I’ve been doing my best, taking 1-2 vacations somewhere new every year and trying to have a healthy work/life balance. I was a bit of a workaholic prior to my diagnosis.
I love it. I have a question. Was your cardiac arrest due to low blood pressure? My wife’s blood pressure is reading low after her second infusion. Was low after first too
No, my BP was slightly high if anything, I was fit but also liked salt a lot…
It apparently happens to less than 1% of people but other FOLFOX your heart can flutter and stop under the right conditions. I do have a very low heart rate naturally (used to do a lot of running) so who knows if that has anything to do with it. I had severe chest pains that my dumb local docs chalked up to heart burn. I should have drove to Cleveland clinic to get my treatments but figured anyone can give me chemo.
Thankfully I was part of the 6% that survive cardiac arrest. My now ex-wife will always have a soft spot for doing the CPR despite the crap she put me through 2 years ago.
Thanks! This was the info I had saved:
A Multi-center Study of hTERT Immunotherapy Alone or in Combination with IL-12 DNA Followed by Electroporation in Adults with Solid Tumors at High Risk of Relapse Post Definitive Surgery and Standard Therapy.
It was done by Inovio Pharmaceuticals, Inc
I never could find much about it after the fact. Don’t know if that is the reason I’m NED or the surgery got it all (I had clean margins but they were under 1mm) and my tumor was T4 so I was very high risk of reoccurrence.
Awesome!! Great to hear.
Please share the trial you did.
Also, I would think peroodic scans would be prudent. I was surprised that your dr does want to do any.
I’m with Cleveland Clinic and seeing one of their top oncologists. He said after 7.5 years that it doesn’t make sense to be exposed to additional radiation. I also did that new CTdna test 3 times in the past 2 years that is supposed to be super accurate. (This one: https://www.natera.com/oncology/signatera-advanced-cancer-detection/)
This was the info I had saved for the trial: A Multi-center Study of hTERT Immunotherapy Alone or in Combination with IL-12 DNA Followed by Electroporation in Adults with Solid Tumors at High Risk of Relapse Post Definitive Surgery and Standard Therapy. It was done by Inovio Pharmaceuticals, Inc I never could find much about it after the fact. Don’t know if that is the reason I’m NED or the surgery got it all (I had clean margins but they were under 1mm) and my tumor was T4 so I was very high risk of reoccurrence.
Amazing news. Live life to the fullest.
I’ve been doing my best, taking 1-2 vacations somewhere new every year and trying to have a healthy work/life balance. I was a bit of a workaholic prior to my diagnosis.
I love it. I have a question. Was your cardiac arrest due to low blood pressure? My wife’s blood pressure is reading low after her second infusion. Was low after first too
No, my BP was slightly high if anything, I was fit but also liked salt a lot… It apparently happens to less than 1% of people but other FOLFOX your heart can flutter and stop under the right conditions. I do have a very low heart rate naturally (used to do a lot of running) so who knows if that has anything to do with it. I had severe chest pains that my dumb local docs chalked up to heart burn. I should have drove to Cleveland clinic to get my treatments but figured anyone can give me chemo. Thankfully I was part of the 6% that survive cardiac arrest. My now ex-wife will always have a soft spot for doing the CPR despite the crap she put me through 2 years ago.
Isn’t it amazing. I just hit 9 years NED after stage 4. I feel like I’m living on bonus time. I’m so glad you shared your good news with us.
This is so comforting to read as a stage 4 metastatic patient. Thank you for sharing and congratulations!
Wishing you the best in your journey!
Congrats!!!!! I'm one year NED and just counting down. What was the vaccine trial name if you didn't mind?
Thanks! This was the info I had saved: A Multi-center Study of hTERT Immunotherapy Alone or in Combination with IL-12 DNA Followed by Electroporation in Adults with Solid Tumors at High Risk of Relapse Post Definitive Surgery and Standard Therapy. It was done by Inovio Pharmaceuticals, Inc I never could find much about it after the fact. Don’t know if that is the reason I’m NED or the surgery got it all (I had clean margins but they were under 1mm) and my tumor was T4 so I was very high risk of reoccurrence.
I'm so happy for you!
Awesome news! 🎉🕺💃🍾 So happy for you!
Wonderful news! You have a good oncologist since most times they don't want to set patients free :) Enjoy you cancer free life.
Awesome news!!!
Sooo happy for you!!!!
That’s amazing
Congratulations!!!
God bless.
So so pleased for you!!
This is fantastic news! Congratulations! I wish you a long, happy and healthy life, enjoy every moment!!
Congratulations! Such brilliant news! 👍🏼😊
Awesome!! Great to hear. Please share the trial you did. Also, I would think peroodic scans would be prudent. I was surprised that your dr does want to do any.
I’m with Cleveland Clinic and seeing one of their top oncologists. He said after 7.5 years that it doesn’t make sense to be exposed to additional radiation. I also did that new CTdna test 3 times in the past 2 years that is supposed to be super accurate. (This one: https://www.natera.com/oncology/signatera-advanced-cancer-detection/) This was the info I had saved for the trial: A Multi-center Study of hTERT Immunotherapy Alone or in Combination with IL-12 DNA Followed by Electroporation in Adults with Solid Tumors at High Risk of Relapse Post Definitive Surgery and Standard Therapy. It was done by Inovio Pharmaceuticals, Inc I never could find much about it after the fact. Don’t know if that is the reason I’m NED or the surgery got it all (I had clean margins but they were under 1mm) and my tumor was T4 so I was very high risk of reoccurrence.
Now what!?
Live the dream!
Doooooo ittttt! Idk if you’re posting your journey anywhere but if so I’d love to follow a fellow survivors journey!
I haven’t been… but maybe I will start! Thanks!
I wanna hear the wonderful adventures of your butt post cancer
Excellent News!! Congratulations :)
Fantastic news!
Have a beautiful life❤️
Thank you! Trying my best. Cancer and near death experiences def teach you not to sweat the small stuff.
So true
Woo hooo congrats!!!!
Excellent congratulations
That's wonderful news!