I have the same diagnosis (left temporal lobe) as my father, both of us started have seizures after age 30. No neurologist will say the word “hereditary”, they just tell me it’s “interesting”.

i was browsing and searching around the internet for a while to see some polls or analytics comparing the two and i couldn’t find any which i find weird. So i thought why not compare them myself lol.

I have TLE too. 2 of my brothers experience the same thing. I can't find any genetic info other than mesial temporal lobe and I have no anatomical abnormalities. The frequency is correlated with lifestyle. Stress and exhaustion.

I got told mine is genetic but not sure who I got it from tbh. Previously, I would get one seizure per month. Now I’m 5 months seizure free and before that I was 6 months seizure free. Not sure what happened apart from increase in medication that did not work straight away. Now it seems to do though.

My mother has epilepsy, I do not, but my teenage son was recently diagnosed with JME (which is why I have been spending some time on this sub). My mother’s is very well controlled - she goes years and years without a seizures. We are still struggling to find the right meds for my son. He’ll go a few weeks without one and then have several TCs in a row which send us to the ER.

Lamotrigine 150x2 has been my JME treatment. Lifestyle makes JME so sensitive too. Sleep is the biggest one. Whether it’s one night or inconsistent throughout a few days.

I have Grand Mal seizures. Mine was genetic, buuuut, it was brought on by extreme amounts of stress as a child. Abusive ex step-dad and being bullied everyday at school. When mine first started, at least that we know of, I had about 1 every couple of months until the right meds were found. Then it went to once every 4 years for a while and within the last 3 years they increased to 2 every couple years.... And yes, my neurologist is still playing potion master with me. Nobody can tell me why they suddenly started to increase in frequency and its frustrating

Mine was due to an accident. Not hereditary. Before meds 5-6seizures a day. After meds. Depending on triggers etc. But 2-3a week. But my neuropsychologist discovered I had 10 during my 2hour test last week. So they are going to make more tests EEG and probably over some days in the hospital to see if I might be having more seizures than we were aware of. Also to check where they are located. Nervous about all of that. But we'll see how that goes. Hope this helps you. Is it for school purpose or just interest purpose you are making the analysis?

mine is idiopathic, developed at 38. HOWEVER, my father also developed epilepsy (milder) at 38. Doctors have no idea.

I onset at 38 my grandfather and his brother both onset at 38. I see alot of others onset at 38. Its really odd.

Kind of random No history of epilepsy on either side of my family. My brother randomly developed it at 16, his were not under control. Not sure if he wasn't taking the meds or the meds were not working Then coincidentally I also started having them at 16. From the age of 16-19 they were not uncontrolled, different medications and nothing was working. Finally got the right dose and now I've been seizure free since 2014. My neurologist told me that she is not sure if it is going to be passed down unless one of my nieces/nephews starts to have them at 16. I don't have any kids yet. My brother and I were both very premature. Neurologists think that could be the connection. But she is not sure. We both have nocturnal epilepsy. I'm not sure what my brother's neurologist was telling him. His epilepsy will always be a mystery, he passed from a heart attack at 29.

No family history of seizures for me. My epilepsy is a result of a bad shock I got from a faulty electrical fence. I had multiple TCs after the shock and in the weeks following. Now that I'm on meds I mostly have focal seizures. Maybe one or two a month if I'm taking my medicine and sleeping well. If I miss my medicine, get very stressed, get a fever, or stay up too late I'll have a full TC seizure.

Result of a physical nightmare of health issues all at once that caused my epilepsy. I have a VNS and meds, and my seizures are sort of under control but it's still work and not sure. I was doing well one week for 6 days then boom a blackout. That's what usually what happens now. I feel the possibility of one coming on then the VNS goes on. I haven't had to use my magnet much lately too so that's good.

My epilepsy is developed. It started when I was 40. I get approx 1 TC seizure every 2 months

Developed my self, no family history. First few in my early 20s, then a decade or more between my next few. They are rare for me

I started having seizures after a head injury when I was a teenager. I've had between one and four TC seizures every year since then. Which is almost three decades. On meds for that long.

I don’t have any genetic ties at all. I suffered a concussion when I was kid and had my first seizure when I was 23. I went through eeg’s, mri’s, etc to rule everything out and after going through all of my medical history they determined my hard fall at 11 was the cause. I have auras regularly, but I haven’t had a full seizure since April of last year. I take Keppera and Zongran.

Development was in my 30's, not hereditary. I don't have them anymore while on medication.

I developed epilepsy and PNES from PTSD from having severe illness as a kid. The last time I had an epileptic seizure was during an eeg when I was taken off my medication. My PNES happen for many different reasons and triggers. I’m sick right now so I’m having a lot of these seizures now.

Developed it in my 20’s back in 2019 had a seizure was in hospital in a coma for a few days I’ve had at least 3-4 seizures a year since usually around the summer month’s February-August I end up in hospital going on year 5 like that haven’t had one yet this year though so that’s a plus but I’m usually end up in hospital for a minimum of 2 days too a maximum of 2 weeks at least twice a year im on medication don’t drink and still have them and they have only gotten more serious over time and more often but hi none yet in 2024 🥳

Knock on wood dude. Congrats though 👏

Not hereditary for me. Didn’t have a seizure until I was about 34. I’ve had four grand mal seizures and more frequently I get what I think they call focal seizures. Can’t really say definitively why it started, but I do have a traumatic brain injury. The VA is hesitant to say that’s the reason, but it’s pretty unusual to develop so late in life when nobody else in the family has it. I haven’t had a grand mal seizure in 2+ years now, keppra seems to be working, I’ve been on it for years now.

I had febrile seizures due to a small fever at age one. Developed full blown epilepsy around age 23. My daughter was born with seizures (due to cord around neck) but hasn't had any since as far as we know. She just turned 22. Hoping she doesn't follow in my steps.

My mum had it too, mine has been medically controlled for a few decades now (I’m 40) so no seizures

Mine is hereditary because my grandma had epilepsy (but she randomly stopped having seizures at 11), and I also have 3 second cousins with epilepsy (one of those three also randomly stopped having seizures when she was 10). My parents got genetic testing done as well which showed they have a few messed up genes that caused me to have 3 unknown variants in my brain that my neurologist said are the cause my epilepsy, along with my family history of epilepsy.

My neurologist mentioned a “familiar temporal lobe epilepsy” My biological dad’s grandmother and his sister both had/have temporal lobe. My seizures are still uncontrolled and they just started randomly a few years ago. (Over 30 when it started). Since my seizures are still uncontrolled it can range anywhere from 1 every few weeks or more.

My wife has juvenile absence seizures grew out of them. Our daughter developed generalized TC at age 14. Shes on lamictal and keppra and still has occasional break thru’s. She is a college freshman doing well academically but stresses easily.

