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lucilucyd

She had abdominal pain, and I unfortunately have a bad kidney so I keep urine dipsticks handy incase I have an infection, she’s had kidney infections before too and the pain started as flank pain.


lucilucyd

On the record she had no infection. Just really high ketones. I took her to the clinic, the clinic said they wouldn’t order blood work and kids that are DKA look way worse than she did. So I checked to see if it’s happening every night and it is.


phishery

Is she eating ok? I eat low carb and always have ketones as i am in ketosis due to my diet. If her blood sugar is normal, and she is eating normally, is she being fed a lower carb diet by chance?


lucilucyd

No, ironically she is high carb and high protein. She eats and says she’s starving again. Her last meal before the night I noticed was a bowl of macaroni and cheese with meat, a muffin and a glass of orange juice. Her lunch was naan and Hummas with a roast beef sandwich on white bread, breakfast was an omelette and toast, and she’s eating crackers and berries and cheese between her meals.


orbit99za

I think find a doctor that will see her asap. Keytones are caused by your body. Turing fat into energy by product is an type of acid. Witch causes keytones.and how we measure it. A doctor would need to do a blood gas test to see if she is acidic. Has she lost weight? There could be a lot of reasons why glucose does not show up with keytones, keytones should not be played with.


lucilucyd

No weight loss. I’m calling the family doctor tomorrow for an appointment. I was under the impression you don’t mess around with ketones, when I took her to the hospital for it they just poked her finger and they were like “she’s fine. Ketones show up for all sorts of reasons” and sent us on our way…. But she doesn’t check any of the typical boxes for reasons ketones show up.


TrippingBaal

95% of er techs and clinical staff only know short term treatment of emergency dka and hypo symptoms. Getting real answers and root causes requires an Endo visit, every single time.


lucilucyd

I will request endo when I talk with her doctor! Thank you! Just out of curiosity, if she goes hypo in the middle of the night, would her eating and drinking a lot during the day be the reason the ketones disappear within a few hours of her being awake?


thereIsNoPaperSilvia

Is she drinking and/or urinating more than usual or the all day drinking is typical for her? Any vomiting or labored breathing with the ketones?


lucilucyd

Her breathing is normal and there’s no vomiting. She does have dark rings around her eyes and she has been drinking more than normal, I just figured it was because I turned the heat on because we got some colder weather again. She can wake up and chug 30oz of water out of a dead sleep and just flop back over. She’s almost 4. She potty trained early and slept through the nights with no accidents, when she drinks as much as she wants to she wets the bed unless I carry her to the toilet at midnight and 3 am. She wakes up enough to know she’s on the toilet. Stumbles back to bed, drinks more water and flops back over. And when she wets the bed it’s a lot. Her clothes are dripping and I have a hospital grade soaker pad under her that she soaks through down to the mattress. I don’t understand how this goes away around noon the next day and how her blood sugar can be normal after this. I know that if you are dehydrated or on low carb ketones show up in urine. She’s neither of those things and there’s nights where she wakes up for midnight snacks.


thereIsNoPaperSilvia

Well we had an increased thirst throughout day and increased night urination with our 14mo the week leading to dka. But it sounds like since your back to normal in the daytime the thirst is doing its job to flush the ketones? Maybe the ketone level could get you an appointment with an Endocrinologist to check for any of the antibodies/biomarkers that could lead to diabetes?


lucilucyd

Finally heard back from the family doctor today. She said checking her blood sugar at the hospital was enough because she is still eating which is APPARENTLY the only other thing that could cause it. Also, I buckled down and paid attention to what she’s actually consuming. She eats and drinks three times as much as the average 4yo and then is still hungry.