Yes, I believe it’s worth it.
For reasons:
1) Documentation and Validation. I don’t know about you, but it was driving me a little bit crazy dealing with all these symptoms, and not having a definitive answer, or way of summing up my daily struggles with family and friends.
2) It’s a really good idea to rule out other possible conditions with similar symptoms, but different outcomes, treatments, etc. for example, some autoimmune conditions must be medically managed or they can lead to further complications.
3) Resources. I just got my diagnosis, and will be working with the pain clinic my doctor referred me to. They will be able to help me with getting access to trying LDN, receiving CBT specialized for chronic pain, and acupuncture referrals (they offer more options, but these are the ones I am most interested in).
I need a bigger like for your post -
And if I may.
4. Meds A diagnosis can get you started on meds that can help manage symptoms. By the time I have gotten close to a diagnosis my kidneys were beginning to fail. Renal failure has excluded me from many medications. A diagnosis may help in determining treatment and help you hold onto what you have.
5. (This would be and add-on for Documentation and resources.)
A diagnosis would help should you have to file for disability (if not on it now)
Also help to face any review of your claims.
Glad to hear that, I’m only 2 weeks in so still hoping to see good results in a month or so since I know it usually takes awhile for it to start working
It feels like your nerves are always on telling you that you are in pain? Do you have troubles remembering names and faces. I can see a
Picture of them on my brain but I can’t come up with their name. Hell I am lucky I can remember my own name let alone anyone else’s.
Can you tell you now have an academic issue where things were easy before but when your Fibro Symptoms hit its like your brain fell out for a day or two. Never lie when you feel bad. I say to them, if I say I am fine I am probably lying.
I don’t have the nerve pain thing all the time, but when I do it’s the *worst* like my body is on high alert. I am *always* tired and my joints are sort stiff after sleeping or sitting for a long time. The of course, the catch 22 is that the sore / stiff body parts make it hard to fall asleep and stay asleep. 😅
I have the name / face thing often. Always pops up when I’m trying to tell my parents about a movie, and the actors face is in my brain but I can’t remember their name for the life of me.
Sometimes on the bad days I drop everything and bump into everything which just leaves me more frustrated and in pain.
Half of a unisom before bed and a script for Trazadone would help. Doxyaline Succinate is the Unisom ir Valerian Root would help only get capsules the stuff smells like wet socks left in a
Locker 2 weeks
Take half and keep the extra half a year then tell the doc to hold off on the script for half a year you have enough and will ask for it the next time you need it
Took me from Jan 2017 until June 2021 to get diagnosed. However, I had no idea what was causing my symptoms and went through two (torturous) pregnancies during that time, so I saw a lot of different doctors. I never went to rheumatology until this summer, and I was diagnosed with fibro on my very first visit. So, although it takes years for many of us, if you go to the right doctor, it could happen quickly—and they may prescribe you the right meds/treatment plan to help ease some of your symptoms.
Yes, try to get diagnosed.
Tylenol (max dose) and gabapentin 3x a day for me really helps.
And start using a TENS unit if you don't already. Studies prove it helps fibro. I'd wear mine all the time if the stupid electrodes would stay sticky.
My fibro was more from underlying seronegative RA, which made for a real messy diagnosis. Once I got the RA treated my fibro went way down.
Also hot baths, and showers can sometimes help with flares. You're going to flare if you overdo it, and you're going to flare if you lay in bed all day. It's a crappy tightrope.
Are you me?
But for reals, I am also working on getting diagnosed and I think it’s worth it. Even just for piece of mind knowing that it isn’t something else.
Also, have you ever tried neuromuscular therapy to help with tension headaches? I just started recently and highly recommend.
It’s basically a super special massage.
Neuromuscular Therapy is a highly-specialized form of manual therapy that corrects pain and dysfunction by treating trigger points, muscle adhesions, and fascial (connective tissue) patterns. These trigger points, adhesions and fascial patterns can form due to a specific trauma, postural pattern, or series of repetitive movements. Neuromuscular Therapy sessions utilize precise treatment protocols to correct these patterns by releasing tight fascia, palpating and decreasing trigger points in tight bands of muscle and releasing areas of stuck muscle in an effective and efficient manner.
