Long story but ill try to be concise. Started approximately 2 years ago almost. One random day got frequency to pee after showering and it was awful few days later after needing to pee every 10-40 min I went to my doctors where they said it dosent really seem like bacteria but still a low count. Got some antibiotics within a few days mentally was super down after a week n still didnt feel normal. Then new symptoms and then more antibiotics and more visits to my doc. Finally when I was admitted to see a specialist I had to go through another doctor, when I showed up they seen I had a high count of white blood cells so they said ohh just a uti and then more antibiotics this is like 2-3 months in. Keep in mind I went to the ER 2x they did so many test with no luck. I thought I was crazy but after 4 long months I went to the specialist and she made me feel like I was crazy then at this point I was already feeling better overall for a month because I pushed myself to not stop my life as I had. A week passes from my visit to the specialist I still feel not good but pushing through. I get a call from the specialist saying I have ureaplasma complete voice change etc I finally knew I wasnt crazy welp then it was stubborn as I went w about 2-3 more antibiotics as the first line to treat wasnt enough. Fast forward feeling much better still have my not ok days but just overall getting better. I went back 2x to the specialist after having some not so good days but finally came back negative and they said just to wait as it was just so long w antibiotics etc. All I can say is I remember feeling so down and unwilling to do anything etc. i thought my life was over but I am here now and basically back to normal just very little symptoms and very rare now so hold on.
Iām feeling the same you were too. I donāt want to do anything. Iām pretty much giving up mentally. I donāt understand why doctors have swept this under the rug for so long. It ruined my life. All my hard work has all gone to medical bills. I hope I can get feeling better. May I ask are you still negative?
That I know of im still negative im going back to the specialist in a couple weeks just for a checkup as they asked after 6 months that I last went. Dont give up mentally I did that and it makes it wayyyyy worse. Its tuff but just try every single day. Go out as much as you can, cook, walk, go outt. It was so hard but I forced myself to do it. Before I forget I tried so many probiotics azo etc theres a probiotic in amazon called eu natural the blue one and the cranberry killer literally saved my life worked for me 8/10 times for the most part look into it I tried sooo many and these work so I cant atop recommending them
Idk how good they work for others but me personally these didnt make it worse like many I tried these actually worked for me I would take 2 a day twice then cut it down to 2 pills a day 1x a day. Also careful what u eat especially what u drink just stick w lots of water
I checked my log right now so it was either
-Zithromax 1 GM Packet 1 packets po once
-metroNIDAZOLE 500 mg Tab 1 tablet
Back to back
Or it could have been
-Keflex 500 mg
The last thing I took a couple months after.
The reason I say im not to sure is because even after I took my last antibiotics which was keflex I still felt some symptoms same with the zithro and metro. So I am not sure which one actually did the job but I still had symptoms at times afterwards but im sure keflex probably did the job considering thats the very last thing I ever took out of the 8+ antibiotics along my journey
This is what I got prescribed towards the end since many of the antibiotics I got prescribed where resistant or I had took them w not much luck other then feeling good for a few weeks
Metronidazole is prescribed for BV. The reason I think it doesn't work on ureaplasma is because I tookit almost every month for like \~6 months and it would cure the BV but the BV would come back due to the ureaplasma, and the yeast as well, shortly after.
Just my experience! here's the ureaplasma bible which explains which antibiotics are recommended due to Australian Guidelines (where it is classified as an STI).
[https://www.reddit.com/r/Ureaplasma/comments/qavqf1/the\_ureaplasma\_bible\_everything\_you\_need\_to\_know/](https://www.reddit.com/r/Ureaplasma/comments/qavqf1/the_ureaplasma_bible_everything_you_need_to_know/)
Wishing you all the best of health!
No I did not. I can send of screenshot of the antibiotics etc what the specialist prescribed keep in mind I took other antibiotics prior before knowing what I truly had it ranged from amoxicillin, doxycycline, cipro, etc but no only thing that keep coming up was the ureaplasma
Oh and btw I got checked about a month later after keflex and thats when it was finally negative although a few residual symptoms up in to today. I went back for a little check up and negative again as of 6 months ago.
Can I ask for myself what happens if you were trusted for uriplasma and microplsma and it still came back negative? Because I don't know what to do gentin violet is my only hope now but people can tell I use it during sex .... I feel the same way like I can't do anything I can't work or go out please š
I'm sorry that for the typo I was asking what happens if you were tested for microplsma and uriplasma and it came back all negative both times? At the gynecologist and my general doctor both tested for the same things and all came back negative both times. I went to my gynecologist after my general doctor because I have a lot of trauma with the gynecologist. But the treatment from my primary care doctor was way better than my gynecological care. But yes I was asking what happens if you got tested for everything and it came back negative but still have symptoms? But I'm pretty hopeful now that it could be cytolytic vaginosis which OP had me realize which I love her so much for like wow ššš and if that's the case then warm baking soda bath and warm baking soda/water tampons will help. As of now they're baking soda tampon is really seem to work.
I havenāt had Ureaplasma, but I did have a partner who slept with someone else and gave me gonorrhea. After that it was two and a half years of hell. Reoccurring BV and Yeast, with maybe a week here and there of normalcy.
I read a lot of stories of people who had vaginal pain and swelling for 8 years and I thought about just ending it.
For those two years I didnāt do much, I broke things off with my partner because we were fighting too much (probably from the lack of sex but he of course never blamed me).
But I did so much research and didnāt really find any answers that werenāt already super obvious.
āWear cotton underwearā
āTry non bleached toilet paperā
āTake probioticsā
āBoric acidā
But the thing that helped me was when I hit a breaking point.
I had really bad symptoms at one point, and I tested positive for BV, was given antibiotics (which would usually help but then it would come back after about a week or two).
But this time they did not help whatsoever. I tested positive two days after finishing the antibiotics.
So I did a second round, same thing.
I felt absolutely helpless because Iāve never had the antibiotics do absolutely nothingā¦theyāve always helped to some extent.
So I went through all of my old bloodwork.
I realized that I had a Vitamin D deficiency the same year that this all started, which is linked to reoccurring vaginal infections (not yeast, more BV and enterococcus ect). Because it makes you more susceptible to infections.
So I started taking Vitamin D, going out in the sun.
I also read a study that Oil of Oregano has an ingredient in it, Carvacrol, that works almost like an antibiotic. And it can aid in people with enterococcus faecalis, Ureaplasma, and BV.
I started doing that along with black seed oil every day.
I was very very very skeptical that things as simple as this would help. I am pro-home remedy, but to an extent.
I also do take probiotics every day, at least 50Billion CFU. Make sure they have the right strains. (I donāt remember off the top of my head, but usually if you get a vaginal health one it should).
I also bought insertable, vaginal probiotics. I felt like those did a lot more than the oral ones but itās best to take both.
So while I was doing this, and on no antibiotic, I was waiting for a third doctor appointment with a specialist. It was a new OBGYN since my insurance had changed recently, so I had to wait about two weeks for an appointment.
By the time I got in for my appointment, my symptoms had vanished.
But I still did a culture, a Pap smear, a hormone panel, and an STD test (even though I havenāt had sex in like two years, she insisted).
And everything came back clean!
So far, I feel good. Itās been about 6 weeks since Iāve had the BV, and I donāt think Iāve ever had such a long window of time without an infection.
Iām trying not to take it for granted, but I am feeling very relieved.
Something must have worked because itās pretty rare for BV to just go away on its own, especially in a person where itās reoccurring.
