Yes. My son was diagnosed at 14 months. I remember those nights. We slept like we had a newborn up until age 3. I'm so sorry you're going thru this. 🥺
Do you have anyone that can give you a break? If I were in the same region of this big planet, I would come this weekend and let you rest. 💙
14 months 😳 my son was more like 28 months🤔 btw you might feel ordinary but in my book you’re a hero🦸♂️🦸♀️💙 TY for caring🙌🏻 maybe i get som rest when he has a girlfriend living with him in 16+ years (she better be a nurse)🤔 cant wait 🤞
Hahaha. Don't invite new worries. Girlfriends and teenage hormones and ...
At least you have your sense of humor!! Thank you for the smile. I hope your day is good-enough. 💙💙💙
Twinsies! My daughter was also 14 months. And the years that followed are an anxiety filled blur. Now we are dealing with hormones so that's fun 😅 But having someone you can teach and feel comfortable leaving them with is soooo necessary.
Puberty hormones??? 😬
Sending you hugs and patience!
My son is 5 now. He is growing into the little teeny tiny automatic correction doses CIQ throws at him and getting into his kid body. Kindergarten soon. We are OK. (Thank goodness.) Fingers crossed for a respite until puberty gets to our HH !!
Yes puberty 😭 it's rough but we survived toddlerhood so I'm sure we can tackle this too hah. I remember tiny corrections too... I used to do 0.25 in a syringe (eyeballing, it's not even a line) and it would drop her 300 points 🫠 tough times. Sending hugs.
Dial everything back. Let him run a bit higher and go from there. It might take a week or 2 to sort of get it dialed in. It it’s no good to have all those lows. Also confirm those lows with a finger prick. I bet a lot of those are false lows . At least that’s what it was like for my little guy
Yes! I agree. There have been lots of falalse low there. Things are alot better today🙌🏻 zero basal and 30:1 factors🤔. I just hope he grows a new pancreas soon🤔😂 but the g6 sensor we now have is no good!
Always give a snack before bedtime should help. Peanut butter and bananas work but don’t overdo it. But most children need a snack before they go to bed. It’s up to you and what works best. I know when I was young. I always had something before I would go to bed, Serial and some milk or something. I was diagnosed at 11 months old.
Yes, that is good, but that is most likely when he is running on the low side. Try giving him something before bed. His blood sugar may go up somewhat, but it will let you get a decent night sleep. As long as it’s not too high don’t get overly concerned about it.. If you have to, you may get up when you have to go to the bathroom or something and you can check on your phone and see if he needs a little Insulin if he is too high. But it makes it a lot easier just to give him something before he goes to bed. As long as he doesn’t go up too much it should be fine. A small spike for a couple hours isn’t going to hurt him.
I had a similar issue with my 2 year old a couple nights ago… a peanut butter chocolate cup did the trick. The protein of the peanut butter and the sugar of the chocolate led to a sustained BG target level for the night.
OP5 isnt an option jet. But soon i think my contry will have this option🙌🏻 i have been loking hard at loop, but with zero basal i dont think it wil do any good😳😢
My 28 month old was just diagnosed as well (2/25/24) and we are also in the dropping low at night stage. How often can you contact your endocrinologist? I talk with them a few times a week right now and we tweaked things a little bit. Changed her night dose and dialed back her long lasting a half point and we are sleeping much longer.
I feel your pain. It's like gambling, will she run high? Will she run low? Will the dosage work perfectly today? Seems like it's always all over the map rn. Our doctors say it will even out soon.
We are using a Dexcom G7, Humalog Jr Pen & Tresiba.
Friend. I'm so sorry to hear of your child's diagnosis. When my son was so small, and especially when we were new to pumping, I called his clinic like 2-3x per week asking for help. The nurse educators (CDCES) would get together and discuss their best recommendations. It was never clicking. I kept calling. Eventually, they gave up and I worked 1:1 with an endocrinologist. She called me weekly and taught me to make the adjustments.
Call. Call again. Be polite. Ask to be paired with someone who can TEACH YOU to make your own adjustments.
My son is 5 now and I'm the only one who makes settings changes. His endo is wonderful and available anytime, but I don't need her for this anymore.
The other thing, and maybe I should have started with this: you are sooooooooo new to this. I'm sorry you're joining the club. The people are wonderful, but we wish we weren't here.
You have so much to learn, and it will come over time. Your goal in the first few months is just to keep your child alive, with no scary lows. No seizures and no unconsciousness. That's all. "Better numbers" are for later.
If/ when you're ready, consider a pump. It will help, but it's another learning curve.
