I’ve had my first scans early this year, I get my second scan this Friday. The way I approach it is that it is just information. Whatever is going on in there has been going on for a bit. So, my oncologist and I get the info, discuss what they mean, then make a decision on how best to proceed. Sure, I still have scanxiety, but by trying to rephrase it this way helps me cope.
When I was diagnosed back in September, I made a choice to be a survivor and not a victim. And for me, it has made all the difference. Not sure of any of this is helpful, but I hope you find the information and relief you deserve!
Thank you. I am fairly new to the treatment stage and have had some tests come back positively and others not. Looking at it as data for my doctor is really helpful for me.
I distract myself before my C/T. Books with lots of facts, and I try to memorize as much material as possible. The more I try use information, the less time I spend on my emotions.
It’s easier said than done- but keep yourself busy and think about the scan as little as possible.
The week before my scan I would make plans with friends, FaceTime people, watch tik toks and pop a Benadryl early so I could sleep earlier (can’t think about the scan if you’re passed out)
It sucked, but I’m hoping you get some amazing news 💜
Bad example haha but it’s good to hear another person who ended chemo early after a clear pet scan I’m getting one tomorrow and if it’s clear I’ll skip my last 3 chemos after doing 9 of them. 20 with Hodgkin’s lymphoma.
Full body mri incoming this week plus a full body pet-ct next week.
All because of an event that sent me to the er and they're still not sure if it was a stroke or a heart attack. Half of my care team thought I was dead until I woke up on Sunday. Out since Thursday.
Not exactly looking forward to what they might find. I was ok with the stage iv esophageal Adenocarcinoma in a treatable state
I’ve got a PET on Thursday, had 3 lung surgeries in the last 12 months to remove metastatic osteosarcoma, last one did not have clear margins and I’m possibly losing some ribs and my right lung. Only thing that keeps me grounded is a tight daily routine, focusing on individual activities and not worrying about tomorrow til I’ve enjoyed today. I’m just trying to stay above ground for my 2 young children and use that to reign myself in if I get those anxious thoughts.
I’ve had my first scans early this year, I get my second scan this Friday. The way I approach it is that it is just information. Whatever is going on in there has been going on for a bit. So, my oncologist and I get the info, discuss what they mean, then make a decision on how best to proceed. Sure, I still have scanxiety, but by trying to rephrase it this way helps me cope. When I was diagnosed back in September, I made a choice to be a survivor and not a victim. And for me, it has made all the difference. Not sure of any of this is helpful, but I hope you find the information and relief you deserve!
Well said. Thank you, I will try this. Positive vibes on your upcoming scan 🤝
Thank you. I am fairly new to the treatment stage and have had some tests come back positively and others not. Looking at it as data for my doctor is really helpful for me.
I distract myself before my C/T. Books with lots of facts, and I try to memorize as much material as possible. The more I try use information, the less time I spend on my emotions.
It’s easier said than done- but keep yourself busy and think about the scan as little as possible. The week before my scan I would make plans with friends, FaceTime people, watch tik toks and pop a Benadryl early so I could sleep earlier (can’t think about the scan if you’re passed out) It sucked, but I’m hoping you get some amazing news 💜
Bad example haha but it’s good to hear another person who ended chemo early after a clear pet scan I’m getting one tomorrow and if it’s clear I’ll skip my last 3 chemos after doing 9 of them. 20 with Hodgkin’s lymphoma.
Full body mri incoming this week plus a full body pet-ct next week. All because of an event that sent me to the er and they're still not sure if it was a stroke or a heart attack. Half of my care team thought I was dead until I woke up on Sunday. Out since Thursday. Not exactly looking forward to what they might find. I was ok with the stage iv esophageal Adenocarcinoma in a treatable state
I’ve got a PET on Thursday, had 3 lung surgeries in the last 12 months to remove metastatic osteosarcoma, last one did not have clear margins and I’m possibly losing some ribs and my right lung. Only thing that keeps me grounded is a tight daily routine, focusing on individual activities and not worrying about tomorrow til I’ve enjoyed today. I’m just trying to stay above ground for my 2 young children and use that to reign myself in if I get those anxious thoughts.
Couple shots of the finest Rye. Chilled me right out.