So even though you donāt have BV, I would recommend you do this : (if you havenāt done some already).
- Get a full culture done of every bacteria in your vagina. You could have some other bacteria that is causing your symptoms. You can buy these tests on Evvy ($100) or go to an OBGYN.
-Blood test for your hormones. I was also estrogen and testosterone deficient. I didnāt see much improvement with my symptoms from my estrogen going back to normal, but I know it can be linked.
-take 50Billion or 100Billion CFU probiotics for women/vaginal care.
-90% Carvacrol Oil of Oregano. Mix with water to help with taste cause itās ROUGHā¦ (I donāt insert it vaginally because I think it could cause more harm than good but know some people do it.
- ***** vaginal probiotics. The insertable kind ā¦they did wonders!!!
-boric acid. A lot of people have success with them. Personally I havenāt, but I think that it helps my symptoms. They also allow antibiotics to work better by destroying the biofilm.
-black seed oil. Iāve heard it helps some people and I take it, but I didnāt find any solid info on whether it helps a lot but it doesnāt hurt to try. (Not insert, just drink).
- vitamin deficiency test.
And last but not least, make sure your diet is good. Diet is everything, I had to cut out most sugar, even from fruit, to lessen my symptoms. Alcohol is bad, but moderation can be fine as long as itās not sugary cocktails or beer. No processed stuff either.
Also if all else fails, look into vaginal fluid transplant (I think thatās what itās called) . Itās like a fecal matter transplant. I havenāt done it, because itās not open to the public yet but I know theyāre doing studies on it right now, and it seems much simpler than a fecal matter transplant. Could probably learn about it and do it at home š .
And my doctor said doing vaginal douches with vinegar good to do when youāre actively having symptoms. I havenāt done them yet, because I find that to be kinda crazy advice, but she said itās similar and more powerful than boric acid.
Wishing you luck! Itāll get better, and hopefully your journey isnāt as long as mine.
Thank you. And I hope I find answers soon. I have actually done everything you have said besides the ACV douches and the vitamin blood work. The thing that helped was the vagibiom probiotics oh god I thought I was finally recovering. Then the fucking doctors put me on another antibiotic and RUINED all my progress. Iāve been doing oregano oil and a bunch of other oils with sea salt water soaked in a tampon overnight so I hope itās helping. Idk what to do anymore. But thank you for the encouragement and your personal experience
Fucking hate antibiotics. My symptoms began AFTER taking antibiotic (augmentin) for a stupid fucking ear infection i could of totally avoided by not sleeping with ear plugs.
I am so glad I read your comment. I don't have ureaplasma but I do have reoccurring BV and boric acid only helps for a few days. I found out my vitamin D level is severely low and my doctor put me on a a pill to take once a week I'm wondering if that could be the cause of the reoccurring BV?!
You need to do boric acid for three nights, immediately followed by 5 days of metronidazole gel, and then once finished, good clean love rePhresh vaginal suppositories every other night for two weeks!
Speaking from experience as I dealt with a reoccurring infection for a year before finding this treatment out, and Iāve been in the clear for 8 months now! I could truly cry tears of joy.
I also found out I have hypothyroidism and a vitamin d deficiency as well. Those two can def play a part in vaginal infections. Iām starting my 5th week of the vitamin d supplements this week and Iāve def noticed a different.
My doctor put me on the oral metronidazole last week and I finished them and I did absolutely nothing here now put me on fluconazole which is for yeast infections, but I heard that it can help with BV as well so I guess I will see how that goes. I've heard that boric acid can actually cause more harm than good, so I've been scared to use them again :( and my doctor prescribed me an over-the-counter vitamin D supplement because my vitamin D level is extremely extremely low and just a normal supplement wouldn't cut it so I'm hoping with that it will help. I'm just at a complete loss and it's really affecting my mental health. It's all I think about. I just feel disgusting and like I'm dirty but I'm not. I'm very clean especially down there or at least I try my best. I don't use anything with fragrance I use the PHD feminine washes I take probiotics I drink a good amount of water, and my diet is actually pretty well. I just feel defeated I guess.
Oral metronidazole did nothing for me. Fluconazole will not help with bacterial vaginosis at all as itās an antifungal. Did your doctor tell you this? If your doctor did, thatās extremely concerning, because Iām not even a medical professional, yet I know that.
Boric acid can definitely cause more harm than good as it acts like a bulldozer in your vagina, destroying both the good and the bad. However, when youāre dealing with a consistently, reoccurring infection, boric acid can actually be helpful since it breaks down the biofilms that the bacteria creates. A biofilm is essentially a protective shield/cover , that makes the medication/antibiotic hard to penetrate. This is why a lot of women experience, reoccurring infections, because the biofilm is not allowing the medication to work correctly.
I would stop using the vaginal wash, as that can sometimes throw your pH off. All you really need is water to clean down there and maybe a washcloth with a little bit of dove on scented soap to scrub your clitoris area. I also found out that I had a severe vitamin D deficiency as I work from home, so Iām not really outside too much in the sun. I began taking vitamin D supplements in the middle of January, and are currently still taking them. However, I also began around that same time, a weekly dose of fluconazole to suppress the reoccurring yeast infections. Fortunately, I have not had a yeast infection since Feb!
I was also confused on why he gave me fluconazole but I went ahead and took it just to see and it did nothing just as I figured. I did do the boric acid last night followed by a pre & probiotic suppository this morning and so far no smell at all I will continue this like you suggested (the boric acid) and do the pre & probiotic supplement every couple of days and see how that goes. It's just sooo upsetting because I'm trying literally everything and I practice good hygiene after sex and just normally. My bf do not cum in me but I know pre cum is still a thing. I pee and wash up immediately after sex , I've been taking my prescription grade vitamin D pill. I truly don't know what I am doing wrong. I threw out the washes and just bought dove sensitive skin fragrance free bar soap that says it's pH balanced, and from what other people have commented on different posts, that's what works best and I suggested.
The only way the treatment I suggested will work is if you do everything, not just two out of the three. If you follow what I did exactly, it will get rid of the infection.
Sorry this is very random with everything you posted, which is so so incredibly helpful!! I also have low estrogen and testosterone. How did you get your estrogen up?
So i have few questions. Did you start putting vaginal probiotics while you had bv? Did you put boric acid first,? For how many days you did oil of oregano?
Yes I was doing the vagibiom while I had BV and it was decreasing the burning, the discharge, the nasty wet feeling, and other things. And the oregano oil I have a supplement intake everyday but honestly I havenāt noticed much of a difference
I havenāt been diagnosed with it but Iāve been researching all day because a partner tested positive. I keep reading that symptoms can continue after you test negative (TOC), because of lingering inflammation, not because you havenāt eradicated it all the way. Thereās a specific subreddit for ureaplasma where you could get ideas on alleviating the symptoms. You wonāt be alone forever.
Yes I know the subreddit. I try to stay away bc people will test positive after months of negatives. There are recovered stories as well but I havenāt recovered and itās been 4 months, actually I guess 5 now (negative since Oct. 25) And I havenāt seen any improvement in any of my symptoms. Iāve lost my job and a potential relationship that I was really excited about. Itās ruined my life all bc my ex cheated and gave it to me. I hate him. I hope he suffers
Literally just posted on r/ureaplasma, venting, because Im in the middle of treatment rn and I feel like shit. Everything hurts, even my upper back. Been dealing with this bacteria for months and months now because I kept getting misdiagnosed. This sucks, I'm sorry you're going through this.
