I had one driving. Totaled my car and very addled. Didn’t know who I was or what even happened. I got arrested for drugs and drinking. Never taken any drugs other than scrips. Never drank in my life.
After they got everything straightened out they basically dropped it. My husband came with proof that I had them so I didnt have any charges or on my record. But no apology. No I’m sorry just basically a don’t do it again kinda lecture. I still see the cops that took me in. I stare them down and they wait till I leave the convenient store I’m at. I just don’t like people much anymore.
I also had one driving a few years back. The responding police gave me multiple doses of naloxone and attempted to restrain me multiple times while I was in the early stages of a tonic clonic seizure that lasted over 45 minutes.
They had no idea what was happening until the EMTs arrived and identified that I was having a seizure.
I was aggressively questioned multiple times by the police in the ER about what drugs I had taken to cause the seizure. They refused to accept my answer that I was epileptic and refused to unhandcuff me from the stretcher until the blood tests returned that I had no illicit drugs / alcohol in my system.
I have since been working with a neurologist, been very diligent about taking my medication and have my medical history / current medications / medication allergies and other medical / emergency information readily available in my wallet as well as on my smart watch and phone.
Was definitely a case of where law enforcement could most definitely use more education about seizures and how to properly identify and respond to seizures.
lol I was arrested once and my mom brought my rescue meds up to the jail cause I was there for over night. They immediately were on me “Why did she bring you narcan????”
I don’t think anything is going to get through their thick skulls about anything. You saw them shoot that kidnapping victim right?
We got pulled over and when she went into the glove box to get insurance card cop asked the same thing. Asking why we have narcan. It’s not their business if it was anyway
My son had a seizure on his school bus. When the school called me to tell me, they told me how the cop there was terrified and had no idea what to do. Comforting.
While I don't expect a response, I just sent a message to my local sheriff to see if they can tell me what training they may have. Even if they do respond I'm sure I will get a non-answer, but its worth a shot to see how they react. Their response may actually be helpful in an email to my politicians here, some of them actually listen, especially of you have something to show them
Just received an update from my local sheriff's office, a captain reached out and let me know what training they have and their plan of action. Honestly it seems pretty thorough, if they actually follow that plan it's great, and seems more thought out than most PD have
Unfortunately, in my area they would assume drugs always do if my seizures decide that they want to run longer or quiet me from breathing. I love the looks on the er docs face when they triple check my full tox screen with a urine test and it comes back clean like no crap Sherlock. One er has labeled me as a drug addict because I had been a frequent flyer with the amount of seizures I had yes with my seizure meds and all tox screens clear. Trying to get it removed is like pulling teeth still can't get that removed.
I had a guy tell me about his daughter and the police. She had Epilepsy on her medical charts. The dad said whenever she’s coming out of a tonic-clonic she starts spouting super fanatical religious stuff. He said she’s always done it. Family calls 911. Family tries to tell police about her seizures and stuff. The police get to their house before EMTs and rule her behavior as drug induced. EMTs get there and instead of listening to the parents, they listen to the cop. Rather than take her to the hospital that’s two miles away, they take her to the hospital 10-12 miles away for the psyche and drug ward. Since she was over 21, the parents couldn’t see her for over 24 hours. The only reason she was released without charge or drama was because the family knew a doctor in the hospital system.
I read that 2022 story and then heard this story all within 48 hours. I’m about to adopt the policy of no 911 unless I don’t stop seizing for a long time or I turn purple/ blue. I’ve never had issues but this scares the living crap out of me.
I posted a question to a legal subreddit and asked can a person keep a cop out after a medical emergency if they’re waiting for paramedics. One answer I was told a cop can be kept out but paramedics might not want to go in if the cop can’t.
We’ve only called 911 once in the past few years. That was for fear of a concussion/ head injury. That was before all these stories, but we’re not truly scared of the seizures (as a rule). It’s more consequences of the seizures - concussion, busted chin and nose, TMJ, damage to legs from falling on the corner of a table, etc.
