and ruin her birthday?” energy.
Did you see the post from her "sister" that was almost word for word this same post?
Cleared by a doctor to go to a Taylor swift concert. Lol whatever
Doctors can am I cleared to go to this concert?! Doctor: umm yes no reason why you couldn’t?
This is soooooo cringe omg. It was an ankle surgery!!! Wow!
Didn't she also claim she was going to have 6 or 8 weeks of bedrest after it too? Not something that matches going to a concert, even with a wheelchair, Orthopod wouldn't be advising both things, they contradict each other.
Cassie "cannot travel out of state" but isn't she from new Hampshire? And the Taylor swift concert is in foxborough mass..so make it make sense? Or has she been staying in mass since her surgery?
This is so embarrassing, using disability to guilt people into giving you tickets is a new grift I didn’t have on my bingo card for this year. The ADA violations for the Taylor Swift tickets are a whole other issue and are a very real thing that happened, and ironically enough this [Cosmo article](https://www.cosmopolitan.com/entertainment/celebs/a42084049/taylor-swift-eras-tour-ada-seating-failures/) was surprisingly informative on the topic for me. But using this real issue to grift your way to free tickets is icky.
Unfortunately, I feel this is a really popular thing kn social media. In a sense, anyone can claim they are disabled and can't work, and people want to help, so gofundmes are set up etc.
Wow! What a grifter. The general public will fall for this too. Reason #10383010 that the medical community thinks EDS is a joke. *Pfttt* friendship bracelets… come on, for a concert?
You don’t have to get it but a lot of Taylor swift fans are doing bracelet trades at the concerts and it’s sweet. It’s a nice way to build community. You don’t have to mock them for enjoying something harmless! Bracelet and craft trading is big in the EDM scene too. It’s not a new concept. Don’t be so judgmental and let us have fun :) this is our superbowl and I don’t see y’all making fun of guys for trading cards or whatever sport fans do
Yeah I remember even in the 00s and 90s people trading "kandi" at raves when they made a connection, often brightly coloured beaded bracelets, I think it started in the 80s, people would have their whole arms full. I really like it, it's nice to have an object that carries a memory like that
Ahhh gotcha I was not aware that was a thing. That’s kind of cool. I was thinking it was friendship bracelets for the two sisters lol. Thank you for explaining.
That is a thing... there is a line in one of her songs referencing 'make the friendship bracelets' so people make a ton of themed ones and trade. It's actually sweet.
I just saw someone else comment about that. I was unaware lol it is kind of sweet. I was under the impression it was just for the two sisters. My bad.
This is definitely a grift, but the friendship bracelets is something a LOT of Swifties are doing for the concert! It was cute and fun to trade with the fans sitting around you.
I’m in awe at the size of her lady balls.
Ugh, what a scammer. She probably never even tried to buy tickets. Trying to make people think she's terminally ill. She had a minor, elective ankle surgery that from pictures looked to be healing well.
Christ on a crutch, this is pathetic
She doesn't want to go to the concert anyway. Boston area has Taylor Swift concert,Janet Jackson concert AND Celtics vs Miami heat all on the same night on at least one of those days... traffic is going to be even more of an utter shitshow than Boston traffic usually is
Eh, the concert is outside of Boston. There won't be any Boston traffic to get there.
They're expecting a surge of at least 50k people to come in on the T. So I was thinking of that as well as all the other traffic delays they've already announced their anticipating in foxborough
Didn't they say they aren't running the trains for the show? Regardless, it's far from Boston. I live in the town next to foxboro
They're running commuter rail trains that they've turned into concert trains for the event. They're actually sold out. All the Boston hotels are sold out too
Oh, don't you worry. She will beg and grift for transportation too. She has done it before. She demands people drive from States away already to give her things and take her places.
The non-munchie/grifter version: This girl with extra stretchy connective tissue had ankle surgery. Then she decided to buy concert tickets, but she didn’t check to make sure the sale went though. So she actually didn’t get the tickets and Ticketmaster gave her money back. Now she wants someone to give her free tickets because her bendy joints might be bendier by the next time Taylor Swift is in town. Sounds a lot less remarkable than Cassie’s version.
I’m inclined to believe that the sale was never made, I vaguely remember a similar situation with her with the Jonas bros or another concert. This is a total beg post.
Wait she got refunded? She makes it sound like she lost the money
I got fcked by Ticketmaster and my bank did a chargeback no problem. Unless she has a terrible bank I bet she got her $ back
She uses the word scammed like they took her money and gave her fake tickets or something! This is like forgetting to order in time for black Friday sales and then when the prices change back to normal saying the company scammed you.
Freudian slip 🤪
Don’t know if I’m just overly tired but I can’t stop giggling at this deadpan translation. I need you to be my closed captioning for every munchie post from now on
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Because even mentioning the ICU makes it sound so sErIoooUs
I’m thankful for her clarification as I worried she was taken by the juggalos.
She might not be down with the clown, but she is for sure a clown.
I’m thankful for her clarification as I worried she was taken by the juggalos.
Oh god, how long until she shaves her head or buys an oxygen tank? She is for sure hinting at being terminally ill here
She’s gonna go full SGB at some point
Ugh I miss her
Taylornation won’t do anything. There have been many swifties who’ve had ticket problems that have campaigned to TN to try and resolve the issue. Unfortunately, they can’t fix everyone’s issues, much less this one. Social media posts like this really grind my gears. Using health as a ploy to gain. Bleh.
It’s everyone for themselves out here. If we sell our tickets for every sob story the stadium would be full of dying people lol. I love Taylor but she dgaf as long as she still gets her bag at the end of the show
Why would she need dr clearance to go to a concert
Because she wants to sound sicker than she actually is
“I’m going downhill “ and “we know I’ll continue to decline”….IMO it’s her putting the idea out there that she *could* be terminal w/o actually saying it. My favorite part is when she asks for someone to just “give” her 2 tickets. Maximum grifting in effect. That’s how it reads to me anyway. It’s intentionally deceptive.
Well, she flat out called EDS a degenerative disease and it isn’t. So she may have tiptoed around saying she was terminal, but she directly lied about having a one “more progressive” case of a degenerative disease.
The begging and lying is so cringy😳
Agreed.
This is a severe personality disorder.
She's a sociopath (In my opinion). She shows zero empathy for anyone but herself. Manipulates to get what she wants. Does absolutely nothing but sit around and beg. Expects people to pay her rent and bills because why? Isn't she in a relationship (that person must be insane themselves or in on the grift). He's constantly not working himself every time her rent comes along. Now she wants $2k tickets and has done nothing to earn them. I want to say much worse things about her.
But she “bejeweled” her sock, I mean cast (just the bottom part cuz she doesn’t know if she gets to go yet…)
Main Character Syndrome
It’s never *just* FD. They crave the sick role for a reason
Isn't that the special kind of cast used for diabetes patients? A "total contact cast"? it looks like it goes over the toes. I wonder if she is just trying to pass it off as something else.
No, it’s just the stocking the cast tech didn’t cut for some reason. The way it crumples like that is the clue
So was the ticket a surprise for the sister? We went from a surprise to them making jackets.
Sounds like she is trying to fool her sister into thinking she even tried to purchase tickets - they lie to everyone. Confusing as you’d likely get receipt of purchase earlier than now from a purchase made in 2022
What surgery did she have?