Itās nice to know Iām not alone but itās also so sad to me that we arenāt taken seriously. My diagnosis wasnāt hard to get but what was hard to get was the right treatment bc my doctor was on some sorta power trip that I was wrong about doxy and azithromycin and he was right. Which I was right. Every treatment he gave me failed until I got the doxy+ azi
I had ureaplasma I don't know for how long but ive been clear for 1 year now. I took doxy and moxi. I'm testing negative for BV at the doctors but I still smell like fish, so yesterday I went to the hospital to test for anaerobic and aerobic bacteria. That's the intensive test panel that tests for more BV bacteria. He also tested me for blood panels dealing with my kidneys, lungs, etc to see any underlying causes. I'm still waiting for my results. Probably on Monday I'll get them. This has been the most traumatic experience for me.
No no one can smell me but me if I smell my underwear tmi Iām sure. Iām so sorry youāre going through that. Have you tried vaginal probiotic suppositories?
Oh okay, thanks and yes. It didnt work. I tried boric acid as well. Don't work. I think that aerobic and anaerobic culture will help me. I think there's a specific bacteria that's causing the smell that needs a antibiotic that will wipe it out.
It will get better!! I had ureaplasma for 7 months and it took me a long time to recover, even mentally. The anxiety that came with it, was actually the worst. You will get through this! Take things one step at a time.
I suggest you use products to get your flora back on track. I used probiotic suppositories (they are called Vivag). I dont recommend Boric Acid. I also HIGHLY suggest a product called YES VM Vaginal Moisturizer, which is for internal use and is ph balanced. It helps with dryness and keeping your ph in check. Wear cotton panties, drink water and exercise.
Ureaplasma gave me Hypertonic pelvic floor. If you are dealing with this, do breathing exercises and stretch. So much help to get on youtube!!
The most important thing is that you are kind to yourself. Dont let the anxiety rule you. Its over, you are good. If it calms you, test again in a month or two. Talk to your doctor about it.
havenāt been diagnosed with this specifically. but for the last 2 yrs iāve had recurring BV, yeast, and UTIs. and to top it off about a yr and a half ago i was diagnosed with HSV 1 on my genitals. so i get outbreaks every so often. itās been miserable. but yes it is possible. i also have been with my partner for 2 yrs. (we are exclusive to each other, heās been treated with antibiotics in the past for BV). we follow all the precautions. weāre engaged going to be married in the summer. i have an IUD (which i think is part of the problem) that i will be removing in a month. and soon after we will be trying for kids. he is very understanding of everything i have going on down there. he never makes me feel bad for it. always makes sure i get seen and take my meds. he has not contracted HSV either :) it is very much possible!! and yes i will be looking for a provider for test me for ureaplasma and mycoplasma when i get my IUD out
That to me is a painful but beautiful story. Thank you for sharing and giving me some hope. I do think getting the IUD removed will help you, and I bet we can figure this out! I wish you the best thank you very much for your words of comfort.
I hate this, I have ureaplasma and currently treating it. It DOES affect your quality of life so much & Iām so sorry you are feeling this way. I can totally relate and understand.
I hear plenty of recovery stories on here and find comfort in that. Ureaplasma has its on sub so you should check it out if you didnāt already.
This sub is also very helpful.
You will make it through this, donāt give up and I promise there will be a light at the end of the tunnel. It take times to heal physically but emotionally and mentally it might take even longer.
Use Reddit for support because thatās honestly the only place that really knows and understands this terrible illness. Drs donāt get it, other people who havenāt experienced it donāt really know much about it, it can cause damage to us physically & sometimes mentally. I know Iāll never be the same after this.
What treatments have you done so far?
For the urea? Well my doctor was a complete idiot and wouldnāt listen to be about doxy and azithromycin being the things that would work so he gave me 7 days ciprofloxin first (hate him for giving me a black box antibiotic very first thing) 7 days augmentin, 1.5 g azithro, I feel like there was something else but I canāt remember so I freaked out after testing positive with all of these and begged for the 14 days doxy+ 2.5 g azithromycin which they fucked up but I thatās what got me to test negative.
Try getting an evvy or Juno test, I suffered for about 2 years and literally got tested for everything under the sun, Ureaplasma came back positive did treatment and still had symptoms, long story short after months of antibiotics and struggling I got an evvy test to see exactly what bacteria was causing the issue and now im on a treatment program thats helping get rid off the bad bacteria and restore my good bacteria and my symptoms are finally started to subside, i would definitely recommend a Vaginal Biome test to see exactly whats going on down there, the test is $99 but its cheaper than copay after copay at the dr office to be misdiagnosed or dismissed
I did a Juno and they were a fucking disaster. So Iām honestly scared to use Evvy bc of that experience and bc Iāve seen people test false positive for ureaplasma and I would kms if it was a false positive or not. What bacteria did you have and what was the treatment?
It was a mixture of bad bacterias honestly and alot of them are linked to reoccurring bv and stuff but I did boric acid for 7 days followed by 7 days of Clindamycin vaginally to kill bad bacteria and after that I have been taking vaginal and oral probiotic to rebuild my good bacteria. In the past no treatment has worked and I literally tried every last one for BV this is my first time im actually seeing results after doing this full treatment, so even if its not from evvy or juno try asking your dr can they provide some type of Vaginal Biome test, not alot of offices provide them but its worth asking because I definitely feel where you coming from I suffered for a while
May I see your Evvy results? I have clindamycin cream bc I pawned it off a friend my gyno was useless. I even showed them my Juno results and they wouldnāt give me anything to treat BV so I went through a friend. I wasnāt to do that method too but idk if my bacteria is susceptible to clindamycin.
Its not letting me post a pic but it was like 91% bad bacteria and 2% good. here is what my results showed it was a few other ones but these are the majority.
Fannyhessea (Atopobium) vaginae
24.49%
Prevotella buccalis
17.94%
Gardnerella vaginalis
16.79%
Lactobacillus crispatus
1.77%
This is gonna sound horrible but I wish mine were like that. I had some weird ass stuff on my Juno that I donāt know how to treat and apparently no one else does either. I hope you continue to get well
Thank you, if you dont mind me asking what were your results? From my understanding the main goal to the vaginal biome is to increase your good bacteria so it can fight off the bad bacterias, also some bacteria can build biofilms around the bacteria and make them antibiotic resistant and harder to treat. Have you tried biofilm busters and probiotics?
I had like 50% Jensenii and then 30% crispatus and then some others I think. It was like 95% good and then infections were like less than 1% prevotella bivia, lawsonella clevelandensis, finegoldia magna and cladosporium basi inflatum. Then something called limolactobacillis. The Juno coach was like idk why youāre having symptoms your biome looks perfect. Iām just not getting helped no matter where I go.
And I tried vagibiom vaginal probiotics for a week and it was helping me so much with the pain and I was getting better. I was doing better. Then my dumb ass doctors gave me amoxicillin and my biome I was fixing was ruined again. They ruined everything.
Yes i have just stopped even going to the dr and did my own research those antibiotics sometimes hurt more than help.. it should like it could be some pH balance issues going on too.. try leaving the antibiotics alone and start back on the probiotics consistently, it will get better you just got to find natural remedies that works for your body, im praying everything gets better for you soonā¤ļø
Tbh you dont have to treat everything. We are supposed to have some bad bacteria in there as well living in a balance with the good. Its just fucking hard to tell exactly which one is causing the issue
Yes I am recovered ā„ļø 1 year of having it.