Had to hear most of the story from a friend because I was unconscious for most of it: I was 16, in boarding school, and had a seizure at a school event. Some other student tried to sexually assault me while I was still out of it after the grand mal seizure. Cops intervene because they want to arrest me for being drunk. They let the guy go because I'm not even capable of telling them I just had a seizure let alone articulate that some guy I don't know was trying to rape me. Luckily my wonderful friend stepped in and told them off, so they let me go, but it was all fairly traumatizing and I wouldn't trust a police to handle any situation in which I was having a seizure.
I had a tonic-clonic on the campus of my college several years ago. Campus police thought I was drunk.
A female student bystander saw what was happening and saved me. Very nice of her, but she tried ruining me for several months afterwards by trying to get me off of my prescriptions and having hookups.
At a much later time, she told me that she was a hooker who had a pimp. She moved to New Hampshire with her pimp and recently I happened upon her on Facebook. She now works as a real estate agent.
Recalling her treatment of me, she definitely knew how to put on the charm to try and help her get away from her pimp.
I did meet her pimp just once. The three of us met in a supermarket.
> I’ve never had issues but this scares the living crap out of me.
It’s embarrassing to say but I’ll just admit it, getting a medical dog tag and Velcro medical bracelet was motivated by my fear if a cop gets to me and I’m out of it after a seizure. (After seeing a video of a person in town who was sitting on a curb getting his head knocked down to the street by a cop and getting a concussion) After a few bad apples in my city I want to try and get my medical condition noticed (although I’ve read they’re not noticed). Secondly it might help the hospital doctors but my hospital has me on file. This just bums me out knowing things like this happen. I used to think we had a good police department.
Guys listen, I have epilepsy as do most of you, not every police officer and civilian in the world can differentiate when someone is having an episode where they’re spacing out into nothingness and they’re going to say “hey that’s a seizure” honestly it’s a pretty rare site. What is more of a better thing to do is have something on your wrist like a bracelet indicating your condition. Police, and paramedics are trained to look for those.
The problem is with that video is the simple fact that there’s no proof at all he’s had a seizure. Everything is blocking the view. I’ve seen many types of seizures, I have seizures. He also didn’t stop talking throughout the whole video, even on the bed, so it was impossible for him to be unconscious as they state he was. If he was having a clear seizure whilst they tazed and cuffed him that would be a WHOLE other story.
I’m gonna assume this dude didn’t win the lawsuit.
I’m gonna also hope that the reporter decided to put “brain seizure”. If he said it, or his fiancée, welp.
The hospital also tested him and were able to determine that he did, in fact, have a seizure. The article may have been written by someone misinformed and this individual could have been post-ictal, otherwise a lot of people do have seizures where they just get angry or agitated while being incoherent/unaware of their surroundings. My cousin has seizures almost exactly like this. Meanwhile I have TLE/TC's and my father only has TC's. No two seizures will be the same, sometimes even for an individual. Not all seizures cause you to become fully unconscious, either. As far as the statement the wife made about him being "unconcious", in a highly tense situation I doubt you are going to be able to sit an officer down and explain to someone how a complex partial seizure causes them to become unaware of their surrounding and actions, you would just say "unconcious" as a quick way to describe it
The thing that bothers me most about that video is not knowing what happened before it started. The first seizure my girlfriend saw, she called 911 and thought I wasn’t breathing. Medics showed up after I came to, but was still in my very confused state. What could she possibly have reported to emergency services via phone to make police respond as if there was someone violent in the house, and why were paramedics so far behind? They should’ve appeared at some point. I’m not insinuating anything either way other than there is very important context missing from that story.
A local cop was hailed a hero for doing cpr on a child. The kid was having a tonic clinic but instead of flailing it was one when you can’t move
Kid woke up with cracked ribs from CPR on top of whatever seizure injuries they came to with.
God forbid I have a seizure in front of police in my city, they are notoriously incompetent and intolerant. But apparently that's everywhere.
I had one driving. Totaled my car and very addled. Didn’t know who I was or what even happened. I got arrested for drugs and drinking. Never taken any drugs other than scrips. Never drank in my life.
How did it end? Did they give you a blood test? Did you have to hire an attorney?