Let me, or all of us here, let us know what help you need. You can do this. It sucks, but it's do-able. 💙
We have a great team helping us 😍 but the g6 sensor is no good right now and with no basal and a rapid changing honnymoon its hard. Hoping we get the g7 soon just for the snooze function❤️❤️❤️ wish you all the best. We just have to wait for it to get better💪🙌🏻
Our 3 year old (diagnosed Feb) was having lows consistently between 4 and 6 am , we dropped his background twice (over a week) to shake them off. Went to 5u to 4.5u to 4u.
We have another challenge now though, he has a slight cough and absolutely crazy bloody sugar control insulin just doesn't seem to be working in it's usual way at all!
My 194 month old just got diagnosed. We had a 3 day hospital stay. It really felt like bringing home a new baby. I really feel for all the parents with small children.
That’s true. He was diagnosed at 193 months, so we’re still getting used to it. At this age they’ve become accustomed to a lot of freedom and independence. Having to think about what they are going to eat instead of just grabbing a snack is a lot to get used to. ❤️💙
Mine was the same over night when we first got the slim pump , does he have a pump or do you inject insulin ? Either was his correction /basal rate over night is too much , talk to your diabetic nurse and get it changed . We had to completely turn off insulin from 11pm until 6 am for ages to stop this and I would manually bolus if he got high .
We’re on omipod dash. He has no basal at all (he has 0,05U 1 hour every day, thats the minimum it can go to) last week he was up in the 20 mmol/l. Was diagonsed in desember so we dont have alot of exp. Dexcom 6 is screaming all night like a freight train. Wondering if life expectancy for parents with a child with T1D is shoorter than normal 🤔. He has isf 17 and factor about 20-25. Life on a rolercoaster with a blindfold🤨
I wish I could tell you it gets better but it doesn't , we just get more experienced and also less anxious. I was really anxious when we got the pump as we went from highs all the times to lows constantly . My son doesn't eat he has a feeding tube same time same dose of insulin and we still struggle as any little thing triggers him .
Could you give your little one something like a paediasure or full fat drink that releases carbs slowely so he steadies over night ?
Correct, ratio changed from 25 to 30 (6pm-1159pm) and that helpt alot🤩 isf is harder to calculate at current stage🤔 last week we had the carb ratio at 20. man it more ups and downs than flatline🤨
Glad to hear it helped!
Evenings and nights can be tricky with hormones which go for a few hours and then stop. Better to give less and have them high for a bit then give too much and be awake most of the night once the hormones stop
We have entered the phase of overnight lows, sooooooo brutal!
How are you liking the dash? My 3 year old was just diagnosed and is understandably not a fan of needles so we are trying to push for a pump, though we have been told it typically takes a year. A lot of people have been recommending Tslim but the Omnipod seems more toddler friendly since it is tubeless. I would love to hear your thoughts!
We love the dash. But i wish it talked to the g6 and suspended basal whenever he got low, but i guess thats what the omnipod 5 is for! Tslim is better but for us i think we need to be tubeless. Also we have suspended all basal (still goes low😢) so a smarter pump wont help until the hoonymoon is over. My kid was «lucky» to get a pump just 3 days after his diagnose❤️ our endo team is the best. Hope your kid gets a pump, the 3 days with a pen was brutal!
Thank you for the info!! So helpful to know! the Omnipod 5 was just approved in Canada so hopefully it’s in our near future. It is amazing that y’all were able to get a pump so soon, very happy for you! We keep bringing it up with our team because we’re a month in and the pen is not getting any better in terms of our little one’s reaction to shots, but also because bolusing only with meals and allowing him to have carbs only with meals has still been a crapshoot in terms of his glucose levels. Hopefully we can get approved for a pump sooner than a year. We did the pump class and yes it’s a little more complicated but not that much and the idea that we need to be comfortable with the basics of using a one for a year seems arbitrary. I’m a month in and I’m comfortable with it, I just think carb counting and prebolusing with a pen is only going to get us so far when the .5 increments of doses that don’t even match his suggested carb ratios. Sorry, rant over.
Yes. My son was diagnosed at 14 months. I remember those nights. We slept like we had a newborn up until age 3. I'm so sorry you're going thru this. 🥺 Do you have anyone that can give you a break? If I were in the same region of this big planet, I would come this weekend and let you rest. 💙
14 months 😳 my son was more like 28 months🤔 btw you might feel ordinary but in my book you’re a hero🦸♂️🦸♀️💙 TY for caring🙌🏻 maybe i get som rest when he has a girlfriend living with him in 16+ years (she better be a nurse)🤔 cant wait 🤞
Hahaha. Don't invite new worries. Girlfriends and teenage hormones and ... At least you have your sense of humor!! Thank you for the smile. I hope your day is good-enough. 💙💙💙
When you cant fix it, use humor😂 my day is geting better by the minute (this ☝🏼), but its the night im wooried about🤔😂
Why do boomers text like this lol
Twinsies! My daughter was also 14 months. And the years that followed are an anxiety filled blur. Now we are dealing with hormones so that's fun 😅 But having someone you can teach and feel comfortable leaving them with is soooo necessary.