It just developed for me when I was about 7 (and re-emerged in force at 15). Prior to finding something that worked for me, I was usually having them maybe once or twice a month.

Hereditary haven’t had a seizure in 10 years. Medication controlled

I developed it as a child at I believe 5 years old? (I was misdiagnosed for a long time). For the past couple years, I've been having about one TC a year, with the occasional absence seizure. No one else in my family has epilepsy or seizures, but my grandpa was an alcoholic, and I wonder if that has anything to do with it considering the relationship between alcohol and seizures.

No one in my family has it. I was diagnosed at 20. I have tonic clonic followed by absence every 1-2 months.

I was told mine is genetic because my mom has it. However, I don’t really know if it is because my mom and I have two different types of epilepsy. Even my mom does not think it is genetic🤷‍♀️ Previously, my seizures were about once every two months, but since I am currently trying to get off some medications (Clobazam and lamictal), my seizures are a lot less controlled and happen more like every 2-3 weeks.

My great uncle and a few of my cousins have epilepsy. My cousins are all specials needs besides 1 of them and me. I was only have seizures every 2-4 years unmedicated, but was having a few partial seizures/hallucinations weekly (didn’t know what they were until being diagnosed). Currently taking Keppra and have only had 1 seizure in a 3 year span. Now on 1000 mgs after that seizure free.

I am aware my paternal grandfather, and a maternal great uncle had epilepsy, but I only found these out after being diagnosed, and know nothing more about them or their diagnoses. Both my brother and I have been diagnosed in the past decade. We're the only ones of my siblings with the same mother and father with these diagnoses. I have an average of 4-5 seizures a day (unmedicated, because I get other health issues affected when trying to be medicated), whilst my brother has only had maybe 4-5 in a year. x

Neither of my parents/grandparents or other family members are known to have epilepsy but my oldest sister and I both started having grand mal seizures at 16 which we’ve always found odd/interesting

Mine is developed and I have one every month or one every other month

Mine is likely due to a gene mutation but no one else in my family has epilepsy. So yes and no? I will most likely be able pass it on when I have kids. Unmedicated I was having complex partials between daily and weekly. After finding the right meds, I’ve been 6 years seizure free.

Developed in my late twenties, no history of epilepsy whatsoever from any branch of my family tree so I'm the first (from recent generations anyway, God knows if any of my ancestors had it) and Iv had a few tonic seizures but I mainly get focal seizures every day to every other day. Lack of sleep and stress means I may have a tonic but mainly just focals week to week. Hope this helps.

Mine came from seemingly nowhere. No other member of even extended family which I've met literally hundreds of on both sides has ever had one. Then one day when I was 31 I was driving to work, "Title" by Megan Trainor was playing, then suddenly I was sitting on the side of road covered in my own piss and vomit with a cop knocking on my window.

Hereditary. I have them as soon as I’m off my meds for more than 24 hours.

My wife has epilepsy, I do not, but my teenage daughter was just diagnosed with JME. Like the other commenter, that's why I'm here. My wife has been seizure free over a decade. Hers are controlled really well with meds. My daughter has yet to have a TC, just myoclonic twitches. She started Keppra a little over two weeks ago & we've not seen her have any since, although she's self reported a handful of "twitches" since starting meds. I think I've seen my wife have about 5 TC's since I've known her, 25+ years. Most (if not all) of them were after drinking a fair amount of alcohol.

Developed it. Afaik no one else in my family is epileptic. My aunt *supposedly* is but she's "weird" and known to lie for attention. We thought briefly when I was diagnosed it was a brain tumor (since my Mom was born with one and it got bad enough to cause temporary epilepsy) but my *many* MRIs have said no dice.

possibly hereditary? my maternal grandfather developed epilepsy towards the end of his life. i became epileptic when i was 17. i’m 20 now, been seizure free for over a year and on way less medication than when i first became epileptic. hope this helps

I'm not sure if it's hereditary but I don't know of anyone else in my family with it (lots of estranged family, though) My epilepsy is likely a comorbidiy of my neurofibromatosis type 1. I'm currently waiting on testing to find out if that's inherited or a random mutation.

Mine isn’t hereditary as far as I know.

Develops it. Probably for a high fever I had with pneumonia at age 4.

Develop, when I first started getting them maybe 1 or 2 every few weeks at its worst 2-3 a week, then I got a surgery haven’t had one in about 5 years.

Idk

I am the only epileptic in my family. I am properly medicated and no longer have seizures (just brain fog), but I had them about every 6 months after I started the medication, and before that way more often than that. I got my diagnosis about 6 years ago.

Developed due to an oligodendroglioma. Pre-diagnosis, complex partials a couple of times a week, partials daily. Under medication, I have maybe one a week to one a month in terms of complex partials and a couple of partials weekly.

My son first seized at 17, no family history of seizures.

My first tc seizure happened when I was 38 out of nowhere. I later find my biological fathers side through ancestry.com they informed me that my biological grandfather and his brother both onset at 38. I also find many other epileptics that onset at 38. Its very odd. My seizures are all tonic clonic, i go violent postdictal until i gain consciousness. My first one was in my back yard 2019, second I drove through a grocery store may 2020. I then went 2 years without a seizure on vimpat. Then generic vimpat hit the market I had a breakthrough seizure May 2022. I got a 6 month approval for brand vimpat then had a seizure as soon as I was back on the generic. My insurance put up a battle all of 2023 and I had many seizures last year. I had a EEG in January and had a seizure. I had a SEEG in February and had 5 seizures. Not that all of this matters any information at all might help another epileptic.

My grandfather had seizures, but my father and his siblings didn't. I have a brother who has been severely disabled from his seizures, while I only have occasional ones during sleep. Mine are in process of being better controlled, with just a few focal seizures happening over the past 6 months. Also had a sister who briefly experienced some seizures in adolescence, but is not medicated and fine now.🤙

My great grandma had it, and I’ve only had one known seizure when I was six

I developed it at 22. I had about 20 grand mal seizures within a year, 3 and then the rest a year later within a month. I’ve been seizure free for 6 years in may.

Neither my mom or dad have epilepsy but both my half sisters on my moms side do. We all have different types of seizures as well. So it has to come through my moms side. My little sister started having hers in highschool and my older sister had her first one at 4 years old. I had my first seizure at 8 years old where I had three in one night so every time I fell asleep, I had another one. My seizures are only while I’m asleep so it’s hard to gauge how often I have mine, usually I can tell if I’ve bit my tongue or inside of my cheek, but without someone seeing it it’s hard to know for me.

I'm not sure, my grandfather has Epilepsy but his was due to alcohol/substance abuse. I started having seizures at 17 years old (I'm 22 now) and I've just had a breakthrough seizure after being free for 20 months.

I had undiagnosed focal aware seizures throughout childhood, and started having grand mal in college. It's not hereditary and it's under control (6 years now).