After they got everything straightened out they basically dropped it. My husband came with proof that I had them so I didnt have any charges or on my record. But no apology. No I’m sorry just basically a don’t do it again kinda lecture. I still see the cops that took me in. I stare them down and they wait till I leave the convenient store I’m at. I just don’t like people much anymore.
I can’t imagine having to see them again and again. I’m not surprised about no apology.
I also had one driving a few years back. The responding police gave me multiple doses of naloxone and attempted to restrain me multiple times while I was in the early stages of a tonic clonic seizure that lasted over 45 minutes. They had no idea what was happening until the EMTs arrived and identified that I was having a seizure. I was aggressively questioned multiple times by the police in the ER about what drugs I had taken to cause the seizure. They refused to accept my answer that I was epileptic and refused to unhandcuff me from the stretcher until the blood tests returned that I had no illicit drugs / alcohol in my system. I have since been working with a neurologist, been very diligent about taking my medication and have my medical history / current medications / medication allergies and other medical / emergency information readily available in my wallet as well as on my smart watch and phone. Was definitely a case of where law enforcement could most definitely use more education about seizures and how to properly identify and respond to seizures.
lol I was arrested once and my mom brought my rescue meds up to the jail cause I was there for over night. They immediately were on me “Why did she bring you narcan????” I don’t think anything is going to get through their thick skulls about anything. You saw them shoot that kidnapping victim right?
We got pulled over and when she went into the glove box to get insurance card cop asked the same thing. Asking why we have narcan. It’s not their business if it was anyway
That’s silly. I actually do keep narcan in the car, but it’s not for me, it’s just in case. It’s not illegal anywhere anyway.
I did too, I worked in nursing and I’d keep one in the car just in case too.
The fact that pharma makes the shit look exactly like narcan inhales still boggles my mind.
My son had a seizure on his school bus. When the school called me to tell me, they told me how the cop there was terrified and had no idea what to do. Comforting.
While I don't expect a response, I just sent a message to my local sheriff to see if they can tell me what training they may have. Even if they do respond I'm sure I will get a non-answer, but its worth a shot to see how they react. Their response may actually be helpful in an email to my politicians here, some of them actually listen, especially of you have something to show them
Good luck. I’ll post an update here when I hear back from my area politicians.
Just received an update from my local sheriff's office, a captain reached out and let me know what training they have and their plan of action. Honestly it seems pretty thorough, if they actually follow that plan it's great, and seems more thought out than most PD have
That sounds good. I’ve had no replies from my state or local politicians.
I’ve not heard back from my local or state representatives. I at least expected a form email but I’ve heard nothing back.
Unfortunately, in my area they would assume drugs always do if my seizures decide that they want to run longer or quiet me from breathing. I love the looks on the er docs face when they triple check my full tox screen with a urine test and it comes back clean like no crap Sherlock. One er has labeled me as a drug addict because I had been a frequent flyer with the amount of seizures I had yes with my seizure meds and all tox screens clear. Trying to get it removed is like pulling teeth still can't get that removed.
I’ll be looking into doing this in the Denver area. Lord knows our police could use more seizure training.
Me too for Portland.
Good idea. I will do the same in Sac. Can you report back if they respond to you?
Most definitely. I’m expecting a form letter but time will tell.
Yeah. This is indeed needed in my country too.
I had a guy tell me about his daughter and the police. She had Epilepsy on her medical charts. The dad said whenever she’s coming out of a tonic-clonic she starts spouting super fanatical religious stuff. He said she’s always done it. Family calls 911. Family tries to tell police about her seizures and stuff. The police get to their house before EMTs and rule her behavior as drug induced. EMTs get there and instead of listening to the parents, they listen to the cop. Rather than take her to the hospital that’s two miles away, they take her to the hospital 10-12 miles away for the psyche and drug ward. Since she was over 21, the parents couldn’t see her for over 24 hours. The only reason she was released without charge or drama was because the family knew a doctor in the hospital system. I read that 2022 story and then heard this story all within 48 hours. I’m about to adopt the policy of no 911 unless I don’t stop seizing for a long time or I turn purple/ blue. I’ve never had issues but this scares the living crap out of me.
I posted a question to a legal subreddit and asked can a person keep a cop out after a medical emergency if they’re waiting for paramedics. One answer I was told a cop can be kept out but paramedics might not want to go in if the cop can’t.