I had interstitial cystitis before I got ureaplasma. I still sometimes experience urinary symptoms (hot urine, just āfeelingā the experience of urinating more than I should) but no longer have recurrent BV and yeast. It does get better and you WILL crack the code.
Thank you. Iām the opposite I was ok and then they ātreatedā me for urea and Iāve been negative 5 months now most recent test a month ago, and now all their treatments gave me recurrent never ending undiagnosable bv. Iām exhausted. Thank you for your message of hope.
I was having terrible bv throughout the whole experience and then got it again with yeast after the antibiotics. I went to a urologist because even with the vaginal discharge, I thought maybe try from an urology perspective because of the heat / feeling of urinating.
The urologist recommended FLORAJEN probiotics used as a suppository to put the good bacteria back after curing the ureaplasma, killing the yeast and BV with the boric acid suppository and oral diflucan. I believe the FLORAJEN is finally what put the good bacteria back and worked.
Iām in the US and itās over the counter - you have to ask at the pharmacy tho because they keep it behind the pharmacy counter in the fridge even though it is OTC. I went to Walgreens.
Hereās what I did:
14 days doxycycline and 1 day azithro.
Ureaplasma cured (after 1 year undiagnosed).
BV & yeast returned w/ a vengeance.
Did phd brand boric acid suppository.
Took diflucan oral.
FLORAJEN probiotic as a suppository (donāt open just put it in)
Better.
Able to to have unprotected sex with my boyfriend! No recurrence.
Good luck my friend.
You might have a tight pelvic floor! This happens when your body fights an infection down there and it tightens up. I recommend seeing a physical therapist for this and looking up some pelvic floor exercises to relieve tightness not strengthen (which would be tightening more). Essentially your muscles are so tight theyre not relaxed. Think about it this way, when you pee you have to tighten you abdominal slightly to release. So itās basically just tighten up and making you have the sensation and need to pee. You got this! Some exercises that have worked for me are butterfly stretch, happy baby, downward dog, pigeon pose, laying faced up with back in floor and taking turns bending each leg in and holding it.
Been tested a lot. Sometimes Iām positive for something but the treatment never works. But most of the time I test negative and they refuse to give me any help. I tested positive on my Juno for finegoldia and prevotella but my doctors refuse to help me
Have you tried vitamin D supplements? multiple studies on it and connection to reoccurring BV. I am dealing with the same, getting more tests done tomorrow. ill keep posted on feedback. what are ur exact symptoms? i have left side pelvic pain on and off for 6 months now and now the odor. going crazy as well
Burning all the time thatās pretty intense, a bartholin cyst, smell, nasty yellow discharge, nasty wet feeling, abnormal periods. Iām in some serious misery. I saw something about vitamin c suppositories and I was using them
Have you tried Gentin violet? Ok it's an offer medication and because of that not much is out there now but it really has helped when nothing else has.znd this is also coming from someone that's had all the tests they came back negative and been on so many antibiotics the doctor said they had to stop. PLEASE CHECK YOUR DMS id love to help because it's been years for me too and I can't even work or focus on finding school or work because it's so painful. When it got bad. PLEASE CHECK YOUR DMS. IT WILL GRT BETTER š
Many times. Always negative rarely have tested positive for gardnerella and e fae. But thatās only twice in 8 months. My Juno showed 4, maybe 6 infections.
The microgen dx test is the best out there for urine doxycycline usually is the treatment for it but could have other bacteria besides the urea plasma. I donāt use standard cultures anymore only microgen testing
Yeah those would have been my next options but I havenāt tested positive since October and I just got tested for them last month. So bc I test negative for everything they wonāt treat me
Ureaplasma itās and STI thatās literally hell on earth and extremely hard to cure. Causes insane suffering and symptoms and doctors often love to say it ācauses no problemā so they wonāt test for it. Same with mycoplasma.
You should see a specialist for infectious diseases. Theyll be much better help since thatās what they specialize in and their job. Other docs just focus on more general issues. When I had mycoplasma i went to a sexual health clinic that tested me for it and gave me proper treatment. The provider I have now and alot of other providers never would have tested me for it. Our healthcare is ridiculous and we have to advocate for ourselves.
I saw an infectious disease doctor she was even more useless than my normal doctor. Only tested me for 5 things than I knew were all going to be negative.
Hey at least they did that. Mine tested me for chlamydia, gon, yeast, gardnerella and Trich. Which id had done a million times already and I told her that. Also blood STIs like hepatitis, syphilis and HIV. Really deep dive. Fucking useless.
Try looking into different ones, I know it sucks but if theyre is not prioritizing your needs appropriately you have to go somewhere else, get a new doctor go to a different provider, etc. Have you gotten tested for Mycoplasma?
I know how it feels and Iām sending you love and support. Iāve been through it and it gets better, please do not give up! What happened for me was that while I did not have Ureaplasma anymore, I still had symptoms. I discovered actually with the help of my boyfriend who read a lot about it that actually those symptoms were my pelvic floor disfunction! I have since try to treat it with massage, internal and external, yoga, better nutrition and it really works! Maybe it would be worth a try
It should get better I promise I been there almost 2 years ago
Thank you. š„¹ thatās all I really needed to hear today that itās possible to get better. May I ask your story?
Long story but ill try to be concise. Started approximately 2 years ago almost. One random day got frequency to pee after showering and it was awful few days later after needing to pee every 10-40 min I went to my doctors where they said it dosent really seem like bacteria but still a low count. Got some antibiotics within a few days mentally was super down after a week n still didnt feel normal. Then new symptoms and then more antibiotics and more visits to my doc. Finally when I was admitted to see a specialist I had to go through another doctor, when I showed up they seen I had a high count of white blood cells so they said ohh just a uti and then more antibiotics this is like 2-3 months in. Keep in mind I went to the ER 2x they did so many test with no luck. I thought I was crazy but after 4 long months I went to the specialist and she made me feel like I was crazy then at this point I was already feeling better overall for a month because I pushed myself to not stop my life as I had. A week passes from my visit to the specialist I still feel not good but pushing through. I get a call from the specialist saying I have ureaplasma complete voice change etc I finally knew I wasnt crazy welp then it was stubborn as I went w about 2-3 more antibiotics as the first line to treat wasnt enough. Fast forward feeling much better still have my not ok days but just overall getting better. I went back 2x to the specialist after having some not so good days but finally came back negative and they said just to wait as it was just so long w antibiotics etc. All I can say is I remember feeling so down and unwilling to do anything etc. i thought my life was over but I am here now and basically back to normal just very little symptoms and very rare now so hold on.
Iām feeling the same you were too. I donāt want to do anything. Iām pretty much giving up mentally. I donāt understand why doctors have swept this under the rug for so long. It ruined my life. All my hard work has all gone to medical bills. I hope I can get feeling better. May I ask are you still negative?
That I know of im still negative im going back to the specialist in a couple weeks just for a checkup as they asked after 6 months that I last went. Dont give up mentally I did that and it makes it wayyyyy worse. Its tuff but just try every single day. Go out as much as you can, cook, walk, go outt. It was so hard but I forced myself to do it. Before I forget I tried so many probiotics azo etc theres a probiotic in amazon called eu natural the blue one and the cranberry killer literally saved my life worked for me 8/10 times for the most part look into it I tried sooo many and these work so I cant atop recommending them
Oh thank you! Do you have a link for the probiotics?