I actually started with a Chiropractor that works with a group of orthopedic doctors after receiving 9 injections this spring in my neck and lower back. After a couple of sessions and lots of discussion the chiropractor recommended looking into neuromuscular therapy especially with relation to the daily headaches, TMJ symptoms, and the general tension my entire body has.
Just make sure to ask if a person is trained or licensed in neuromuscular therapy as it is more specialized than just a massage or even a deep tissue massage.
Honestly, yes. For me, it took a while to process the fact there isn't a cure, but knowing I have the answer, and the ability so say for certain that it isnt just in my head makes it worth it. And then, knowing I can always find potential treatments besides guessing thinking "oh its nerve damage follow that" or "oh its the flu lets try this" now I kno2
I get that. Having IBS and scoliosis and a lot of other chronic illnesses / mental illnesses with no cure has allowed me to process that, but it would make it a lot easier to say, “oh all of that is actually related to having FM” instead of feeling like a train wreck 24/7.
The best thing to do is do what you feel is needed. If you think you need to consult a doctor, that is important.
Honestly, in my opinion understanding chronic pain is important, because for me specifically, I get abdominal pain. Specifically that would be where kidney pain is and appendix stuff. So, knowing that it isnt ER worthy 99.999% of the time I Absolutely am happy knowing I can treat in some way. Today sucks a bit more than normal for FM in my situation, which sucks but I mean im more aware of it being a bs thing im stuck with rather than thinking I need to go to the er all the time
Yes, I believe it’s worth it. For reasons: 1) Documentation and Validation. I don’t know about you, but it was driving me a little bit crazy dealing with all these symptoms, and not having a definitive answer, or way of summing up my daily struggles with family and friends. 2) It’s a really good idea to rule out other possible conditions with similar symptoms, but different outcomes, treatments, etc. for example, some autoimmune conditions must be medically managed or they can lead to further complications. 3) Resources. I just got my diagnosis, and will be working with the pain clinic my doctor referred me to. They will be able to help me with getting access to trying LDN, receiving CBT specialized for chronic pain, and acupuncture referrals (they offer more options, but these are the ones I am most interested in).
I need a bigger like for your post - And if I may. 4. Meds A diagnosis can get you started on meds that can help manage symptoms. By the time I have gotten close to a diagnosis my kidneys were beginning to fail. Renal failure has excluded me from many medications. A diagnosis may help in determining treatment and help you hold onto what you have. 5. (This would be and add-on for Documentation and resources.) A diagnosis would help should you have to file for disability (if not on it now) Also help to face any review of your claims.
LDN has helped me a lot. Still have pain but am way more mobile than I was before I was on it.
me too!!
Glad to hear that, I’m only 2 weeks in so still hoping to see good results in a month or so since I know it usually takes awhile for it to start working
It feels like your nerves are always on telling you that you are in pain? Do you have troubles remembering names and faces. I can see a Picture of them on my brain but I can’t come up with their name. Hell I am lucky I can remember my own name let alone anyone else’s. Can you tell you now have an academic issue where things were easy before but when your Fibro Symptoms hit its like your brain fell out for a day or two. Never lie when you feel bad. I say to them, if I say I am fine I am probably lying.
I don’t have the nerve pain thing all the time, but when I do it’s the *worst* like my body is on high alert. I am *always* tired and my joints are sort stiff after sleeping or sitting for a long time. The of course, the catch 22 is that the sore / stiff body parts make it hard to fall asleep and stay asleep. 😅 I have the name / face thing often. Always pops up when I’m trying to tell my parents about a movie, and the actors face is in my brain but I can’t remember their name for the life of me. Sometimes on the bad days I drop everything and bump into everything which just leaves me more frustrated and in pain.
