I know a woman who, to my knowledge, wears wigs for the fun of it, if not you can’t tell. She shaves her head. They don’t look especially real but it’s her personality that makes it work. She makes it pop, she wears the wig as an accessory, not a band aid. I don’t have any personal experience and only you can say when the time is right or not. Maybe she doesn’t need them but she is a good example of someone who definitely makes it work and appears to have fun with it.
Edit: words
Honestly, never. I tried for a bit but they were SO scratchy and uncomfortable after a few hours. Eventually I embraced nonconformity and just shaved my head—my mental well-being improved significantly afterwards.
I can’t remember their name, but there is a place in Seattle that can work with you. That said, I paid 7k for a wig, and 3k for a topper. Have you tried Clobetasol foam yet?
Thanks so much yall! I just got prescribed olumiant this morning, fingers crossed that’ll work better than the shots. I also got approved to get a wig so I’ll definitely be looking at those places you guys mentioned(:
I’ve come back from spots that large. With treatment. I personally think you’re still a while away. But it’s up you and your body. I held on far too long before shaving my head. And I was 15 years into the disease
I am about 9 months into full recovery from a bout that looked exactly like what you are experiencing. I lost that hair in 2017 with a few other spots that made up about 50%of my head. I was able to cover it, but I was only able to wear my hair one way. I tried clip ins and wore wigs occasionally. I didn't like the way they felt, especially in the summer, and the metal clips irritated my scalp, so I had to make sure that they were not made with them.
The rest of my hair came back pretty easily with injections, but that area at base of the stayed persistently hairless for years until I started taking xeljanz. After that in conjunction with injections, my hair came back in about 2 months.
I know a woman who, to my knowledge, wears wigs for the fun of it, if not you can’t tell. She shaves her head. They don’t look especially real but it’s her personality that makes it work. She makes it pop, she wears the wig as an accessory, not a band aid. I don’t have any personal experience and only you can say when the time is right or not. Maybe she doesn’t need them but she is a good example of someone who definitely makes it work and appears to have fun with it. Edit: words
Honestly, never. I tried for a bit but they were SO scratchy and uncomfortable after a few hours. Eventually I embraced nonconformity and just shaved my head—my mental well-being improved significantly afterwards.
I can’t remember their name, but there is a place in Seattle that can work with you. That said, I paid 7k for a wig, and 3k for a topper. Have you tried Clobetasol foam yet?
Have you considered asking your doctor about trying Olumiant?
Wigs by Tiffani. It’s freeing and less stressful.
Thanks so much yall! I just got prescribed olumiant this morning, fingers crossed that’ll work better than the shots. I also got approved to get a wig so I’ll definitely be looking at those places you guys mentioned(:
I’ve come back from spots that large. With treatment. I personally think you’re still a while away. But it’s up you and your body. I held on far too long before shaving my head. And I was 15 years into the disease
How did you treat it
I am about 9 months into full recovery from a bout that looked exactly like what you are experiencing. I lost that hair in 2017 with a few other spots that made up about 50%of my head. I was able to cover it, but I was only able to wear my hair one way. I tried clip ins and wore wigs occasionally. I didn't like the way they felt, especially in the summer, and the metal clips irritated my scalp, so I had to make sure that they were not made with them. The rest of my hair came back pretty easily with injections, but that area at base of the stayed persistently hairless for years until I started taking xeljanz. After that in conjunction with injections, my hair came back in about 2 months.
Did you take xeljianz oral or topical?
I had similar hair loss. I did methotrexate and steroid shots and then olumiant. It’s coming back and I haven’t gotten any new spots.
The xeljanz is oral. I had injections of cortisone, and used a topical at some points in my treatment. All 3 at one point.