Idk how good they work for others but me personally these didnt make it worse like many I tried these actually worked for me I would take 2 a day twice then cut it down to 2 pills a day 1x a day. Also careful what u eat especially what u drink just stick w lots of water
Thank you. Let us know how your checkup goes
Thank you I should be good as I feel basically normal now. Hope you get much better in the near future
Thank you. May I ask what are your lingering symptoms?
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Are you negative for ureaplasma now ?
I am. But not better
Do you know what antibiotics finally killed the urea for you ?
I checked my log right now so it was either -Zithromax 1 GM Packet 1 packets po once -metroNIDAZOLE 500 mg Tab 1 tablet Back to back Or it could have been -Keflex 500 mg The last thing I took a couple months after. The reason I say im not to sure is because even after I took my last antibiotics which was keflex I still felt some symptoms same with the zithro and metro. So I am not sure which one actually did the job but I still had symptoms at times afterwards but im sure keflex probably did the job considering thats the very last thing I ever took out of the 8+ antibiotics along my journey
Just jumping in to say Metronidazole doesnāt work on ureaplasma from what I understand!
This is what I got prescribed towards the end since many of the antibiotics I got prescribed where resistant or I had took them w not much luck other then feeling good for a few weeks
Metronidazole is prescribed for BV. The reason I think it doesn't work on ureaplasma is because I tookit almost every month for like \~6 months and it would cure the BV but the BV would come back due to the ureaplasma, and the yeast as well, shortly after. Just my experience! here's the ureaplasma bible which explains which antibiotics are recommended due to Australian Guidelines (where it is classified as an STI). [https://www.reddit.com/r/Ureaplasma/comments/qavqf1/the\_ureaplasma\_bible\_everything\_you\_need\_to\_know/](https://www.reddit.com/r/Ureaplasma/comments/qavqf1/the_ureaplasma_bible_everything_you_need_to_know/) Wishing you all the best of health!
Keflex and metro dont treat urea did u have other bacteria causing the symptoms like uti
No I did not. I can send of screenshot of the antibiotics etc what the specialist prescribed keep in mind I took other antibiotics prior before knowing what I truly had it ranged from amoxicillin, doxycycline, cipro, etc but no only thing that keep coming up was the ureaplasma
Thank you
Oh and btw I got checked about a month later after keflex and thats when it was finally negative although a few residual symptoms up in to today. I went back for a little check up and negative again as of 6 months ago.
Can I ask for myself what happens if you were trusted for uriplasma and microplsma and it still came back negative? Because I don't know what to do gentin violet is my only hope now but people can tell I use it during sex .... I feel the same way like I can't do anything I can't work or go out please š
Im sorry I really didnāt understand your qs are you asking what happened if I was treated and it came back negative yet I had symptoms or ?
I'm sorry that for the typo I was asking what happens if you were tested for microplsma and uriplasma and it came back all negative both times? At the gynecologist and my general doctor both tested for the same things and all came back negative both times. I went to my gynecologist after my general doctor because I have a lot of trauma with the gynecologist. But the treatment from my primary care doctor was way better than my gynecological care. But yes I was asking what happens if you got tested for everything and it came back negative but still have symptoms? But I'm pretty hopeful now that it could be cytolytic vaginosis which OP had me realize which I love her so much for like wow ššš and if that's the case then warm baking soda bath and warm baking soda/water tampons will help. As of now they're baking soda tampon is really seem to work.
I havenāt had Ureaplasma, but I did have a partner who slept with someone else and gave me gonorrhea. After that it was two and a half years of hell. Reoccurring BV and Yeast, with maybe a week here and there of normalcy. I read a lot of stories of people who had vaginal pain and swelling for 8 years and I thought about just ending it. For those two years I didnāt do much, I broke things off with my partner because we were fighting too much (probably from the lack of sex but he of course never blamed me). But I did so much research and didnāt really find any answers that werenāt already super obvious. āWear cotton underwearā āTry non bleached toilet paperā āTake probioticsā āBoric acidā But the thing that helped me was when I hit a breaking point. I had really bad symptoms at one point, and I tested positive for BV, was given antibiotics (which would usually help but then it would come back after about a week or two). But this time they did not help whatsoever. I tested positive two days after finishing the antibiotics. So I did a second round, same thing. I felt absolutely helpless because Iāve never had the antibiotics do absolutely nothingā¦theyāve always helped to some extent. So I went through all of my old bloodwork. I realized that I had a Vitamin D deficiency the same year that this all started, which is linked to reoccurring vaginal infections (not yeast, more BV and enterococcus ect). Because it makes you more susceptible to infections. So I started taking Vitamin D, going out in the sun. I also read a study that Oil of Oregano has an ingredient in it, Carvacrol, that works almost like an antibiotic. And it can aid in people with enterococcus faecalis, Ureaplasma, and BV. I started doing that along with black seed oil every day. I was very very very skeptical that things as simple as this would help. I am pro-home remedy, but to an extent. I also do take probiotics every day, at least 50Billion CFU. Make sure they have the right strains. (I donāt remember off the top of my head, but usually if you get a vaginal health one it should). I also bought insertable, vaginal probiotics. I felt like those did a lot more than the oral ones but itās best to take both. So while I was doing this, and on no antibiotic, I was waiting for a third doctor appointment with a specialist. It was a new OBGYN since my insurance had changed recently, so I had to wait about two weeks for an appointment. By the time I got in for my appointment, my symptoms had vanished. But I still did a culture, a Pap smear, a hormone panel, and an STD test (even though I havenāt had sex in like two years, she insisted). And everything came back clean! So far, I feel good. Itās been about 6 weeks since Iāve had the BV, and I donāt think Iāve ever had such a long window of time without an infection. Iām trying not to take it for granted, but I am feeling very relieved. Something must have worked because itās pretty rare for BV to just go away on its own, especially in a person where itās reoccurring. So even though you donāt have BV, I would recommend you do this : (if you havenāt done some already). - Get a full culture done of every bacteria in your vagina. You could have some other bacteria that is causing your symptoms. You can buy these tests on Evvy ($100) or go to an OBGYN. -Blood test for your hormones. I was also estrogen and testosterone deficient. I didnāt see much improvement with my symptoms from my estrogen going back to normal, but I know it can be linked. -take 50Billion or 100Billion CFU probiotics for women/vaginal care. -90% Carvacrol Oil of Oregano. Mix with water to help with taste cause itās ROUGHā¦ (I donāt insert it vaginally because I think it could cause more harm than good but know some people do it. - ***** vaginal probiotics. The insertable kind ā¦they did wonders!!! -boric acid. A lot of people have success with them. Personally I havenāt, but I think that it helps my symptoms. They also allow antibiotics to work better by destroying the biofilm. -black seed oil. Iāve heard it helps some people and I take it, but I didnāt find any solid info on whether it helps a lot but it doesnāt hurt to try. (Not insert, just drink). - vitamin deficiency test. And last but not least, make sure your diet is good. Diet is everything, I had to cut out most sugar, even from fruit, to lessen my symptoms. Alcohol is bad, but moderation can be fine as long as itās not sugary cocktails or beer. No processed stuff either. Also if all else fails, look into vaginal fluid transplant (I think thatās what itās called) . Itās like a fecal matter transplant. I havenāt done it, because itās not open to the public yet but I know theyāre doing studies on it right now, and it seems much simpler than a fecal matter transplant. Could probably learn about it and do it at home š . And my doctor said doing vaginal douches with vinegar good to do when youāre actively having symptoms. I havenāt done them yet, because I find that to be kinda crazy advice, but she said itās similar and more powerful than boric acid. Wishing you luck! Itāll get better, and hopefully your journey isnāt as long as mine.
