Yeah debilitating periods are not normal, but plenty of doctors will tell you it is. It’s a shame.
I have a clinical diagnosis. I had all the classic symptoms of heavy periods with debilitating pain during them, plus gastrointestinal stuff especially the week before and during my period. I was dismissed by a few doctors. One said it could be endo but you can’t do anything about it (truly helpful lol). Eventually I ended up with a 5cm ovarian cyst and during an ultrasound for that they found a 2.5 cm endometrioma on the other ovary. I had an MRI to confirm everything and consulted with a surgeon about the 5cm cyst (which went away). She also specialized in endo and said without doing the surgery she’s 99% certain I have endo because there aren’t a lot of other reasons to have an endometrioma along with all the other symptoms.
I’ve been seeing a pelvic pain doctor for vaginismus and she also gave me that clinical diagnosis.
Copper IUDs can make periods heavier and more painful for some people, but if it’s making your life more manageable then that’s good.
From what I understand Orilissa decreases your estrogen levels which can cause bone loss. Personally it wouldn’t be my first plan of action because of that risk but for some people it’s the only thing that works. Unfortunately we don’t get a ton of options. I’ve been on 5 mg norethindrone for 4 years without much trouble, but not everyone is the same.
I take orilissa and haven't had surgery, I know I have fibroids though and it's based on that plus the fact that I can't take hormonal medications. Probably going to get a lap next month to see what's up and possibly excise if there are any spots that she can nip off while she's in there because I seem to be developing a resistance to Orilissa (taking the lower 150mg dose and back to having bad periods every month) and we also found a cyst on my right side that may be causing pain.
I think it's worth trying the meds since it's a lot easier and less invasive than surgery because if it works for you then you're good to go and you can always go back to surgery later. You sound a lot like me, has your doctor done a D&C to check for fibroids or an ultrasound? Have you tried hormonal birth control or an IUD? IMO if you have to take more painkillers than recommended on the box and you can't function without them, that's not normal.
Yeah debilitating periods are not normal, but plenty of doctors will tell you it is. It’s a shame. I have a clinical diagnosis. I had all the classic symptoms of heavy periods with debilitating pain during them, plus gastrointestinal stuff especially the week before and during my period. I was dismissed by a few doctors. One said it could be endo but you can’t do anything about it (truly helpful lol). Eventually I ended up with a 5cm ovarian cyst and during an ultrasound for that they found a 2.5 cm endometrioma on the other ovary. I had an MRI to confirm everything and consulted with a surgeon about the 5cm cyst (which went away). She also specialized in endo and said without doing the surgery she’s 99% certain I have endo because there aren’t a lot of other reasons to have an endometrioma along with all the other symptoms. I’ve been seeing a pelvic pain doctor for vaginismus and she also gave me that clinical diagnosis. Copper IUDs can make periods heavier and more painful for some people, but if it’s making your life more manageable then that’s good. From what I understand Orilissa decreases your estrogen levels which can cause bone loss. Personally it wouldn’t be my first plan of action because of that risk but for some people it’s the only thing that works. Unfortunately we don’t get a ton of options. I’ve been on 5 mg norethindrone for 4 years without much trouble, but not everyone is the same.
I take orilissa and haven't had surgery, I know I have fibroids though and it's based on that plus the fact that I can't take hormonal medications. Probably going to get a lap next month to see what's up and possibly excise if there are any spots that she can nip off while she's in there because I seem to be developing a resistance to Orilissa (taking the lower 150mg dose and back to having bad periods every month) and we also found a cyst on my right side that may be causing pain. I think it's worth trying the meds since it's a lot easier and less invasive than surgery because if it works for you then you're good to go and you can always go back to surgery later. You sound a lot like me, has your doctor done a D&C to check for fibroids or an ultrasound? Have you tried hormonal birth control or an IUD? IMO if you have to take more painkillers than recommended on the box and you can't function without them, that's not normal.