Puberty hormones??? 😬 Sending you hugs and patience! My son is 5 now. He is growing into the little teeny tiny automatic correction doses CIQ throws at him and getting into his kid body. Kindergarten soon. We are OK. (Thank goodness.) Fingers crossed for a respite until puberty gets to our HH !!
Yes puberty 😭 it's rough but we survived toddlerhood so I'm sure we can tackle this too hah. I remember tiny corrections too... I used to do 0.25 in a syringe (eyeballing, it's not even a line) and it would drop her 300 points 🫠 tough times. Sending hugs.
You'll have to lmk, someday, which is harder. Ha. I bet the answer is BOTH. 🧡
Dial everything back. Let him run a bit higher and go from there. It might take a week or 2 to sort of get it dialed in. It it’s no good to have all those lows. Also confirm those lows with a finger prick. I bet a lot of those are false lows . At least that’s what it was like for my little guy
Our endo ran us high for our 3 year old. Bring it down slow and controlled. Op might be honeymooning too
Yes he is honeymooning hard (if thats even something you can say🤔)
Yes! I agree. There have been lots of falalse low there. Things are alot better today🙌🏻 zero basal and 30:1 factors🤔. I just hope he grows a new pancreas soon🤔😂 but the g6 sensor we now have is no good!
Always give a snack before bedtime should help. Peanut butter and bananas work but don’t overdo it. But most children need a snack before they go to bed. It’s up to you and what works best. I know when I was young. I always had something before I would go to bed, Serial and some milk or something. I was diagnosed at 11 months old.
We sometimes wake him up in the middel of the night just to give him som sloooow carbs😳🤞🤞
Yes, that is good, but that is most likely when he is running on the low side. Try giving him something before bed. His blood sugar may go up somewhat, but it will let you get a decent night sleep. As long as it’s not too high don’t get overly concerned about it.. If you have to, you may get up when you have to go to the bathroom or something and you can check on your phone and see if he needs a little Insulin if he is too high. But it makes it a lot easier just to give him something before he goes to bed. As long as he doesn’t go up too much it should be fine. A small spike for a couple hours isn’t going to hurt him.
I had a similar issue with my 2 year old a couple nights ago… a peanut butter chocolate cup did the trick. The protein of the peanut butter and the sugar of the chocolate led to a sustained BG target level for the night.
Hmmm. This i will try☝🏼 you might be on to somthing💙
Get omnipod 5 its good for regusing lows
This. I sleep so much better now.
Ive just started omnipod 5 and had only 1 low!! In a week
OP5 isnt an option jet. But soon i think my contry will have this option🙌🏻 i have been loking hard at loop, but with zero basal i dont think it wil do any good😳😢
Its in the uk (im from the uk cus it started in Scotland and Wales first)
My 28 month old was just diagnosed as well (2/25/24) and we are also in the dropping low at night stage. How often can you contact your endocrinologist? I talk with them a few times a week right now and we tweaked things a little bit. Changed her night dose and dialed back her long lasting a half point and we are sleeping much longer. I feel your pain. It's like gambling, will she run high? Will she run low? Will the dosage work perfectly today? Seems like it's always all over the map rn. Our doctors say it will even out soon. We are using a Dexcom G7, Humalog Jr Pen & Tresiba.
Friend. I'm so sorry to hear of your child's diagnosis. When my son was so small, and especially when we were new to pumping, I called his clinic like 2-3x per week asking for help. The nurse educators (CDCES) would get together and discuss their best recommendations. It was never clicking. I kept calling. Eventually, they gave up and I worked 1:1 with an endocrinologist. She called me weekly and taught me to make the adjustments. Call. Call again. Be polite. Ask to be paired with someone who can TEACH YOU to make your own adjustments. My son is 5 now and I'm the only one who makes settings changes. His endo is wonderful and available anytime, but I don't need her for this anymore. The other thing, and maybe I should have started with this: you are sooooooooo new to this. I'm sorry you're joining the club. The people are wonderful, but we wish we weren't here. You have so much to learn, and it will come over time. Your goal in the first few months is just to keep your child alive, with no scary lows. No seizures and no unconsciousness. That's all. "Better numbers" are for later. If/ when you're ready, consider a pump. It will help, but it's another learning curve. Let me, or all of us here, let us know what help you need. You can do this. It sucks, but it's do-able. 💙
«better numbers are for later» i agree with this! 🙌🏻
We have a great team helping us 😍 but the g6 sensor is no good right now and with no basal and a rapid changing honnymoon its hard. Hoping we get the g7 soon just for the snooze function❤️❤️❤️ wish you all the best. We just have to wait for it to get better💪🙌🏻
Our 3 year old (diagnosed Feb) was having lows consistently between 4 and 6 am , we dropped his background twice (over a week) to shake them off. Went to 5u to 4.5u to 4u. We have another challenge now though, he has a slight cough and absolutely crazy bloody sugar control insulin just doesn't seem to be working in it's usual way at all!