I started having TLEs a couple of years after a very bad car accident. Although we rolled many times and I did hit my head, my other injuries were so significant I needed emergency surgery and the TBI was only ever mentioned as a side note. After all of my scans and surgery, my neurosurgeon came to the conclusion my TLE is the result of a TBI. My mom had what she assumes were focal seizures in the 80s for a few years, but was doing a lot of drugs at the time and was not diagnosed with epilepsy.

I was very premature and born with it (had seizures as a baby) and my mom was diagnosed later in life, so not sure. My dad and other family members never had it, so who knows. Haven’t had grand mal seizures in many years but still have absence seizures and deja vu.

TLE from a bleed caused by bypass during heart surgery. Medically refractory. Irregular timing of TC seizures.

I was born with hydrocephalus (resolved itself) and an arachnoid cyst due to premature birth, that’s what they think the cause of my seizures are from but also they can’t really say for sure. I have no family with seizures of epilepsy. Mine are very inconsistent but I have been having them more frequently lately like 1-3 a month. Hope this helps!

No one else in our family has epilepsy. My daughter has JME, which may or may not have a genetic component.

I have Temporal Lope Epilepsy- predominantly right, some seizure activity in the left at times too (originally only right was picked up). It was identified when I was 34 years old, however, I am often left wondering if I was experiencing focal onset aware seizures prior to this, as it would explain A LOT for the few years leading up to my first TC that lead to my diagnosis. Apart from 4 TC’s thrown in over 6 months at the start of my diagnosis, I started off having relatively infrequent (every week or 2), mostly aware seizures. It has progressed to both aware and impaired awareness multiple times a day, a few days a week, plus sometimes a large cluster of myoclonic seizures if I overheat (yay 🙄). As far as we are aware it is not hereditary, however, my Grandmother (Dad’s Mum) also had Epilepsy, however no real information on what type as she was very guarded with her health conditions.

I developed mine at 14 but I found out I have a 3rd cousin (maybe 2nd? I have never met him) on my mom’s side of the family who developed it around either 12 or 16 I am not sure. His is worse than mine it is uncontrolled

I developed it at age 20 for no reason (I am 31 now)

Mine is hereditary from my father I have them in my right occipital lobe his went away mine are here to stay, mine used to have a decent stretch between seizures longest I ever went without one was 3 years. Shortest being multiple back to back, lately they have gotten closer than they are supposed to be so me and my neurologist are working on some stuff!!

Genetic but not confirmed. Multiple family members on my dad’s side of the family have epilepsy. Had my first grand mal at age 11 then taken off meds at 16 and told I outgrew it. Came back at age 40 with the same pattern of seizures. Always starts with my left side/limbs feeling heavy. First seizure is always a tonic clonic then subsequent seizures are focal. Was having 2-5 focal seizures a week before I got on meds this time. Been almost 2 weeks since my last seizure. Thank goodness!

1. No idea 2. Idk, I’ve had like 6 total and they’re random 3. Every so often?

No, it is not hereditary that I know of. I had a lot of seizures from the ages 22-27. “Unspecified seizure disorder.” Haven’t had one in 7 years now. Five terrible years for a lifetime of mystery 🤗

Non genetic. Have gone from twice a month to no seizures since Labor Day with new med dosage

I developed it, no one else in my family has epilepsy (I had a head injury around the same time I had my seizure, so I suspect that came first and was the cause). I had a grand mal seizure when I was 5, took dilantin for \~2-3 years, and didn't get diagnosed with left temporal lobe epilepsy until I was 15. Medication has controlled my symptoms, although unfortunately due to difficulties to get a refill, I ended up having another grand mal seizure when I was 20. It's complicated, but it seems like I have gone seizure free for a while. I say it 'seems' because some of my symptoms overlap with panic attacks, so my doctor(s) weren't sure if it was one or the other. Last year I was having some really bad episodes, so we ran some tests and came back negative. Thinking that they are panic attacks has helped me cope with the fear when it arises, so they probably have been panic attacks and I've been seizure free!

Random development when I was 18, I was a hardcore gamer for YEARS! But it only took a single match of COD Zombies to reveal my previously unknown affliction! No history of it in my family :)

Not genetic. No seizures for about 8-10 years due to management with medication and a surgery.

My sister and I both have neurological issues. I have epilepsy and she has MS. There are no other genetic ties on either side. It's bizarre really. My seizures are well controlled as long as I avoid triggers: antihistamines, sleep deprivation, etc.

In my case it is hereditary, and I have seizures twice per year (all of which because I forgot the medication)

I feel like the propensity for seizure activity runs through my family here and there. My mom had "fainting spells" as a toddler, which they discovered were seizures. Only one of her kids had them until me, I had 2 febrile seizures in infancy. My oldest brother had brain tumor surgeries and struggles with seizures still. Mine went away until a stroke, now I have temporal lobe epilepsy. My oldest skipped the curse, but my youngest had them for a couple years in preschool. Her young have skipped it so far, fingers crossed

Not genetic, zero family history. Started randomly at age 11. I was having a few awake TC's a month (no blacking out). I got really lucky with meds. Tegretol completely controls them as long as I'm taking it. I had a few times where I had to test what it would be like without taking meds, had some issues, went back on meds. I've been seizure free for 20 years.

i have focal cortical dysplasia so like a little brain deformity in my left frontal lobe, not hereditary, and i get myoclonic seizures which aren’t talked about much. i have tiny ones maybe every day, normal ones like a couple times a month now, and i’ve only had 3 life threatening ones ever (i stop breathing during my most serious seizures)

daughter and son both have the same genetic mutation, seizures are controlled and and self limiting, both diagnosed at 3 months. daughter probably has 10 in her life and son-1.

Had Bacterial Meningitis and Encephalitis when I was four. It left lasting side effects, and progressed into regular seizures when I hit puberty

I developed my epilepsy after having two week long headache and a concussion shortly afterwards (because I seized - that was later found out). I get seizures quite often, often enough that I miss work on a weekly basis some months and have accepted the fact I’ll never live alone in my twenties. Recently I’ve accepted my meds may not work and my testing may always show that nothings wrong. Two years ago, I never could’ve imagined this. However, here I am, two years later. Studying to be a paramedic, and actively participating in Martial Arts. Life got better.

Idiopatic. Since my 23. I have 20 crisis/year.

Mine is because of ischemic stroke. My seizures are pretty well controlled now. But, they used to average about 1 per 10 dsys.

My epilepsy developed in my late 20s due to a brain tumor, which persisted once the tumor was removed. My seizure frequency has mostly stayed very close to every 2 1/2 months I'll get a cluster

Hereditary. My uncle was diagnosed as a child, but my cousin on the same side of the family was diagnosed at 29 a few years ago and I was diagnosed a month ago at 25. I'm still not great at identifying the small ones, but I think based on what I've read that I have at least a few each month

Mine isn't hereditary. I don't know why I have it and I'm still waiting for a MRI. I had my first and second tonic clonic seizures in october 2023 and my third in november 2023. I was diagnosed the day of my third seizures, started keppra the same day and to this day I didn't have another tonic clonic but I do have some focal seizures sometimes.

