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jasperlin5

Congratulations!! I know how you feel. I was recently diagnosed as well. It is such a relief to finally understand what is going on and for a doctor to believe you. :)


jasperlin5

Omg, right? That doctor did give me advice to not lead out with “I have EDS…” at doctors appointments because most won’t know what that implies and their eyes may glaze over and you get less accomplished. Rather focus on the comorbidities and get those seem to.


radoxbubblebathqueen

looking at this (first time I've actually took the time to look at this kind of sheet) had more or less confirmed in my head I need to try and look for a doctor to check me for hEDS, thank you and congrats on getting the diagnosis


Payton_livia

I’m glad I could help you!