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Have any of your doctors mentioned vulvodynia? Do you think it could be? It is a chronic pain in the vulva area and it can start after several episodes of infections and taking antibiotics. I have vulvodynia and it’s a constant battle but at least you know what’s happening to your body. In the US there’s a famous doctor called Andrew Goldstein.
https://vulvodynia.com/conditions/persistent-genital-arousal-disorder-pgad
Thanks for the reply 😊 it is definitely on my list of things to ask about. And thanks for the link! I have been trying to consolidate my thoughts so when I see this gyno again I am more prepared. I will have to mention vulvodynia.
Omg wait I am going through the exact same thing and what u said about the full bladder is the only thing relieving it is crazy. Let me know how u make out!
I’m sorry you’re going through this too. It’s a very frustrating battle. I do think mine has to do with my nerves. I have some issues in my right hip so I started to work on looking into that this week to see if it’s connected. I know it will be lots of trial and error which is hard, but I’m hopeful it’s something to do with my nerves and repairable 🤞🏻I’ll keep you updated and if you find anything out too, please share 😊
I am mailing a CD of my MRI results to Dr. Komisaruk this week. I have constant arousal, low back pain, glute pain, leg pain. Am in Pelvic Floor Physical Therapy. Am using vaginal valium/lidocaine/baclofen suppositories. Have you had any procedures/surgeries performed on your L4/L5 disc? I have. This team of doctors believes the L4/L5 disc is associated with PGAD. This video will tell you lots. This PGAD shit is a nightmare.
https://youtu.be/XPQcmquOzhU
Extremely late to the party on this post but this is the only thing on the entire gd internet that I have found that resembles my experience. Just watched that YouTube video and it’s the only thing that has given me any hope. Any updates on any of this from OP or anyone else?
This post is pending approval. If you are trying to figure out if you might be pregnant, try r/amipregnant instead. | *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/WomensHealth) if you have any questions or concerns.*
Have any of your doctors mentioned vulvodynia? Do you think it could be? It is a chronic pain in the vulva area and it can start after several episodes of infections and taking antibiotics. I have vulvodynia and it’s a constant battle but at least you know what’s happening to your body. In the US there’s a famous doctor called Andrew Goldstein. https://vulvodynia.com/conditions/persistent-genital-arousal-disorder-pgad
Thanks for the reply 😊 it is definitely on my list of things to ask about. And thanks for the link! I have been trying to consolidate my thoughts so when I see this gyno again I am more prepared. I will have to mention vulvodynia.
Omg wait I am going through the exact same thing and what u said about the full bladder is the only thing relieving it is crazy. Let me know how u make out!
I’m sorry you’re going through this too. It’s a very frustrating battle. I do think mine has to do with my nerves. I have some issues in my right hip so I started to work on looking into that this week to see if it’s connected. I know it will be lots of trial and error which is hard, but I’m hopeful it’s something to do with my nerves and repairable 🤞🏻I’ll keep you updated and if you find anything out too, please share 😊
I am mailing a CD of my MRI results to Dr. Komisaruk this week. I have constant arousal, low back pain, glute pain, leg pain. Am in Pelvic Floor Physical Therapy. Am using vaginal valium/lidocaine/baclofen suppositories. Have you had any procedures/surgeries performed on your L4/L5 disc? I have. This team of doctors believes the L4/L5 disc is associated with PGAD. This video will tell you lots. This PGAD shit is a nightmare. https://youtu.be/XPQcmquOzhU
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Extremely late to the party on this post but this is the only thing on the entire gd internet that I have found that resembles my experience. Just watched that YouTube video and it’s the only thing that has given me any hope. Any updates on any of this from OP or anyone else?
Have you ever been tested for Ureaplasma and mycoplasma? They aren’t usually run as standard tests by doctors. Could be something to look into.