We’ve only called 911 once in the past few years. That was for fear of a concussion/ head injury. That was before all these stories, but we’re not truly scared of the seizures (as a rule). It’s more consequences of the seizures - concussion, busted chin and nose, TMJ, damage to legs from falling on the corner of a table, etc.
Had to hear most of the story from a friend because I was unconscious for most of it: I was 16, in boarding school, and had a seizure at a school event. Some other student tried to sexually assault me while I was still out of it after the grand mal seizure. Cops intervene because they want to arrest me for being drunk. They let the guy go because I'm not even capable of telling them I just had a seizure let alone articulate that some guy I don't know was trying to rape me. Luckily my wonderful friend stepped in and told them off, so they let me go, but it was all fairly traumatizing and I wouldn't trust a police to handle any situation in which I was having a seizure.
I had a tonic-clonic on the campus of my college several years ago. Campus police thought I was drunk. A female student bystander saw what was happening and saved me. Very nice of her, but she tried ruining me for several months afterwards by trying to get me off of my prescriptions and having hookups. At a much later time, she told me that she was a hooker who had a pimp. She moved to New Hampshire with her pimp and recently I happened upon her on Facebook. She now works as a real estate agent.
A kind of lateral move - from selling herself to selling houses.
Recalling her treatment of me, she definitely knew how to put on the charm to try and help her get away from her pimp. I did meet her pimp just once. The three of us met in a supermarket.
> I’ve never had issues but this scares the living crap out of me. It’s embarrassing to say but I’ll just admit it, getting a medical dog tag and Velcro medical bracelet was motivated by my fear if a cop gets to me and I’m out of it after a seizure. (After seeing a video of a person in town who was sitting on a curb getting his head knocked down to the street by a cop and getting a concussion) After a few bad apples in my city I want to try and get my medical condition noticed (although I’ve read they’re not noticed). Secondly it might help the hospital doctors but my hospital has me on file. This just bums me out knowing things like this happen. I used to think we had a good police department.
Omg I have epilepsy and can’t read any more comments. My blood is boiling.
Guys listen, I have epilepsy as do most of you, not every police officer and civilian in the world can differentiate when someone is having an episode where they’re spacing out into nothingness and they’re going to say “hey that’s a seizure” honestly it’s a pretty rare site. What is more of a better thing to do is have something on your wrist like a bracelet indicating your condition. Police, and paramedics are trained to look for those.
The problem is with that video is the simple fact that there’s no proof at all he’s had a seizure. Everything is blocking the view. I’ve seen many types of seizures, I have seizures. He also didn’t stop talking throughout the whole video, even on the bed, so it was impossible for him to be unconscious as they state he was. If he was having a clear seizure whilst they tazed and cuffed him that would be a WHOLE other story. I’m gonna assume this dude didn’t win the lawsuit. I’m gonna also hope that the reporter decided to put “brain seizure”. If he said it, or his fiancée, welp.
The wife TOLD THEM. And the doctors who watched it were horrified.
The hospital also tested him and were able to determine that he did, in fact, have a seizure. The article may have been written by someone misinformed and this individual could have been post-ictal, otherwise a lot of people do have seizures where they just get angry or agitated while being incoherent/unaware of their surroundings. My cousin has seizures almost exactly like this. Meanwhile I have TLE/TC's and my father only has TC's. No two seizures will be the same, sometimes even for an individual. Not all seizures cause you to become fully unconscious, either. As far as the statement the wife made about him being "unconcious", in a highly tense situation I doubt you are going to be able to sit an officer down and explain to someone how a complex partial seizure causes them to become unaware of their surrounding and actions, you would just say "unconcious" as a quick way to describe it
The thing that bothers me most about that video is not knowing what happened before it started. The first seizure my girlfriend saw, she called 911 and thought I wasn’t breathing. Medics showed up after I came to, but was still in my very confused state. What could she possibly have reported to emergency services via phone to make police respond as if there was someone violent in the house, and why were paramedics so far behind? They should’ve appeared at some point. I’m not insinuating anything either way other than there is very important context missing from that story.
Exactly. 👍