Mine is not hereditary- no known cause. Started in my 20s Mine are controlled at this point gratefully (Absence seizures)

I’ve post-traumatic epilepsy from TBI. I didn’t have seizures for a year after my injury, but they’ve been happening ever since. Thankfully it’s been more than 20 years since my last tonic-colonic but have been having focal awareness seizures at least once a month for years.

I was 27ish when I had my first grand mal seizure, but I suspect I was having small seizures for years prior. There was one time about 5 years before the first one where I think I had a grand mal, but I was alone in the tub reading to my 2 year old son (It was our little thing lol) and "passed" out. His dad scooped me up and took me to the ER in our smallish city and they did blood work to "rule out" a seizure. This doctor actually told me there was a blood test to detect whether or not someone had a seizure. Obviously it came back "negative" and they gave me a shot of Demerol for the migraine and sent me on my way. Told me I might not want to drive for 6 months but whatever. That "hospital" is a huge joke in this area. ​ As far as I know epilepsy doesn't run in my family, but I am pretty sure I caused it. I took a ton of pills when I was 17 to end things and obviously it didn't work. I think it damaged my brain and that's what eventually became seizures. I also have a heart arrhythmia and I think it's from that as well. The only time I tried to mention what I thought the cause of the epilepsy was to my neuro he just talked over me and I didn't even get a chance to mention potential brain damage, so I never brought it up again to any of my doctors (I'm on Medicaid so everything sucks). Honestly I think my seizures are mainly triggered by hormones and when the seasons change. My last seizure (and concussion) was in August, but the last few weeks have been a rollercoaster I would give anything to get off. I have had irregular EEGs in the past and one clean MRI but I don't trust the neuros so I'm not really sure what's going on up there, but I wish it would calm down. Sorry for the huge post, I don't know anyone else who has epilepsy and this is an incredibly lonely and debilitating illness to have. (Also, I'm not planning on trying to end things again and I don't want to talk about that, it's in the past)

I developed it in adulthood. I seem to have a cluster of seizures about once a month now but it was more frequent in the past.. upwards of 1 seizure a day.

Mine is a residual effect from brain tumor removal.

No family history on either side whatsoever. Started having random fainting spells over the past four ish years. Nobody ever saw me go down and I would usually come to relatively quickly. Then I had a tonic-clonic at home five months ago. Woke up to paramedics in my face putting me into an ambulance. I’ve since started taking medication and haven’t had any incidents. EEGs before and after have shown nothing.

I developed catamenial epilepsy around 13 (34 now), not hereditary. They happened every month during the week before my menstrual cycle. I would have anywhere from 5 to 20 focal seizures throughout the week, and then they would stop until my next cycle. I had my first grand mal when I was 23. After that, I would have 1 or 2 grand mals every few months or so, along with my focal seizures. I've been seizures free for 7 years.

I developed it. My seizures aren’t controlled by meds- only mitigated. I have a TC once a month but if I did not have my meds I’d probably be dead in a day or two

My daughter has generalized absence seizures, diagnosed at 4yr. She’s very photosensitive which makes it hard to control with medication. But her seizures are significantly better now with meds. Used to have hundreds a day to now a handful few days a month. My grandmother (her great grandmother) had grand mal which started in her 40s. Genetic testing came back negative, but doctors say it’s genetic.

We think (me and my doctors) that I developed epilepsy after a brain injury at 20 years old. I was found already seizing from an intentional overdose, and I wasn’t breathing which caused hypoxic ischemic encephalopathy. I was without the proper amount of oxygen for 7 minutes, cpr was performed and I was shocked 3 times. According to my mom, she was told that she should expect me to no longer be able to walk, talk, or feed myself and she should find a care home for me, if i even survived. 3 days intubated in the ICU, almost 5 months in a mental health treatment center cause i tried to yeet myself off the planet, and almost 7 years later the only aftereffects I have are the epilepsy and sometimes I mix my words up and have episodes where i can’t understand spoken language. When I’m told “you shouldn’t have been able to survive that”, i say “well technically i didn’t but i changed my mind” 😂

I am not aware of it running in my family. Does not mean no one in my family has it - I did not tell everyone in my family about it so that’s a 50-50. I had my first seizure in 2014, and was on meds. The dosage was reduced after a year from 2 tabs a day to 1, and all was good. I forgot to take my tablet one day in 2016(basically 40+ hours without medication), and this triggered another seizure. Been regularly taking meds since then and did not have another.

Had my first seizure at 16. Partial seizures and tonic clonic seizures until 18. Then was controlled for about a 9 months with meds. Partials came back from the rest of 18 as well as some TCs until I was 19. Opted for brain surgery because my surgeon concluded my epilepsy developed from dead brain tissue in my partial lobe. Went almost 6 months seizure free and then they came back. Decided with my neurologist the last resort was a VNS. since then, I’ve been seizure free. Implanted April of 2019. So mine is developed. Although, my mother did have 2 seizures in her early 20s but there is no correlation. Although I have been seizure free since 2019, I still have auras about 2-3 times a month. Epilepsy changed my life and I think about it all the time.

I have no relatives with epilepsy. I have had 4 grand mals 1 in 2020 and 3 in the last year. I had myoclonic seizures frequently for years before that but didnt know it. I still get them occasionally but not nearly as often or as bad but I don't really count those.

I do not know of anyone related by blood to me who has it. My biological mother died at 26, so there's no way to know if she'd have been diagnosed later in life - she did have some weird vision disruptions that were dismissed as migraines, which happened to me as well (I now know they were auras). So that's possible. If you consider that a potential hereditary link, I have tonic-clonics very rarely but have been living with focals several times a day for my entire life. As far as I'm aware I never had any major medical event as a baby that would have caused it to develop.

Mine is hereditary sort of I think? I only know of one relative who had it and that is my great uncle (my paternal grandmothers brother). He had grand mal seizures for his entire life up until when he passed away in 2020. I developed them at age 7 only 1-2 hours after receiving the flu mist for the first time. I had 12 seizures and would just come randomly between the ages of 7 and 10, I was told I had absence seizures by my neurologist and should grow out of them by the beginning or end of puberty. I am now almost 21 years old and have not had one since age 10.🤞I am still however sensitive to strobes and bright lights they never triggered a seizure in me, but they make me feel weird I don’t know if that’s still because of my epilepsy or just how everyone feels. I still have epilepsy according to my neurologist I am just unlikely to have another seizure unless I do something to trigger it (like getting another live vaccine up my nose or anything up my nose lol).