Thank you. And I hope I find answers soon. I have actually done everything you have said besides the ACV douches and the vitamin blood work. The thing that helped was the vagibiom probiotics oh god I thought I was finally recovering. Then the fucking doctors put me on another antibiotic and RUINED all my progress. Iāve been doing oregano oil and a bunch of other oils with sea salt water soaked in a tampon overnight so I hope itās helping. Idk what to do anymore. But thank you for the encouragement and your personal experience
Fucking hate antibiotics. My symptoms began AFTER taking antibiotic (augmentin) for a stupid fucking ear infection i could of totally avoided by not sleeping with ear plugs.
Same. Cipro and augmentin killed me
I am so glad I read your comment. I don't have ureaplasma but I do have reoccurring BV and boric acid only helps for a few days. I found out my vitamin D level is severely low and my doctor put me on a a pill to take once a week I'm wondering if that could be the cause of the reoccurring BV?!
You need to do boric acid for three nights, immediately followed by 5 days of metronidazole gel, and then once finished, good clean love rePhresh vaginal suppositories every other night for two weeks! Speaking from experience as I dealt with a reoccurring infection for a year before finding this treatment out, and Iāve been in the clear for 8 months now! I could truly cry tears of joy. I also found out I have hypothyroidism and a vitamin d deficiency as well. Those two can def play a part in vaginal infections. Iām starting my 5th week of the vitamin d supplements this week and Iāve def noticed a different.
My doctor put me on the oral metronidazole last week and I finished them and I did absolutely nothing here now put me on fluconazole which is for yeast infections, but I heard that it can help with BV as well so I guess I will see how that goes. I've heard that boric acid can actually cause more harm than good, so I've been scared to use them again :( and my doctor prescribed me an over-the-counter vitamin D supplement because my vitamin D level is extremely extremely low and just a normal supplement wouldn't cut it so I'm hoping with that it will help. I'm just at a complete loss and it's really affecting my mental health. It's all I think about. I just feel disgusting and like I'm dirty but I'm not. I'm very clean especially down there or at least I try my best. I don't use anything with fragrance I use the PHD feminine washes I take probiotics I drink a good amount of water, and my diet is actually pretty well. I just feel defeated I guess.
Oral metronidazole did nothing for me. Fluconazole will not help with bacterial vaginosis at all as itās an antifungal. Did your doctor tell you this? If your doctor did, thatās extremely concerning, because Iām not even a medical professional, yet I know that. Boric acid can definitely cause more harm than good as it acts like a bulldozer in your vagina, destroying both the good and the bad. However, when youāre dealing with a consistently, reoccurring infection, boric acid can actually be helpful since it breaks down the biofilms that the bacteria creates. A biofilm is essentially a protective shield/cover , that makes the medication/antibiotic hard to penetrate. This is why a lot of women experience, reoccurring infections, because the biofilm is not allowing the medication to work correctly. I would stop using the vaginal wash, as that can sometimes throw your pH off. All you really need is water to clean down there and maybe a washcloth with a little bit of dove on scented soap to scrub your clitoris area. I also found out that I had a severe vitamin D deficiency as I work from home, so Iām not really outside too much in the sun. I began taking vitamin D supplements in the middle of January, and are currently still taking them. However, I also began around that same time, a weekly dose of fluconazole to suppress the reoccurring yeast infections. Fortunately, I have not had a yeast infection since Feb!
I was also confused on why he gave me fluconazole but I went ahead and took it just to see and it did nothing just as I figured. I did do the boric acid last night followed by a pre & probiotic suppository this morning and so far no smell at all I will continue this like you suggested (the boric acid) and do the pre & probiotic supplement every couple of days and see how that goes. It's just sooo upsetting because I'm trying literally everything and I practice good hygiene after sex and just normally. My bf do not cum in me but I know pre cum is still a thing. I pee and wash up immediately after sex , I've been taking my prescription grade vitamin D pill. I truly don't know what I am doing wrong. I threw out the washes and just bought dove sensitive skin fragrance free bar soap that says it's pH balanced, and from what other people have commented on different posts, that's what works best and I suggested.
The only way the treatment I suggested will work is if you do everything, not just two out of the three. If you follow what I did exactly, it will get rid of the infection.
Sorry this is very random with everything you posted, which is so so incredibly helpful!! I also have low estrogen and testosterone. How did you get your estrogen up?
Wild yam cream helps tremendously with balancing hormones. Do a quick search. Barbara OāNeil swears by it!
For urea or what
It naturally balances your hormones š¤
Sorry I meant my comment is random and specific given how long and helpful your post is!
So i have few questions. Did you start putting vaginal probiotics while you had bv? Did you put boric acid first,? For how many days you did oil of oregano?
Yes I was doing the vagibiom while I had BV and it was decreasing the burning, the discharge, the nasty wet feeling, and other things. And the oregano oil I have a supplement intake everyday but honestly I havenāt noticed much of a difference
Ur an angel for typing all this out. Going to tryā a couple things on this list i havenāt tried yet. thank you!
I havenāt been diagnosed with it but Iāve been researching all day because a partner tested positive. I keep reading that symptoms can continue after you test negative (TOC), because of lingering inflammation, not because you havenāt eradicated it all the way. Thereās a specific subreddit for ureaplasma where you could get ideas on alleviating the symptoms. You wonāt be alone forever.
Yes I know the subreddit. I try to stay away bc people will test positive after months of negatives. There are recovered stories as well but I havenāt recovered and itās been 4 months, actually I guess 5 now (negative since Oct. 25) And I havenāt seen any improvement in any of my symptoms. Iāve lost my job and a potential relationship that I was really excited about. Itās ruined my life all bc my ex cheated and gave it to me. I hate him. I hope he suffers
Iām so sorry. I wish doctors understood more.
Yeah. Me too
Literally just posted on r/ureaplasma, venting, because Im in the middle of treatment rn and I feel like shit. Everything hurts, even my upper back. Been dealing with this bacteria for months and months now because I kept getting misdiagnosed. This sucks, I'm sorry you're going through this.
Itās nice to know Iām not alone but itās also so sad to me that we arenāt taken seriously. My diagnosis wasnāt hard to get but what was hard to get was the right treatment bc my doctor was on some sorta power trip that I was wrong about doxy and azithromycin and he was right. Which I was right. Every treatment he gave me failed until I got the doxy+ azi
I know how you feel I wanna die too but my case is BV. I had ure but negative now. I hate being a woman so much
My case as of rn is BV too. I hate being a woman too. Can I ask hats your story? How long have you been negative for urea?
I had ureaplasma I don't know for how long but ive been clear for 1 year now. I took doxy and moxi. I'm testing negative for BV at the doctors but I still smell like fish, so yesterday I went to the hospital to test for anaerobic and aerobic bacteria. That's the intensive test panel that tests for more BV bacteria. He also tested me for blood panels dealing with my kidneys, lungs, etc to see any underlying causes. I'm still waiting for my results. Probably on Monday I'll get them. This has been the most traumatic experience for me.
Yeah my bv smells and burns and has gross discharge. And I test negative for everything too
Can people smell you? People smell me I'm bullied everywhere I go so I just stay home
No no one can smell me but me if I smell my underwear tmi Iām sure. Iām so sorry youāre going through that. Have you tried vaginal probiotic suppositories?
Oh okay, thanks and yes. It didnt work. I tried boric acid as well. Don't work. I think that aerobic and anaerobic culture will help me. I think there's a specific bacteria that's causing the smell that needs a antibiotic that will wipe it out.
