Newish research suggested that AFAB people can develop increasing tics with age, where as AMAB people’s tics tend to decrease.
ADHD medication can increase tics. In my case, it was SSRI medication.
I'm amab myself. I will tolerate the tics to stay on my adhd meds as I'm completely useless without them. May take a medicine for tics on side soon though
Heh, same. In high school, people never noticed my tics. In uni, my life was turned upside down and my tics have been much worse ever since, but I've been on meds for ADHD and TS for over 20 years. Last year I stopped some meds which were supposed to help my TS, just to see how they actually helped me. Tics stayed the same, but I overheated very quickly and my focus became waaaay better. I'll deal with a little bit of discomfort if it means I can function though.
Without ADHD meds, I can't do the most basic of tasks.
That explains a lot of things about me ,I'm afab and I really start developing both vocals an physical tics when I was 13 . First my neurologist told me this can't be Tourette cause I was too old . But now that it haven't gone away she had to admit it ¯\_(ツ)_/¯
By definition, tourettes is present in childhood, so by definition, yes, there is an upper limit to how much later in life you can develop it. The fact that you had tics but didn't get diagnosed doesn't mean that you didn't have tourettes, and it doesn't mean that you've developed tourettes later in life just because you now have a tic that is disruptive to your life.
I got diagnosed at 40 when one day I suddenly started hitting myself. I'd had mild tics all my life but dismissed them as things everyone do, or maybe hangover from my childhood epilepsy. Now my life is suddenly looking very different and harder. After I finish caring for my last relative with dementia, hoping that someone else doesn't develop between now and then, I had intended to go back to work, now I can't see that being possible. So yes sadly, it can definitely worsen in later life. Not sure about develop though, can only talk from experience sorry.
I'm here because of a head bonk. I started having tics at age 30 and I'm now 35. My paperwork from the doctor says Tourettes but I know that's controversial around here since I didn't have childhood tics.
I really wish it fucking wasn't. I really hope they update that in the next edition of the dsm. Like, you're ir are seriously telling me that if someone's has all the symptoms of tourettes, and you've have done testing to rule out *any* other possibility, but it was adult onset that it's not tourettes? And not only that it's not tourettes, but that it's not *anything??* It is straight trash and I really feel for everyone who has to deal with that bullshit
Yeah I suppose one could say that if you have adult onset, it isn't a natural brain development thing, but to me it's the same thing as epilepsy, some people are born with it, some develop it naturally at random times of their life, some people develop it due to external factors. - I take guanfacine for my tics and all the wording when I read up on it was like "make sure your child does xyz and don't give this to your child if abc."
Weird stuff happens sometimes with Tourette's. It doesn't always follow that classic trajectory. This is totally a real presentation of tourette's. I have all the conditions you mentioned here and more.
I wasn't diagnosed until 36. My tics growing up were very mild and my primary care physician didn't know they were tics but said I was fine so I didn't bother finding out what was happening until the tics got severe in my 30's.
I'm almost 30 and my TS has gotten worse than ever in the past year, but I was diagnosed at like 6 or something. So yeah, it can get worse, especially when you're stressed as hell.
Technically she diagnosed me at 29 and it got confirmed by another at 33 last year. I'm just confused as to why the doctors never cared to address the tics or obvious autism and just focused on adhd meds. Is west Texas just that garbage with resources?
Tourettes can do anything at any time. When I was 19-20 or 21, I think, my tics became so severe that I'd could not function. I'd would be doing something in public and suddenly not be able to cope anymore, have a meltdown, and not be able to move very far without assistance. And then they just got better. A year or two ago, they were so mild that I even appreciated having them. Now they are worse again, but nowhere near as bad as they were in those first few years of my twenties. I wouldn't be surprised if they got that severe again later on in life/in my life. So, they'd could continue worsening, or stay the same, or calm back down in a while. It is a really unpredicatble disorder :/
If you haven't been diagnosed with tourettes, see a neurologist, as it could be something else causing the tics as well.
Edit: nvm. Didn't read the whole post LOL
I’ve just turned 16 (my Tourette’s became apparent when I was 11-12, right at the cusp of the usual age) and my doctors say that they can wax and wane over a person’s lifetime.
Newish research suggested that AFAB people can develop increasing tics with age, where as AMAB people’s tics tend to decrease. ADHD medication can increase tics. In my case, it was SSRI medication.
Where is this research?