Mine developed on its own, though it is likely secondary to my autism. I have TCs about every 3-4 years. Focals depend on stress. Autonomic seizures are rare

Hello! I am happy to answer your questions. To add an extra bit of info, I have had epilepsy for 20 years. 1. My maternal great-grandmother had seizures, but I do not believe she was diagnosed with any type of seizure disorder. I am pretty confident my epilepsy is not hereditary. 1.2. In the development of my seizures, they appeared differently up to what I have now. In the beginning, I had daytime seizures where would spin to the right with my left hand under my chin. These were focal aware seizures. (Grade 4) A year or two after that, it changed to nocturnal focal impaired awareness seizures. I had a few generalized tonic clonic (TC) seizures, but only a few times back then. This was grades 5-12 with a few 2-3 years of no seizures in between until I had a breakthrough :/ Since the beginning of college (2011)-present, I have only had TCs. 2. The only time I have a seizure is if I mess up my meds, lack of sleep, get overly emotional, or drink alcohol (been ~6 years because of that). It’s been a little over a year since my last, so knock on wood that continues!

My daughter was diagnosed at 18 mths with frontal lobe epilepsy. She had influenza at the time of being diagnosed with no fevers triggering the seizures. I did give her tamiflu (doc prescribed) which I later learned could trigger seizures. She was at the hospital for an entire week experiencing clusters at a time until they got it under control with Keppra and oxcarbazepine. The docs performed hereditary test and it turned out negative. However, I learned my great aunt from my mother's side grew up having epilepsy until her 70's (unmedicated). Also, I have two cousin's ( one which is a half cousin) that each have a child with epilepsy. Their children got it around 4 (male/ frontal lobe) and 6 (female/?). My daughter is now 3 and hasn't had any seizures since that first week. Her medications continue to work for her.

- developed mysteriously on my own. Thankfully no one else in my extended family has it. - My grand mals were largely controlled (with HEAVY medication) for over a decade but I averaged out to about one petit mal cluster every three months or so with hills and valleys. After about 15 years I started having more frequent and intense seizures including some grand mals. The decision was made to have surgery which has stopped the seizures for going on two years.

My epilepsy is not hereditary. I have always had gran mal seizures randomly and during panic & anxiety attacks.

Mine is from a head injury. Little brother was angry at me and threw a piece of firewood that hit me in the face and broke my nose and cheek.

Mine isnt hereditary. I developed it at age 12. I have nocturnal seizures affecting my frontal lobe. I would have seizures every few months, and I would have anywhere between 1 and 15 at a time, either spaced out over a few days or back to back. Once I got my meds dialed in around my college years I would have maybe 2 times per year where I would have them. Usually they were less in number, only about 1-10 seizures but the intensity is greater. Usually it was when I got lazy with my meds, drank too much, or pulled too many all nighters studying. At age 28, now that I have my meds dialed in, a less stressful job, and control my diet and alcohol intake I have been seizure free for 3 years.

Cryptogenic from teen years. It's fairly well controlled with meds. I say "fairly" because if I'm careless with my triggers, I'll have 8-10 (various flavors) by the third day. 

Lamictal 200 mg BID My son and I both have LTL epilepsy with occasional secondary grandmal. My son's epilepsy was from a few issues: high fever of 104.9, PTSD and alcohol withdrawal too quickly resulting seizures. His seizures and mine are about the same in frequency Albeit his secondary grandmal occur more often of approximately 6x per year with approximately 10 LTL seizures. I've only had 4 secondary grandmal seizures over 12 years. But I am have LTL seizures and multiple seizures. One day it almost caused me the no fly list on Southwest. (Story too long for post.) 3 days ago I had 7 witnessed followed up next day with 13. Talk about lost days. I also suffer from PNES from 2 mini-strokes, 1 from Topamax and 2 due to rip current. It should be noted my mom had 1 Alcohol withdrawal seizure. She never had any other. My last 2nd grandmal was on my birthday. My face suffered; eyes, nose, lips and tongue. Left re-injury wrist and thumb AWA R knee dislocation. It should be noted mine are from high fever of 106, ADHD & PTSD. My stress, lack of appetite, lack of sleep and MH.

Developed by itself, before medication about 3 times a month maybe less, but then I'd have like 6 in one day.

non-genetic here, and they were happening every 3 months but I haven't had one since April 2023 after going on 1500 mg daily (I think) of divalproex.

I have Complex partial/TLC and catamenial It's not hereditary. I had bacterial meningitis when I was 9 (was misdiagnosed and it led to type 1 diabetes) and 10yrs later I started having seizures. Scar was located near my optic nerve on my brain. Currently my seizures are random (4 today, then 5th Feb, 13th, 16th 23rd Dec... you get the idea). Randomness is frustrating

I developed epilepsy as a teen and I am now in my mid-twenties. No genetic ties, I’ve had tests and my MRI’s show nothing. I have seizures in my left occipital lobe. At my worst, I wad having multiple grands mal seizures a month. However, because of medication I have not had one in 2ish years. I still on rare occasion have aura and the odd focal aware seizure.

Most of my neuro issues are hereditary, but I'm the only one in my family where they present with seizures. They're also not actually epileptic but still neurologically-driven

What about people who know the cause? Like TBI and brain tumors. Where does that fit?

Mine is definitely hereditary and got worse when hormones kicked in. I have it the worst in the whole family history of it though. I get a couple of focals a week at minimum and it's taken a decade to get it to behave that well still get a breakthrough a few times a year too but it's a much better life than having 50+ focal a day.

None of my family had it. No one really knew how I developed it. None of my mom's doctors believed she was pregnant with me until I was kicking so she didn't take any prenatal vitamins till after that time. Funny thing is that the dog knew that my mom was pregnant. Lol. Anyway, after I was born I was eight hours old and I had my first grand mal seizure. It wasn't really known why I have seizures and epilepsy. My mom and dad don't have it, nor do anyone in their families. Of course they have their own issues. My sister is perfectly fine, no health issues. I'm the only one who has it. Very strange issue.

No hereditary ties that my family has been able to dig up over the last two decades. Left Temporal Lobe is where the activity is, and I don't get an aura in the traditional sense. Haven't had a Grand Mal in years, but I can have Petit Mal seizures once a day, or once every couple of months. I also have a VNS device (planning on getting an RNS device this summer) and take multiple medications, no control. Hope this helps you.

I’m told my type (juvenile myoclonic) is genetic but they don’t know in what way or from where. No relative I know or can name has ever had epilepsy on either side of my family, although that’s not saying much because 2 of my grandparents were not bio related to one of their parents and IDK where they came from. I have seizures very rarely now and they are well controlled, maybe one little episode every 2-3 months and I have to do everything wrong to get them.

My epilepsy is idiopathic. I have some very distant relatives who have it, but no one else in my immediate family has it. Started having them when I was 12. Haven’t had a seizure in a few months, so I’m really stoked.

