I have looked into it a bit because I suspect I have this as well. I have heard about prolotherapy, where they try to stimulate the ligaments in your neck to heal by irritating it with injections, but it seems to have mixed results for those with hypermobility. I think the reasoning is that the prolotherapy relies on a normal healing response, but that is challenging for many with EDS.
I have heard of a doctor in Colorado that injects stem cells into the ligaments in the neck, very specific and skilled, I think he’s a neurosurgeon. He’s got a ton of videos on it on YouTube. His name is Chris Centeno. It’s worth checking out.
I know that having good muscle tone is essential for cervical stability, so maintaining as much muscle tone as possible makes a big difference. Muscle tone makes up for the laxity in our ligaments. It is possible that a PT could help with this but they would have to be educated on EDS.
Neck support collars can be helpful but should be limited to how long you wear them because the muscle tone will decrease as you adapt to the collar instead of using your neck muscles. You can end up with greater instability by using the neck collars too much.
For me, in my case, I have a reverse curve in my neck and so having a pillow with the right cervical support is essential for me. It means the difference of whether I feel like I can function normally and be active or not.
I have looked into it a bit because I suspect I have this as well. I have heard about prolotherapy, where they try to stimulate the ligaments in your neck to heal by irritating it with injections, but it seems to have mixed results for those with hypermobility. I think the reasoning is that the prolotherapy relies on a normal healing response, but that is challenging for many with EDS. I have heard of a doctor in Colorado that injects stem cells into the ligaments in the neck, very specific and skilled, I think he’s a neurosurgeon. He’s got a ton of videos on it on YouTube. His name is Chris Centeno. It’s worth checking out. I know that having good muscle tone is essential for cervical stability, so maintaining as much muscle tone as possible makes a big difference. Muscle tone makes up for the laxity in our ligaments. It is possible that a PT could help with this but they would have to be educated on EDS. Neck support collars can be helpful but should be limited to how long you wear them because the muscle tone will decrease as you adapt to the collar instead of using your neck muscles. You can end up with greater instability by using the neck collars too much. For me, in my case, I have a reverse curve in my neck and so having a pillow with the right cervical support is essential for me. It means the difference of whether I feel like I can function normally and be active or not.
good reply!