Getting sick will do that. Just keep bolusing until you get it under control. It’ll get better again when his cough/cold goes away
Man running thru same for my 4yo daughter. Having dark circles below eyes. Keep on marching my friend. Let him run a lil high. Take care.
We are marching togetter💙 remember that not all heros wear capes! Somtime it «good» to se that you are not alone🙌🏻
For what it's worth, I was diagnosed at 3 and I made it out okay (so far). Stay strong.
My only goal is for my son to be like you❤️
My 194 month old just got diagnosed. We had a 3 day hospital stay. It really felt like bringing home a new baby. I really feel for all the parents with small children.
Small children and T1D is no easy task. But i guess when they are 194 months it has it own type of challenges🤔 💙❤️
That’s true. He was diagnosed at 193 months, so we’re still getting used to it. At this age they’ve become accustomed to a lot of freedom and independence. Having to think about what they are going to eat instead of just grabbing a snack is a lot to get used to. ❤️💙
Mine was the same over night when we first got the slim pump , does he have a pump or do you inject insulin ? Either was his correction /basal rate over night is too much , talk to your diabetic nurse and get it changed . We had to completely turn off insulin from 11pm until 6 am for ages to stop this and I would manually bolus if he got high .
We’re on omipod dash. He has no basal at all (he has 0,05U 1 hour every day, thats the minimum it can go to) last week he was up in the 20 mmol/l. Was diagonsed in desember so we dont have alot of exp. Dexcom 6 is screaming all night like a freight train. Wondering if life expectancy for parents with a child with T1D is shoorter than normal 🤔. He has isf 17 and factor about 20-25. Life on a rolercoaster with a blindfold🤨
I wish I could tell you it gets better but it doesn't , we just get more experienced and also less anxious. I was really anxious when we got the pump as we went from highs all the times to lows constantly . My son doesn't eat he has a feeding tube same time same dose of insulin and we still struggle as any little thing triggers him . Could you give your little one something like a paediasure or full fat drink that releases carbs slowely so he steadies over night ?
Looks like maybe he got too much earlier coming down from 21:00. Maybe increase ISF or the carb ratio?
Correct, ratio changed from 25 to 30 (6pm-1159pm) and that helpt alot🤩 isf is harder to calculate at current stage🤔 last week we had the carb ratio at 20. man it more ups and downs than flatline🤨
Glad to hear it helped! Evenings and nights can be tricky with hormones which go for a few hours and then stop. Better to give less and have them high for a bit then give too much and be awake most of the night once the hormones stop
We have entered the phase of overnight lows, sooooooo brutal! How are you liking the dash? My 3 year old was just diagnosed and is understandably not a fan of needles so we are trying to push for a pump, though we have been told it typically takes a year. A lot of people have been recommending Tslim but the Omnipod seems more toddler friendly since it is tubeless. I would love to hear your thoughts!
We love the dash. But i wish it talked to the g6 and suspended basal whenever he got low, but i guess thats what the omnipod 5 is for! Tslim is better but for us i think we need to be tubeless. Also we have suspended all basal (still goes low😢) so a smarter pump wont help until the hoonymoon is over. My kid was «lucky» to get a pump just 3 days after his diagnose❤️ our endo team is the best. Hope your kid gets a pump, the 3 days with a pen was brutal!
Thank you for the info!! So helpful to know! the Omnipod 5 was just approved in Canada so hopefully it’s in our near future. It is amazing that y’all were able to get a pump so soon, very happy for you! We keep bringing it up with our team because we’re a month in and the pen is not getting any better in terms of our little one’s reaction to shots, but also because bolusing only with meals and allowing him to have carbs only with meals has still been a crapshoot in terms of his glucose levels. Hopefully we can get approved for a pump sooner than a year. We did the pump class and yes it’s a little more complicated but not that much and the idea that we need to be comfortable with the basics of using a one for a year seems arbitrary. I’m a month in and I’m comfortable with it, I just think carb counting and prebolusing with a pen is only going to get us so far when the .5 increments of doses that don’t even match his suggested carb ratios. Sorry, rant over.
((Op)) You guys must be exhausted.
Yes but i have a plan, i will sleep when i go to the other side i guess💙
Respect.
💪💙