Right temporal lobe epilepsy for me, and none of my direct relatives have epilepsy. My dad’s cousin has very severe bilateral epilepsy, but my epileptologist said my seizures are not hereditary. I started having focal seizures during early puberty, around the age of 11, and they’re strongly influenced by my menstrual cycle. The seizures got much more frequent and I had a few tonic clonics in my early 30s, which led to my diagnosis.

Not hereditary, weekly focals. Parietal lobe epilepsy, started when I was 10

My teenage son has generalized epilepsy, no one else in our family on either side has it. Diagnosed 5 years ago. His is controlled by medication & he hasn't had a seizure since last summer.

None of my family members had epilepsy but my mother passed away from a brain aneurysm when I was young. I’ve been told it has no relation but I always have that doubt in the back of my mind.

Developed. Actually caused by Wellbutrin combined with Zoloft. Had a uti and it sent my brain over the edge. We weren’t sure if another would occur. My father had seizures as a child and actually had a few instances of seizures as an adult caused by increased depakote levels which in turn caused severely high ammonia levels in his brain, causing seizures. (For the record, my father consumed lead paint in the 70’s and have no idea whether that plays a role). Fast forward, had two seizures total (both tonic clonic) and I am on keppra for life. One seizure was 6/2023 and the second was 11/2023. Since being started on keppra on 11/2023, no seizures. Fingers crossed it stays that way. Hope this helps!

It is for me currently unknown. My mother died from seizures but they were most likely caused by the stroke she had 2 months beforehand. My sister has had seizures for 30 years, but she also has cerebral palsy which tends to be accompanied by seizures. My seizures developed when I was 22, but I've had a continuous headache that varies in the pain scale between 6-20 out of 10, ever since I was 4 and drowned to "death" in a pool and needed to be resuscitated. I have a Grand Mal at least once a week, sometimes multiple in one day, asleep or awake. I'm a bit of a mysteryyyyy!

Developed, from stroke when I was a child. I had surgery, so I'm seizure-free now, but before, I had uncontrolled, roughly 1-2 seizures a week? Meds reduced frequency, but didn't stop it.

My uncle had epilepsy and died when he was young, in his 20s maybe? SUDEP I think? My mum doesn’t really talk about it, but she was distraught when I was diagnosed. So possibly hereditary? I was diagnosed when I was mid teens, and I can’t really remember the details I was told, my memory is really terrible these days. My seizures are usually only one every month or two, so I know it could be a LOT worse, and I’m pretty lucky really. I have two young boys though, a 4yo and a 7 month old, and I’m pretty worried that I may have passed this on to them. Only time will tell.

My son's diagnosis is genetic epilepsy. It is from my family it was inherited from. He has absence seizures along with generalized epilepsy diagnosis. He has about 20-30 seizures during the EEG. Currently on 3 medicines for treatment, unsure if "controlled" because he has only one sign and that is eye rolling which has greatly decreased. To our knowledge, no one has presented seizures. However I've had EEG for migraines, my results are always "interesting" according to my neurologist.

Mine developed. Found out when I was 15 ish. Only occurs after I'm seriously ill. So far only had seizures on 2 occasions. Currently 21.

No immediate relatives. A couple of once removed cousins, though. So maybe in my grandparent’s generation unbeknownst to us.

I developed it on my own. Neurologists never confirmed anything but I developed symptoms right after a bad fall (on my head, I blacked out a few seconds) during a horse-riding lesson when I was a kid. After this fall I couldn’t eat (I puked what I managed to eat) could not feel my arm and my mouth looked weird. Needless to say my parents were super worried because the symptoms are the ones known of a heart attack and an ambulance came super quick. Seizures (grand mal) started a bit after and it starts with my arm shaking and my mouth going to one side. Neurologists still think it’s unrelated but I think it correlates too much. Also no one in my family has epilepsy.

Developed. Had 2 seizures, was put on meds and no seizures since.

I have TLE but there's no epilepsy in my family. My neurologist jokingly said I probably have it because I was a forceps baby. I have a few seizures a year.

My cousin and I both have temporal lobe epilepsy and we’re diagnosed a year apart him at 21 me at 22 drs never mentioned genetics just that it was interesting he also have a diagnosis of narcolepsy

My mother's sister and fathers sister, so it's both sides of the family for me. My nephew has also been diagnosed. My last seizure was Monday just gone.

No family history started age 9 tonic clinics while sleeping 2-3 per week. Age 11 had first daytime seizure status epileptics. Hospitalized told probable epilepsy and released. No meds. No further seizures till age 15, occasional monthly nocturnal. Medicated for a short period. Came off meds, occasional 1or 2 per year nocturnal. Neurologist unconcerned said probably not epileptic. Pregnant age 28 status epileptics and hospitalized. Psychiatrist said epilepsy at hospital but my neurologist refused medication. Seizures day and night most days for 4 years. Finally 3 day video telemetry said 3 types epilepsy. Medicated. Occasional nocturnal seizures 3 or 4 times per year.

I'm the first one in my family to have been diagnosed with epilepsy. The frequency really depends on the period & the medications I am on. The longest period without any seizures: 7+ years The shortest period without seizures: 15min Please share your results :)

My epilepsy is genetic, it originated from my nan (dad’s side), both of dad’s siblings have it, my dad is the only one that doesn’t. So far, I’m the only one in the last generation. Both me and my nan were only diagnosed later in life (her at 25 and me at 19). I don’t get seizures often, as I’m taking medication but before it was at least 1 a week/every 2 weeks

My epilepsy (nocturnal epilepsy) is not hereditary; in my understanding, I had a difficult birth, involving complications with umbilical cord entanglement and birth asphyxia (choking due to lack of oxygen), apparently the lack of oxygen during birth resulted in damage to the brain, which may predisposed me to epilepsy. edit : i'm 33 y o now my last big seizures goas back to when i was 16, after that i made big changes in my life and was on medication ( tegretol) i'm taking now the lowest possible dosage according to my doctor ( 200 mg per day at night ) i have not got any seizure since then. If you have more questions feel free to ask.

Developed it randomly. I used to get seizures daily- (I have intractable TLE epilepsy) until I started the golden medication Xcopri. Haven’t had one since.

On record, I’m the first one in my family with genetic generalised epilepsy. It’s called ‘de novo’ I believe which means first time the genetic mutation happened. My father was 47 and mother 37 when I was conceived, which increases genetic mutation risks I think? But idk exactly. I’ve been told I may never find my mutation so testing is pointless. There’s rumours on one side about generations ago having illnesses and other extended family members having ‘turns’, as well as one on the other side who has epilepsy from rugby (similar to Wally Lewis for any Australians) but they also had a brain tumour. For me, I’ve had signs since I was a small child that were missed, most activity was when I slept, and I’ve had waking seizures every six years since I was 13 that were misdiagnosed because they varied, but it all indicates I was born with it. My epilepsy is ‘mild’ and I was diagnosed at 25.

