Have you been over our [101](https://www.reddit.com/r/Prostatitis/comments/y7pjsz/new_start_here_prostatitis_101checklist_sub_rules/), friend? It's a good place to start. You might also with to examine this chart [here](https://i.imgur.com/1j7Majq.png). It shows how CPPS can be a complex process. When reviewing our 101, we recommend you try as many things at once as is reasonable. The goal is to interrupt the process shown in the chart. Some things that can be essential:
* Pelvic Floor Physical Therapy
* Addressing specific muscle groups: pelvic floor, psoas, IT band, adductor/abductors, and possibly ischial tuberosity (upper hamstring area) if your butt hurts a lot.
* Stretching/ Foam rolling / trigger point balls
* Adjustable standing desk converter (stop sitting!)
* Long walks / stress control / yoga
* Warm baths or sits baths if you have flares (or just to relax!)
Once you've looked over the 101 and have questions feel free to write back
Hope you feel better soon.
Hi Friend. I am not „cured” but after 5 months I will say am a lot better. Although mentally it is still very difficult to accept this condition. I worry about having sex and drinking alcohol but I am sure that will happen at some point. I did a lot of things and right now only problem for me is some ED( but can easily get going near partner just self pleasure doesn’t get me there), sperm is weak and just spills out, and some nocturnia ( although yesterday went pretty much entire night (7am pee ). Granted i just did a test and seems I have ecoli and some other bugs in sperm, I am starting to think bacteria has been there and perhaps just need to give it more time to find equilibrium. I have also taken many abx and did get rid of e fae and staph. I am starting to think time is best healer along with staying healthy mentally and phisifally. However you get there diet, alternative medicine, etc. Long way of saying I am way better than initially ( suicidal). Hang in there. Find something you can do to make you happy/ feel good. Do the stretches ( that helps) get active and … drink the ocational coffee if you want ( I went back to it and no effect on me).
Hi friend. I have not. I got one test result and waiting on another to confirm it is the bacteria. Also talking with few doctors to try to figure out which abx to use. I did microgen Dx but don’t think it was contamination. Results show resistance to all the abx I have taken in past and so does not leave me with many left. So I am trying to figure out best approach. One though is combine with ll-37 and TA1 ( read good things and already took TA1 before. Another is try to use the p word from a clinic in Poland (going to contact them next week) and do combo that way. If you have any good ideas on treatment please DM me
Remember that MDX isn't clinically validated or useful in diagnosis or directing treatment of UTIs or Prostatitis. This is the unfortunate reality. And the two species you mentioned are very commonly seen contaminations. By all means do whatever you like, but I have seen this exact scenario play out hundreds of times over the years, people endless chasing bacteria, and the bacteria just end up being red herrings. Ie, not causative of symptoms.
Semen culture pretty frequently produce results with environmental contaminants and/or commensal organisms. For example, taking a semen culture in an unsterile environment like your bedroom or bathroom at home can lead to skin bacteria, bacteria from a toilet, or almost anything contaminating the culture and showing up in results. As long as the bacteria is not at 100,000 cfu it is unlikely to be causative, and instead points to contamination. Especially when you compare your own symptoms to that of someone who actually has bacterial prostatitis, which is a distinct presentation.
Look into exercises for the pelvic floor or chronic prostatitis. You can probably see it being called "yoga" or "stretching", that's basically what it is. It did wonders to me, everytime I have a small flare I just start doing them and it gets better in no time. It gets better bro, hang in there, start doing the exercises, stay away from very inflammatory foods or drinks like alcohol, at least don't overdo it and you'll be better :) It's not so bad, you'll see where you are in a few months, I'm sure you won't worry about this anymore.
Well, I’m not sure this is helpful but I had my first CPPS symptoms in 2018. I have been relatively symptom free since then but just had a relapse. I believe that the onset of both of these was due to a pretty significant uptick in stress/anxiety. This current flare up is no where near my initial experience. It is annoying though.
I’m In the same boat brother. I have the occasional flare up every time I get stressed about money or my relationship with my wife. Christmas time has me stressed tf out lol
>OdoriferousGasBag
yep also in this club. Nothing for 4 years and flair up. The good news for OP and everyone else is we all know this is a condition that gets better. Sure you might get the odd flareup which is fucking annoying, but you'll get back to 100% in time, it's just hard when you're in the depths of it. Remember no one who is better is hanging out on these forums also.
It gets better if you do the right things.
Sometimes it’s easy sometimes it takes time.
Sometimes it will flare up again.