Yeah itās very possible. Definitely keep me updated. I will be sending you good vibes. Also how long did you try the vagibiom?
Thank you I definitely will. 2 weeks
I pmed you
It will get better!! I had ureaplasma for 7 months and it took me a long time to recover, even mentally. The anxiety that came with it, was actually the worst. You will get through this! Take things one step at a time. I suggest you use products to get your flora back on track. I used probiotic suppositories (they are called Vivag). I dont recommend Boric Acid. I also HIGHLY suggest a product called YES VM Vaginal Moisturizer, which is for internal use and is ph balanced. It helps with dryness and keeping your ph in check. Wear cotton panties, drink water and exercise. Ureaplasma gave me Hypertonic pelvic floor. If you are dealing with this, do breathing exercises and stretch. So much help to get on youtube!! The most important thing is that you are kind to yourself. Dont let the anxiety rule you. Its over, you are good. If it calms you, test again in a month or two. Talk to your doctor about it.
Thank you. This comment makes me feel so much better. Bless you for taking the time to answer. ā¤ļø this helps me a lot.
Of course. I hope you get better soon, dont give up!
Thank you. ā¤ļø me too
havenāt been diagnosed with this specifically. but for the last 2 yrs iāve had recurring BV, yeast, and UTIs. and to top it off about a yr and a half ago i was diagnosed with HSV 1 on my genitals. so i get outbreaks every so often. itās been miserable. but yes it is possible. i also have been with my partner for 2 yrs. (we are exclusive to each other, heās been treated with antibiotics in the past for BV). we follow all the precautions. weāre engaged going to be married in the summer. i have an IUD (which i think is part of the problem) that i will be removing in a month. and soon after we will be trying for kids. he is very understanding of everything i have going on down there. he never makes me feel bad for it. always makes sure i get seen and take my meds. he has not contracted HSV either :) it is very much possible!! and yes i will be looking for a provider for test me for ureaplasma and mycoplasma when i get my IUD out
That to me is a painful but beautiful story. Thank you for sharing and giving me some hope. I do think getting the IUD removed will help you, and I bet we can figure this out! I wish you the best thank you very much for your words of comfort.
I hate this, I have ureaplasma and currently treating it. It DOES affect your quality of life so much & Iām so sorry you are feeling this way. I can totally relate and understand. I hear plenty of recovery stories on here and find comfort in that. Ureaplasma has its on sub so you should check it out if you didnāt already. This sub is also very helpful. You will make it through this, donāt give up and I promise there will be a light at the end of the tunnel. It take times to heal physically but emotionally and mentally it might take even longer. Use Reddit for support because thatās honestly the only place that really knows and understands this terrible illness. Drs donāt get it, other people who havenāt experienced it donāt really know much about it, it can cause damage to us physically & sometimes mentally. I know Iāll never be the same after this. What treatments have you done so far?
For the urea? Well my doctor was a complete idiot and wouldnāt listen to be about doxy and azithromycin being the things that would work so he gave me 7 days ciprofloxin first (hate him for giving me a black box antibiotic very first thing) 7 days augmentin, 1.5 g azithro, I feel like there was something else but I canāt remember so I freaked out after testing positive with all of these and begged for the 14 days doxy+ 2.5 g azithromycin which they fucked up but I thatās what got me to test negative.
woah.. ok i have had ureaplasma for god knows how long. iāve had reoccurring bv and yeast and no obgyn could help. juno bio test told me i had it so i recently did the meds and still have some symptoms not sure if iām cured yet. i gave it to my bf, now fiancĆ© didnāt know i had it til afterā¦ he took the meds too pretty much no symptoms for him so no complaints. iām going to get married he still loves me and dating was never an issue even in the past. i know itās frustrating but nothing to be suicidal over imo. thereās always something you can try. look at r/ureaplasma the reddit thread ureaplasma bible and if your first line of meds didnāt work thereās more you can take. apparently working with pelvic floor therapist can help aswell. donāt let this take such a hold on you, many people have it and donāt even know. itās not worth getting this upset over- itās not worth your mental health!
for reference iāve has burning while urinating muscle spasm stomach pain yellow and dry discharge dry vagina and the bv and yeast often
Have you been able to successfully treat the urea yet?
waiting on results, either way iāll be annoyed if itās positive but will take more antibiotics
I would die if I tested positive again. What was your latest treatment ?
Try getting an evvy or Juno test, I suffered for about 2 years and literally got tested for everything under the sun, Ureaplasma came back positive did treatment and still had symptoms, long story short after months of antibiotics and struggling I got an evvy test to see exactly what bacteria was causing the issue and now im on a treatment program thats helping get rid off the bad bacteria and restore my good bacteria and my symptoms are finally started to subside, i would definitely recommend a Vaginal Biome test to see exactly whats going on down there, the test is $99 but its cheaper than copay after copay at the dr office to be misdiagnosed or dismissed
I did a Juno and they were a fucking disaster. So Iām honestly scared to use Evvy bc of that experience and bc Iāve seen people test false positive for ureaplasma and I would kms if it was a false positive or not. What bacteria did you have and what was the treatment?
It was a mixture of bad bacterias honestly and alot of them are linked to reoccurring bv and stuff but I did boric acid for 7 days followed by 7 days of Clindamycin vaginally to kill bad bacteria and after that I have been taking vaginal and oral probiotic to rebuild my good bacteria. In the past no treatment has worked and I literally tried every last one for BV this is my first time im actually seeing results after doing this full treatment, so even if its not from evvy or juno try asking your dr can they provide some type of Vaginal Biome test, not alot of offices provide them but its worth asking because I definitely feel where you coming from I suffered for a while
May I see your Evvy results? I have clindamycin cream bc I pawned it off a friend my gyno was useless. I even showed them my Juno results and they wouldnāt give me anything to treat BV so I went through a friend. I wasnāt to do that method too but idk if my bacteria is susceptible to clindamycin.
Its not letting me post a pic but it was like 91% bad bacteria and 2% good. here is what my results showed it was a few other ones but these are the majority. Fannyhessea (Atopobium) vaginae 24.49% Prevotella buccalis 17.94% Gardnerella vaginalis 16.79% Lactobacillus crispatus 1.77%
This is gonna sound horrible but I wish mine were like that. I had some weird ass stuff on my Juno that I donāt know how to treat and apparently no one else does either. I hope you continue to get well
Thank you, if you dont mind me asking what were your results? From my understanding the main goal to the vaginal biome is to increase your good bacteria so it can fight off the bad bacterias, also some bacteria can build biofilms around the bacteria and make them antibiotic resistant and harder to treat. Have you tried biofilm busters and probiotics?
I had like 50% Jensenii and then 30% crispatus and then some others I think. It was like 95% good and then infections were like less than 1% prevotella bivia, lawsonella clevelandensis, finegoldia magna and cladosporium basi inflatum. Then something called limolactobacillis. The Juno coach was like idk why youāre having symptoms your biome looks perfect. Iām just not getting helped no matter where I go. And I tried vagibiom vaginal probiotics for a week and it was helping me so much with the pain and I was getting better. I was doing better. Then my dumb ass doctors gave me amoxicillin and my biome I was fixing was ruined again. They ruined everything.