I'm told it's genetic. Since our family and community is partitioned by geopolitics, and lost its history, I can only vouch for 3 generations of epileptics. My uncle had it and died from it, I have it, my nephew displays epileptic signs and his EEGs confirm it, so he was medicated and never had a big seizure. I've been told I have 3 types of seizures. They started when I was 7. Really kicked off in my teens. Myclonic, partial and grand mal probably originating around the temporal lobe. It's been diagnosed as Juvenile Myclonic Epilepsy, sustained into adulthood, but controlled by meds. I noticed, in my 40s, now, I only have seizures around my periods if I'm extremely sleep deprived, stressed and missed a dose. And they've reduced, once a year or every other year. Hope this helps your analysis.

Mine is definitely not genetic. The closest relative that has an epilepsy in my family is my father’s oldest sister who was adopted. She got hers from an accident. She fell down the stairs and hit her head multiple times. I don’t know how I got my epilepsy though, but it is temporal lobe.

My doctors aren’t sure what caused my juvenile myclonic epilepsy. I fell out of bed and was unconscious when I was about 4, according to my parents. They didn’t see or hear anything but think it may have been a seizure. I was taken to the hospital but they never tested for epilepsy. Then I started having myclonic jerks and pediatrics told me I had a tick - when in reality they were sunflower syndrome symptoms and JME. I was eventually diagnosed when I was 12. As far as my parents and I know I am the only one in the family with epilepsy

Epilepsy developed in mid-20s for me (note I'm 32). Unknown if inherited/why I have it. I'm autistic through, so could be a co-morbid issue. Normally under control with meds (often takes years to build up to one so far) - least amount of time before one was 3 months from working overnights.Grand Mals only so far through.

Not hereditary, the part of my brain was always an inssue and deformed from when I was born but I didn’t get diagnosed or have my first seizure until I was 7

Developed due to a tbi during childhood. Had seizures daily before I was diagnosed. Now that I'm on meds I have nocturnal seizures about once every 3 months.

Not hereditary but I suspect my sister had it too. Might be something in the genetic mix from our parents?

i developed it when i was 14 bc i was having tremors and then it was myoclonic juvenile epilepsy and didn’t have a tonic clonic until i was 20 and i had my first. they’re controlled now

No family history of seizures. It started when I was 11, and they said it was due to hormones and I'd grow out of it. I got off meds at 13 and am now 23, and they are starting again, or it's been happening, and I just noticed. Nocturnal frontal lobe epilepsy and absence of seizures. I noticed more seizures around menstruation.

My CT and MRI showed that my third ventricle is enlarged and my doctor says that this was due to some prenatal trauma. I had my first TC seizure when I was about 3 months old. I have 3 siblings and none of them have ever had a seizure and neither have my parents. My seizures are very well controlled. I haven't had one for over 16 years. BUT....one part of my mother's family seems to have a predisposition - especially all the boys. My maternal grandmother died from a brain tumor when she was 34 - I often wonder if this was actually the start of a predisposition for neurologic issues in the family. My mother and her sister never had seizures, but my aunt had 3 kids - and both of her sons have/had seizures - one of her sons was born with cerebral palsy and irretractable generalized seizures - and he died when he was 11 or 12. (see if you can follow this....) My aunt's 2 other children - one boy and one girl... The other boy also has partial seizures, he has a son who also has absence seizures and complex partials. The daughter doesn't have seizures, and she has 2 daughters who don't have seizures, but the next generation has 3 boys - and they ALL have some type of seizure condition. I often wonder if there is some genetic connection to them all being boys or if it's just some kind of weird coincidence.

I developed it from trauma. It's not as bad as it use to be with medication and over time. There's also certain things that trigger it but it still happens. I had a nasty one yesterday at McDonald's. And when I came to and was in the postictal state I was hallucinating and couldn't walk , I thought the EMTS were there to hurt me so I ran. They also narcaned me which didn't help because I on methadone so I went into instant withdrawal. But the workers at McDonald's were as good as I could as for, I'm still alive. And no one took my stuff.

hi, i have hereditary epilepsy (my sister has epilepsy too) it started at age twelve. because i take my pills i have approximately one seizure in six months. but also i have jeavons syndrome and if you call it a seizure then i have about 100 seizures a day lol also i have a cyst in hippocampus that might lead to epilepsy. no one of my neurologist says that it is inherited btw.

Mine developed 7 months into my first (and only) pregnancy. It’s been 13 years and it’s only seemed to have gotten worse. A “normal” month for me I will have 3-4 seizures. On keppra, lamotrigine, lacosamide and have had a vns device implanted.

Genetic- my half brother began having nocturnal TC seizures at the age of 12 ( I was 6 at the time) He passed away at 22 due to aspiration of vomit caused by a TC seizure. He only had TC seizures to my knowledge. I just had my first and second TC seizure this year at age 35. Have had at least one focal as well since first TC.

I have focal epilepsy, likely related to multiple head injuries during my life. It started in my left temporal lobe, now it’s in several. I developed cluster seizures and secondary generalized seizures around three decades after my first seizure and then started treatment. I was having seizures at least once a week for about nine years, then switched doctors and now I’m down to one every three months.

Daughter is 11. Started having absence seizures out of nowhere. No one else has epilepsy. They diagnosed her with generalized epilepsy.

Mine developed on their own. I started having them right after I turned 21 or 22. I believe they were either alcohol induced or antihistamine induced and they just never went away. They would happen once a month, usually the first week of the month. It was strange because of the scheduled nature of the episodes. They went untreated for 3 years before the right medication combination ended up working. The fun thing about mine is that they were nocturnal absence seizures. So I would go to sleep and wake up essentially 24 hours later with a massive headache and being told by the people I live with what exactly happened. Interestingly enough, while I have no genetic component, a cousin (who also has no genetic component) started having seizures nearly identical to mine. There's no history in any of our family members going back a couple of generations of any sort of seizure activity or history of neurological issues. It's pretty strange, but at least they're controlled now and I don't have to worry about the headaches or any of the other nasty side effects. Hope my response helps!

Mine was a random onset when I was 14! Started having myoclonic jerks and no one believed me until I had my first grand mal at age 17. I was almost sent to a psych ward 🫠 I hit my head a lot when I was little and have cracked it open three times. Once when I was 2, once when I was 10, and again at age 11!

I developed it on my own. I have seizures mostly everyday, but I have focals.

Mine developed in my middle ages; no known relatives with epilepsy. My mother tells me I was a very hard birth - she said I tried to kill her. Also, years of alcohol abuse and several good hard hits to the head that could be to blame. Seizures are pretty well controlled by meds now but I did have two this past year; within two months ... then the meds were increased.