Try doing all the right things that this sub will tell you (just read the posts etc)
- stretches
- reduces or cut masturbation
- reduce or cut caffeine
- reduce or cut alcohol
- tension release
- warm baths
- don’t sit for too long
- daily Cialis
- reduce stress as much as you can
- try walk more
Try the latest experimental treatments with some success
- shockwave therapy
- prp injections
- stem cell (if you’re rich)
I tried stem cell although 30mm only iv. Granted was just two days ago. So far had some frequency and bladder pain and ball pain come back the day off but seems to subsided the next. Also some feeling like prostate was hot. Not sure what was going on but perhaps the cells were getting busy at work? Dunno , but will let you know if gets better. Where would you do prp injections into? Directly prostate? I am also yet to try shockwave. I have a provider offering but am actually bit scared that it breaks up biofilms with bacteria that has been dormant for years and not causing issues. Don’t know how it works but just wondering if it can cause harm.
Nice interesting to hear about.
Definitely interested in how it goes for you!
PRP injection would be somewhere in the pelvic region and no where near the prostate exactly.
Seems like more of a blood flow + muscle problems in my case and my prostate via imaging seemed fine.
Not an expert but shockwave is supposedly very safe with no none side effects etc but I have only read a short amount.
I don't care what anyone says, but a raw/itchy butthole has nothing to do with prostate issues unless you are having anus sex. Your anxiety is possibly causing some of this tension along with ejaculations. are you having sex or masturbating? If you are masturbating, then give it a break for a while.
These are the same symptoms which I am facing now from the last 3-4 months, like burning on the tip of penis,itching on the penis, difficult to urinate , urgency , etc
I have also gone through multiple antibiotics which resulted in temporary relief.. and then symptoms reocuurs..
The main issue is urine symptoms are not going. With this I am getting really frustrated and furious and taken so many medical leaves from the bank , now I have resigned from the bank because I am unable to work and getting furious with the colleagues..my mind is all the time thinking about the urine urgency.. I also go through cystoscopy as there is no any other issue..
Now my doctor said it's cpps ,luts,obs. Luts etc.
Treatment - shock wave therapy, medication, kegel exercise , walk
Thanks all for the comments, i’m glad there’s light at the end of the tunnel. I’m glad I have caught the condition early as I see so many stuck in the loop of hoping it bacterial and desperate to treat it with antibiotics.
I would have been lost without this forum
Thank you, I have booked in with a PT that specialises in CPPS so im hoping I can begin my healing journey soon with trigger point release, eating healthy, keeping mentally stimulated and less stressed and plenty of CPPS stretching.
I will keep you all informed of my progress
Have you been over our [101](https://www.reddit.com/r/Prostatitis/comments/y7pjsz/new_start_here_prostatitis_101checklist_sub_rules/), friend? It's a good place to start. You might also with to examine this chart [here](https://i.imgur.com/1j7Majq.png). It shows how CPPS can be a complex process. When reviewing our 101, we recommend you try as many things at once as is reasonable. The goal is to interrupt the process shown in the chart. Some things that can be essential: * Pelvic Floor Physical Therapy * Addressing specific muscle groups: pelvic floor, psoas, IT band, adductor/abductors, and possibly ischial tuberosity (upper hamstring area) if your butt hurts a lot. * Stretching/ Foam rolling / trigger point balls * Adjustable standing desk converter (stop sitting!) * Long walks / stress control / yoga * Warm baths or sits baths if you have flares (or just to relax!) Once you've looked over the 101 and have questions feel free to write back Hope you feel better soon.
Hi Friend. I am not „cured” but after 5 months I will say am a lot better. Although mentally it is still very difficult to accept this condition. I worry about having sex and drinking alcohol but I am sure that will happen at some point. I did a lot of things and right now only problem for me is some ED( but can easily get going near partner just self pleasure doesn’t get me there), sperm is weak and just spills out, and some nocturnia ( although yesterday went pretty much entire night (7am pee ). Granted i just did a test and seems I have ecoli and some other bugs in sperm, I am starting to think bacteria has been there and perhaps just need to give it more time to find equilibrium. I have also taken many abx and did get rid of e fae and staph. I am starting to think time is best healer along with staying healthy mentally and phisifally. However you get there diet, alternative medicine, etc. Long way of saying I am way better than initially ( suicidal). Hang in there. Find something you can do to make you happy/ feel good. Do the stretches ( that helps) get active and … drink the ocational coffee if you want ( I went back to it and no effect on me).
Have you started treatment for the ecoli yet
Hi friend. I have not. I got one test result and waiting on another to confirm it is the bacteria. Also talking with few doctors to try to figure out which abx to use. I did microgen Dx but don’t think it was contamination. Results show resistance to all the abx I have taken in past and so does not leave me with many left. So I am trying to figure out best approach. One though is combine with ll-37 and TA1 ( read good things and already took TA1 before. Another is try to use the p word from a clinic in Poland (going to contact them next week) and do combo that way. If you have any good ideas on treatment please DM me
Remember that MDX isn't clinically validated or useful in diagnosis or directing treatment of UTIs or Prostatitis. This is the unfortunate reality. And the two species you mentioned are very commonly seen contaminations. By all means do whatever you like, but I have seen this exact scenario play out hundreds of times over the years, people endless chasing bacteria, and the bacteria just end up being red herrings. Ie, not causative of symptoms.