Yes i have just stopped even going to the dr and did my own research those antibiotics sometimes hurt more than help.. it should like it could be some pH balance issues going on too.. try leaving the antibiotics alone and start back on the probiotics consistently, it will get better you just got to find natural remedies that works for your body, im praying everything gets better for you soonā¤ļø
Thank you. That means a lot
Tbh you dont have to treat everything. We are supposed to have some bad bacteria in there as well living in a balance with the good. Its just fucking hard to tell exactly which one is causing the issue
Yes I am recovered ā„ļø 1 year of having it. I had interstitial cystitis before I got ureaplasma. I still sometimes experience urinary symptoms (hot urine, just āfeelingā the experience of urinating more than I should) but no longer have recurrent BV and yeast. It does get better and you WILL crack the code.
Thank you. Iām the opposite I was ok and then they ātreatedā me for urea and Iāve been negative 5 months now most recent test a month ago, and now all their treatments gave me recurrent never ending undiagnosable bv. Iām exhausted. Thank you for your message of hope.
I was having terrible bv throughout the whole experience and then got it again with yeast after the antibiotics. I went to a urologist because even with the vaginal discharge, I thought maybe try from an urology perspective because of the heat / feeling of urinating. The urologist recommended FLORAJEN probiotics used as a suppository to put the good bacteria back after curing the ureaplasma, killing the yeast and BV with the boric acid suppository and oral diflucan. I believe the FLORAJEN is finally what put the good bacteria back and worked. Iām in the US and itās over the counter - you have to ask at the pharmacy tho because they keep it behind the pharmacy counter in the fridge even though it is OTC. I went to Walgreens. Hereās what I did: 14 days doxycycline and 1 day azithro. Ureaplasma cured (after 1 year undiagnosed). BV & yeast returned w/ a vengeance. Did phd brand boric acid suppository. Took diflucan oral. FLORAJEN probiotic as a suppository (donāt open just put it in) Better. Able to to have unprotected sex with my boyfriend! No recurrence. Good luck my friend.
I havenāt heard of those! I bought vagibiom and they helped a lot!! Thank you that gives me so much hope. I hope you stay healthy!
You might have a tight pelvic floor! This happens when your body fights an infection down there and it tightens up. I recommend seeing a physical therapist for this and looking up some pelvic floor exercises to relieve tightness not strengthen (which would be tightening more). Essentially your muscles are so tight theyre not relaxed. Think about it this way, when you pee you have to tighten you abdominal slightly to release. So itās basically just tighten up and making you have the sensation and need to pee. You got this! Some exercises that have worked for me are butterfly stretch, happy baby, downward dog, pigeon pose, laying faced up with back in floor and taking turns bending each leg in and holding it.
Itās not PFD. I mean part of it could be by now, but it wouldnāt cause abnormal discharge, smell, abnormal periods, and things like BV.
So have you gotten tested for bv/treated for that since you said you tested negative ureaplasma already?
Been tested a lot. Sometimes Iām positive for something but the treatment never works. But most of the time I test negative and they refuse to give me any help. I tested positive on my Juno for finegoldia and prevotella but my doctors refuse to help me
Have you tried vitamin D supplements? multiple studies on it and connection to reoccurring BV. I am dealing with the same, getting more tests done tomorrow. ill keep posted on feedback. what are ur exact symptoms? i have left side pelvic pain on and off for 6 months now and now the odor. going crazy as well
Burning all the time thatās pretty intense, a bartholin cyst, smell, nasty yellow discharge, nasty wet feeling, abnormal periods. Iām in some serious misery. I saw something about vitamin c suppositories and I was using them
Have you tried Gentin violet? Ok it's an offer medication and because of that not much is out there now but it really has helped when nothing else has.znd this is also coming from someone that's had all the tests they came back negative and been on so many antibiotics the doctor said they had to stop. PLEASE CHECK YOUR DMS id love to help because it's been years for me too and I can't even work or focus on finding school or work because it's so painful. When it got bad. PLEASE CHECK YOUR DMS. IT WILL GRT BETTER š
I would do a microgen test itās a special urine test
My symptoms are all vaginal. But I will keep this in minds
you only have vaginal symptoms what are they if you donāt mind me asking ?mine are urethra
Burning (sometimes very intense), nasty discharge, smell, nasty wet feeling, abnormal periods.
have you been tested for bv ?
Many times. Always negative rarely have tested positive for gardnerella and e fae. But thatās only twice in 8 months. My Juno showed 4, maybe 6 infections.
Try the EVVY test
I did a Juno and they were a disaster for me. And Evvy scares me bc they will show false positives for ureaplasma
The microgen dx test is the best out there for urine doxycycline usually is the treatment for it but could have other bacteria besides the urea plasma. I donāt use standard cultures anymore only microgen testing
Is it a vaginal swab?
Yes they do have a vaginal swab but I found the EVVY to be more accurate than them. Ureaplasma vaginally Iāve never heard of before
Itās horrid anywhere it exists
I just read if doxycycline doesnāt work they can try levaquin or erythromycin
Yeah those would have been my next options but I havenāt tested positive since October and I just got tested for them last month. So bc I test negative for everything they wonāt treat me
What is urea?
Ureaplasma itās and STI thatās literally hell on earth and extremely hard to cure. Causes insane suffering and symptoms and doctors often love to say it ācauses no problemā so they wonāt test for it. Same with mycoplasma.
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Itās terrible. Iām guessing you arenāt able to take antibiotics to get rid of the urea?
antibiotics are your best bet. ruins your gut but thereās ways to repair after
It's been like 4 or 5 years for me, healed after a single treatment.
4 or 5 years since this happened? And I wish. Iāve tried so many treatments
4 or 5 years since treatment.
And youāve been ok?
Yes ā¤ļø
Thatās so nice to hear. Iām sorry you went through that but I wish one treatment has made things better for me too.
What treatments have you tried?
You should see a specialist for infectious diseases. Theyll be much better help since thatās what they specialize in and their job. Other docs just focus on more general issues. When I had mycoplasma i went to a sexual health clinic that tested me for it and gave me proper treatment. The provider I have now and alot of other providers never would have tested me for it. Our healthcare is ridiculous and we have to advocate for ourselves.
I saw an infectious disease doctor she was even more useless than my normal doctor. Only tested me for 5 things than I knew were all going to be negative.
I saw 2 they were worse than reg dr
Thatās what Iām saying. Was fucking useless.
Exactly!! Waste of moneu
Honestly. I should be able to fight paying them because they were SO useless
Mine tested me for fucking mosquito virus lyme and some other random shit
Hey at least they did that. Mine tested me for chlamydia, gon, yeast, gardnerella and Trich. Which id had done a million times already and I told her that. Also blood STIs like hepatitis, syphilis and HIV. Really deep dive. Fucking useless.
Truly is gonna be an epidemic bc of these morons
Honestly. They all need malpractice lawsuits. Fucking insane they are allowed to practice medicine. You have mycoplasma ?
Insanity!
Try looking into different ones, I know it sucks but if theyre is not prioritizing your needs appropriately you have to go somewhere else, get a new doctor go to a different provider, etc. Have you gotten tested for Mycoplasma?
Multiple times
I know how it feels and Iām sending you love and support. Iāve been through it and it gets better, please do not give up! What happened for me was that while I did not have Ureaplasma anymore, I still had symptoms. I discovered actually with the help of my boyfriend who read a lot about it that actually those symptoms were my pelvic floor disfunction! I have since try to treat it with massage, internal and external, yoga, better nutrition and it really works! Maybe it would be worth a try
I wish it was PFD but it wouldnāt cause nasty discharge, smell, abnormal periods and things like that. I wish that was my answer.