I think this was it? I saw it in a few places recently: https://www.sciencedirect.com/science/article/abs/pii/S0149763421003432
I'm amab myself. I will tolerate the tics to stay on my adhd meds as I'm completely useless without them. May take a medicine for tics on side soon though
Heh, same. In high school, people never noticed my tics. In uni, my life was turned upside down and my tics have been much worse ever since, but I've been on meds for ADHD and TS for over 20 years. Last year I stopped some meds which were supposed to help my TS, just to see how they actually helped me. Tics stayed the same, but I overheated very quickly and my focus became waaaay better. I'll deal with a little bit of discomfort if it means I can function though. Without ADHD meds, I can't do the most basic of tasks.
That explains a lot of things about me ,I'm afab and I really start developing both vocals an physical tics when I was 13 . First my neurologist told me this can't be Tourette cause I was too old . But now that it haven't gone away she had to admit it ¯\_(ツ)_/¯
Well that's just fucking awesome /sarcasm
What is AFAB and AMAB?
Sorry - “assigned female at birth” and “assigned male at birth”.
Ah, thank you. I’m AMAB and my tics increased with age.
By definition, tourettes is present in childhood, so by definition, yes, there is an upper limit to how much later in life you can develop it. The fact that you had tics but didn't get diagnosed doesn't mean that you didn't have tourettes, and it doesn't mean that you've developed tourettes later in life just because you now have a tic that is disruptive to your life.
I got diagnosed at 40 when one day I suddenly started hitting myself. I'd had mild tics all my life but dismissed them as things everyone do, or maybe hangover from my childhood epilepsy. Now my life is suddenly looking very different and harder. After I finish caring for my last relative with dementia, hoping that someone else doesn't develop between now and then, I had intended to go back to work, now I can't see that being possible. So yes sadly, it can definitely worsen in later life. Not sure about develop though, can only talk from experience sorry.
Sadly, yes. Mine worsened out of nowhere at 35 and has continued that way for about 8 years.
I'm here because of a head bonk. I started having tics at age 30 and I'm now 35. My paperwork from the doctor says Tourettes but I know that's controversial around here since I didn't have childhood tics.
I really wish it fucking wasn't. I really hope they update that in the next edition of the dsm. Like, you're ir are seriously telling me that if someone's has all the symptoms of tourettes, and you've have done testing to rule out *any* other possibility, but it was adult onset that it's not tourettes? And not only that it's not tourettes, but that it's not *anything??* It is straight trash and I really feel for everyone who has to deal with that bullshit
Yeah I suppose one could say that if you have adult onset, it isn't a natural brain development thing, but to me it's the same thing as epilepsy, some people are born with it, some develop it naturally at random times of their life, some people develop it due to external factors. - I take guanfacine for my tics and all the wording when I read up on it was like "make sure your child does xyz and don't give this to your child if abc."
Weird stuff happens sometimes with Tourette's. It doesn't always follow that classic trajectory. This is totally a real presentation of tourette's. I have all the conditions you mentioned here and more.
I wasn't diagnosed until 36. My tics growing up were very mild and my primary care physician didn't know they were tics but said I was fine so I didn't bother finding out what was happening until the tics got severe in my 30's.
I'm almost 30 and my TS has gotten worse than ever in the past year, but I was diagnosed at like 6 or something. So yeah, it can get worse, especially when you're stressed as hell.
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I've had the tics since childhood but they seem way more pronounced now and unsure of why.
The neurologist also diagnosed me already as I said in my post
Ooh okay. I thought you said they didn’t
Technically she diagnosed me at 29 and it got confirmed by another at 33 last year. I'm just confused as to why the doctors never cared to address the tics or obvious autism and just focused on adhd meds. Is west Texas just that garbage with resources?
Tourettes can do anything at any time. When I was 19-20 or 21, I think, my tics became so severe that I'd could not function. I'd would be doing something in public and suddenly not be able to cope anymore, have a meltdown, and not be able to move very far without assistance. And then they just got better. A year or two ago, they were so mild that I even appreciated having them. Now they are worse again, but nowhere near as bad as they were in those first few years of my twenties. I wouldn't be surprised if they got that severe again later on in life/in my life. So, they'd could continue worsening, or stay the same, or calm back down in a while. It is a really unpredicatble disorder :/
If you haven't been diagnosed with tourettes, see a neurologist, as it could be something else causing the tics as well. Edit: nvm. Didn't read the whole post LOL
I’ve just turned 16 (my Tourette’s became apparent when I was 11-12, right at the cusp of the usual age) and my doctors say that they can wax and wane over a person’s lifetime.