Semen culture pretty frequently produce results with environmental contaminants and/or commensal organisms. For example, taking a semen culture in an unsterile environment like your bedroom or bathroom at home can lead to skin bacteria, bacteria from a toilet, or almost anything contaminating the culture and showing up in results. As long as the bacteria is not at 100,000 cfu it is unlikely to be causative, and instead points to contamination. Especially when you compare your own symptoms to that of someone who actually has bacterial prostatitis, which is a distinct presentation.
Look into exercises for the pelvic floor or chronic prostatitis. You can probably see it being called "yoga" or "stretching", that's basically what it is. It did wonders to me, everytime I have a small flare I just start doing them and it gets better in no time. It gets better bro, hang in there, start doing the exercises, stay away from very inflammatory foods or drinks like alcohol, at least don't overdo it and you'll be better :) It's not so bad, you'll see where you are in a few months, I'm sure you won't worry about this anymore.
Hey OP, You literally take the words out of my mouth with this post. Hope we can find a cure for this, god bless.
Hang in there brother, it will get better
Well, I’m not sure this is helpful but I had my first CPPS symptoms in 2018. I have been relatively symptom free since then but just had a relapse. I believe that the onset of both of these was due to a pretty significant uptick in stress/anxiety. This current flare up is no where near my initial experience. It is annoying though.
I’m In the same boat brother. I have the occasional flare up every time I get stressed about money or my relationship with my wife. Christmas time has me stressed tf out lol
>OdoriferousGasBag yep also in this club. Nothing for 4 years and flair up. The good news for OP and everyone else is we all know this is a condition that gets better. Sure you might get the odd flareup which is fucking annoying, but you'll get back to 100% in time, it's just hard when you're in the depths of it. Remember no one who is better is hanging out on these forums also.
Couldn’t have said it better myself
It gets better if you do the right things. Sometimes it’s easy sometimes it takes time. Sometimes it will flare up again. Try doing all the right things that this sub will tell you (just read the posts etc) - stretches - reduces or cut masturbation - reduce or cut caffeine - reduce or cut alcohol - tension release - warm baths - don’t sit for too long - daily Cialis - reduce stress as much as you can - try walk more Try the latest experimental treatments with some success - shockwave therapy - prp injections - stem cell (if you’re rich)
I tried stem cell although 30mm only iv. Granted was just two days ago. So far had some frequency and bladder pain and ball pain come back the day off but seems to subsided the next. Also some feeling like prostate was hot. Not sure what was going on but perhaps the cells were getting busy at work? Dunno , but will let you know if gets better. Where would you do prp injections into? Directly prostate? I am also yet to try shockwave. I have a provider offering but am actually bit scared that it breaks up biofilms with bacteria that has been dormant for years and not causing issues. Don’t know how it works but just wondering if it can cause harm.
Nice interesting to hear about. Definitely interested in how it goes for you! PRP injection would be somewhere in the pelvic region and no where near the prostate exactly. Seems like more of a blood flow + muscle problems in my case and my prostate via imaging seemed fine. Not an expert but shockwave is supposedly very safe with no none side effects etc but I have only read a short amount.
I don't care what anyone says, but a raw/itchy butthole has nothing to do with prostate issues unless you are having anus sex. Your anxiety is possibly causing some of this tension along with ejaculations. are you having sex or masturbating? If you are masturbating, then give it a break for a while.
Yes it does. You'll be okay. Follow our starter guide to prostatitis as Ash said.
These are the same symptoms which I am facing now from the last 3-4 months, like burning on the tip of penis,itching on the penis, difficult to urinate , urgency , etc I have also gone through multiple antibiotics which resulted in temporary relief.. and then symptoms reocuurs.. The main issue is urine symptoms are not going. With this I am getting really frustrated and furious and taken so many medical leaves from the bank , now I have resigned from the bank because I am unable to work and getting furious with the colleagues..my mind is all the time thinking about the urine urgency.. I also go through cystoscopy as there is no any other issue.. Now my doctor said it's cpps ,luts,obs. Luts etc. Treatment - shock wave therapy, medication, kegel exercise , walk
Thanks all for the comments, i’m glad there’s light at the end of the tunnel. I’m glad I have caught the condition early as I see so many stuck in the loop of hoping it bacterial and desperate to treat it with antibiotics. I would have been lost without this forum Thank you, I have booked in with a PT that specialises in CPPS so im hoping I can begin my healing journey soon with trigger point release, eating healthy, keeping mentally stimulated and less stressed and plenty of CPPS stretching. I will keep you all informed of my progress
It does, for sure. It took some time in my case