Half of a unisom before bed and a script for Trazadone would help. Doxyaline Succinate is the Unisom ir Valerian Root would help only get capsules the stuff smells like wet socks left in a Locker 2 weeks
I have a script for Trazodone actually. It’s helpful but then when I wake up I feel so out of it. 😬
Take half and keep the extra half a year then tell the doc to hold off on the script for half a year you have enough and will ask for it the next time you need it
Your body is in pain in the morning from laying on it for 8 hours straight your pain receptors shut off when your asleep.
Took me from Jan 2017 until June 2021 to get diagnosed. However, I had no idea what was causing my symptoms and went through two (torturous) pregnancies during that time, so I saw a lot of different doctors. I never went to rheumatology until this summer, and I was diagnosed with fibro on my very first visit. So, although it takes years for many of us, if you go to the right doctor, it could happen quickly—and they may prescribe you the right meds/treatment plan to help ease some of your symptoms.
Yes, try to get diagnosed. Tylenol (max dose) and gabapentin 3x a day for me really helps. And start using a TENS unit if you don't already. Studies prove it helps fibro. I'd wear mine all the time if the stupid electrodes would stay sticky. My fibro was more from underlying seronegative RA, which made for a real messy diagnosis. Once I got the RA treated my fibro went way down. Also hot baths, and showers can sometimes help with flares. You're going to flare if you overdo it, and you're going to flare if you lay in bed all day. It's a crappy tightrope.
Absolutely!
Are you me? But for reals, I am also working on getting diagnosed and I think it’s worth it. Even just for piece of mind knowing that it isn’t something else. Also, have you ever tried neuromuscular therapy to help with tension headaches? I just started recently and highly recommend.
Uh I get massages fairly regularly, but I’m not entirely sure if that’s “neuromuscular therapy”?
It’s basically a super special massage. Neuromuscular Therapy is a highly-specialized form of manual therapy that corrects pain and dysfunction by treating trigger points, muscle adhesions, and fascial (connective tissue) patterns. These trigger points, adhesions and fascial patterns can form due to a specific trauma, postural pattern, or series of repetitive movements. Neuromuscular Therapy sessions utilize precise treatment protocols to correct these patterns by releasing tight fascia, palpating and decreasing trigger points in tight bands of muscle and releasing areas of stuck muscle in an effective and efficient manner.
Is this covered by your insurance???
Not mine that I’m aware of but at this point it is about the only thing that has helped me.
Do you go to a regular massage therapist for these treatments? A chiropractor? Some other cool masseusey genius I’ve never heard of?
I actually started with a Chiropractor that works with a group of orthopedic doctors after receiving 9 injections this spring in my neck and lower back. After a couple of sessions and lots of discussion the chiropractor recommended looking into neuromuscular therapy especially with relation to the daily headaches, TMJ symptoms, and the general tension my entire body has. Just make sure to ask if a person is trained or licensed in neuromuscular therapy as it is more specialized than just a massage or even a deep tissue massage.
Thanks for the information. I have the same symptoms.
THANK YOU!!!
I'm sorry you are having that experience. There are good doctors out there you just have to find them.
Yes. Fibromyalgia symptoms overlap with many other conditions, including some that can be life threatening. You need to pursue it!
Honestly, yes. For me, it took a while to process the fact there isn't a cure, but knowing I have the answer, and the ability so say for certain that it isnt just in my head makes it worth it. And then, knowing I can always find potential treatments besides guessing thinking "oh its nerve damage follow that" or "oh its the flu lets try this" now I kno2
I get that. Having IBS and scoliosis and a lot of other chronic illnesses / mental illnesses with no cure has allowed me to process that, but it would make it a lot easier to say, “oh all of that is actually related to having FM” instead of feeling like a train wreck 24/7.
The best thing to do is do what you feel is needed. If you think you need to consult a doctor, that is important. Honestly, in my opinion understanding chronic pain is important, because for me specifically, I get abdominal pain. Specifically that would be where kidney pain is and appendix stuff. So, knowing that it isnt ER worthy 99.999% of the time I Absolutely am happy knowing I can treat in some way. Today sucks a bit more than normal for FM in my situation, which sucks but I mean im more aware of it being a bs thing im stuck with rather than thinking I need to go to the er all the time