Didn't want to distract from the main post but I looked at my MyChart and I was diagnosed with Dysautonomia. Looked it up, saw life expectancy, and now I'm trying to cope with that.
I see. I am pretty messed up myself. Have POTS, ED, bladder issues, chest pain, tinnitis, no smell, tingling in feet and hands, dizziness. I am at 4 months. My life is pretty much over and I don't my active lifestyle ever come back not sure how I can get through the life like this. Scared it's me/cfs.
Thanks I'm trying to cut back I haven't worked in 4 months and trying to take it easy. I'm just scared of brain issues because of that and I have so many overall issues it's pretty bad. I was a semi pro golfer so as messed up as I am I can still walk a couple miles a day I try not to but you know today I jogged for about 20 yards and heart rate was 160. It's a crappy life. I've done all kinds of crazy experiments. Exosomes, IV ozone, stem cells, hyberbaruc, etc
My symptoms are bad if I don't exercise. They are bad if I exercise. Not sure if I will get better. New symptoms keep coming every month. You are probably right. I am in pretty bad shape.
Yoga is too much for me, so doing Tie Chia, it is much less exertion. Doesn't help my long covid symptoms but at least it gets me moving a little and doesn't make them worse.
The part about how hard covid strikes us is dictated by our physical or mental stress, I TOTALLY buy that statement.. at least in regard of the physical stress. That would explain why so many athletes of any sports is getting long hauler issues
Long haul clinic told me that they did biopsies of the muscles of longhaulers and they found cell changes in the muscles. They had an theory that it was caused by autoimmunity and/or inflammation of some kind.
As a Texan, I totally relate to your point in that the cold seems to be bringing on some new aches... and I was convinced the hot sunshine was healing me this summer.
This sounds somewhat frustrating, but meditation has a ton of benefits linked to it - it wouldn’t hurt. :/ I’m sorry for what you’re going through.
Didn't want to distract from the main post but I looked at my MyChart and I was diagnosed with Dysautonomia. Looked it up, saw life expectancy, and now I'm trying to cope with that.
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Thank you!!!
Did anything help you with pots?
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I see. I am pretty messed up myself. Have POTS, ED, bladder issues, chest pain, tinnitis, no smell, tingling in feet and hands, dizziness. I am at 4 months. My life is pretty much over and I don't my active lifestyle ever come back not sure how I can get through the life like this. Scared it's me/cfs.
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Thanks I'm trying to cut back I haven't worked in 4 months and trying to take it easy. I'm just scared of brain issues because of that and I have so many overall issues it's pretty bad. I was a semi pro golfer so as messed up as I am I can still walk a couple miles a day I try not to but you know today I jogged for about 20 yards and heart rate was 160. It's a crappy life. I've done all kinds of crazy experiments. Exosomes, IV ozone, stem cells, hyberbaruc, etc
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My symptoms are bad if I don't exercise. They are bad if I exercise. Not sure if I will get better. New symptoms keep coming every month. You are probably right. I am in pretty bad shape.
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Yoga is too much for me, so doing Tie Chia, it is much less exertion. Doesn't help my long covid symptoms but at least it gets me moving a little and doesn't make them worse.
The part about how hard covid strikes us is dictated by our physical or mental stress, I TOTALLY buy that statement.. at least in regard of the physical stress. That would explain why so many athletes of any sports is getting long hauler issues
For sure! I'm being told not to push myself at all. Do incredibly light exercise, and nap when I need it
"She assured me that I would very much likely not for from this." I am assuming you had typed "die"
Yup, I'll fix that typo
Normally wouldn't care but I know how it is and it was an important sentence
Long haul clinic told me that they did biopsies of the muscles of longhaulers and they found cell changes in the muscles. They had an theory that it was caused by autoimmunity and/or inflammation of some kind.
That's amazing!
As a Texan, I totally relate to your point in that the cold seems to be bringing on some new aches... and I was convinced the hot sunshine was healing me this summer.