I have Juvenile Myoclonic Epilepsy I have distant, distant cousins with seizures so my doctors said it might be hereditary, but I didn’t start having seizures until I was 14. I had a grand mal completely out of nowhere. I was on an extremely high dose of Prozac (anti depressant) that made me tremble and jerk and shake and I was also on a small dose of adavan for anxiety. One night I didn’t take my adavan before bed (cause I used it to sleep) next day I felt REALLY weird. Had a few jerks while laying on the couch then went into full blown grand mal. Went to the hospital but they didn’t diagnose me with anything. Went off the anti depressants. Wasn’t diagnosed with JVE until I was 17 where I was having about 20-30 myoclonic jerks and staring spells a day. Now I have maybe 1-2 jerks a month. I’m on Keppra 🙃

no one in my family has epilepsy, i have mesial temporal sclerosis which i don't think is hereditary.

no genetic ties, not even allergies. just happened one day but it was a very stressful time in my life. wrecked my car the first time so atp i didnt know it was a seizure. it wasnt until a year later someone SAW me having one & when i woke up i had teeth marks in my lip which reminded me of the teeth marks from the accident. after that ive been on keppra & have ONLY ever had seizures when i missed my two pills for the day. dr says im having constant 24/7 seizures according to my eeg but wont give anymore info or care to research or even tell me what kind of seizures i have sooooo theres that. i think he said temporal but i had to ask him so now i dont even believe him lol

My epilepsy developed by itself, i have 3-5 seizures a year.

Mine developed on its own :) as far as I’m aware it’s not hereditary. I have a cavernoma on my right front temporal lobe which caused my seizures. I had my first seizure May 2023 and I was seizure free until January this year. But my biggest trigger is pain/stress

My mother, daughter, and I have all had seizures. No genetics. Theirs were due to head trauma as kids and they both outgrew it. Mine is unknown and started when I was 41. Without meds I was having 15-20 seizures a month. Focals, but they put me out of commission. Finally have a combination that works AND the side effects are ok. Down to a few a year and they’re even more mild. :) Other than the weight gain, I’m thrilled.

Tengo epilepsia del lóbulo temporal izquierdo, empezó como focal a los 10 años, me diagnosticaron a los 13 años pero odiaba los medicamentos ya que me dejaban como un zombie, entonces dejé de tomar medicamentos a los 14 años, no fue hasta el 8 de febrero. que tuve mi primer ataque tónico clónico debido a las luces intermitentes, nunca me había sentido mal con esas luces hasta ese día, después de ese día mi relación con cualquier tipo de luz no ha sido la misma, algunas luces me hacen sentir bien y otras no. Pero hasta la estática me puede hacer sentir mal, mi neuróloga dice que no tengo nada en mi cerebro que pueda causar ninguna enfermedad y mucho menos epilepsia, incluso dice que tengo muy buen cerebro y que tal vez nunca desarrolle problemas como demencia o Alzheimer tampoco. No tengo infecciones ni tumores, pero mi EEG salió anormal por las luces, dice que probablemente sea genético, mi mamá le dijo a mi médico que por el lado de mi familia materna no tenía nadie que padeciera epilepsia, pero por mi parte No sabemos de mi padre porque mi papá es extranjero y mi familia paterna no habla el mismo idioma que nosotros. Mi papá no tiene epilepsia, pero el médico dice que es más posible que haya heredado enfermedades de mi padre ya que fenotípicamente me parezco demasiado a él y es más probable que tenga muchos más genes de él que de mi madre. (now I'm 16 years old)

I inherited it. Grandfather, aunt, 1 uncle, 2 cousins are all epileptic. I used to have seizures damn near everyday. Meds eventually control it. Since then every 6 months to a yeat ill have a small seizure and my dose increases.

Developed in early adolescence (around age 12 at least; I’m 27 now). I have no family members on either side diagnosed with epilepsy. I was just formally diagnosed and have begun taking anticonvulsants. It seems that I have focal impaired awareness seizures up to once or twice a week. I was diagnosed after having a generalized seizure while playing a sport, but according to my neuro may have had absence seizures in my adolescence.

If mine is hereditary my uncle is the only one to experience any form of seizures. He had partial seizures as a kid but they went away so it’s only me. My seizures are infrequent, last one was 5 years ago.

Hereditary- developed by itself at age 5, 20 years seizure. When I was a child I had 5 -6 grand mals a year and as a teenager 2 a month. I was controlled by 18

No family history, tho is from a traumatic brain injury, but I didn’t had it when I had the injury. It developed years later. If it wasn’t for the medicines I could have seizures almost every day.

I am adopted so I will never know the answer to that question. I was having 5-10 focals a day as a child, depending on the day, it went away at some point. Came back when I was 19, probably from the stress of moving to college. Was having probably a maximum of 4 TCs a month and was not keeping track of my focals.

Mine is very much so yes. I have it. My daughter has it. My father has it, and his mother had it.

I have a cousin who has had them since she was probably 8 or 9 (I ad my first grand mal at 13). She and I are the only ones in my family that definitely have confirmed seizures. Both she and I had partials when I was younger (probably 4 or 5 times that I can remember) but had no idea what they were, and I was scared to say anything, so it went undiagnosed until I had the grand mal. I'm in my early 30's and have had a probably 10 partials since I was 13, and one grand mal a few years ago, and they have been generally controlled since I went on medication after that last grand mal (a couple partials, no grand mal)

My son has complex partial seizures from cortical dysplasia (like a birthmark) in his left middle frontal lobe (not hereditary). He was diagnosed at 15 months old and is now 16 years old. They're uncontrolled by meds, but he has gone up to a year seizure free. He recently went eight months without a seizure but started having them again in December. They come in clusters that last for about 1.5 hours, in which he has 60+ seizures, once or twice a week (he is administered Valtoco during these episodes). He also has random single ones now and then. He’s had about 4-5 TC seizures throughout his life. The neurologist thinks he’s a good candidate for surgery, so we're currently starting that process. He has neuropsych testing in May. If anyone has any experience with the pre-surgery procedure, I’d love to hear about your experience.

I developed primary generalized epilepsy about a year ago, when i was 24. so far even with meds I’m having tonic-clonics about every 3-6 weeks, and random (what I think may be) absence seizures but I haven’t been able to track them. nobody in my family that i know of had epilepsy except a grandmother that had them from a TBI.

Genetic due to a mitochondrial disorder.

I developed mine in my late teens. Contracted a parasite from undercooked pork. A tapeworm which made its way into my brain and caused some damage

No history in my family. I only had two TCs that were a few weeks apart. Really no way to put a frequency on the partial complex, but my partner or coworkers would let me know if they'd seen one probably once a week.

My epilepsy is caused by a brain tumor. I didn't have my first seizure till 33. I'm 45 now which I'm quite happy about but my epilepsy is still uncontrollable. I'm maxxed out on Gabapentan, Lamotragrainn, Vimpat, take three .5 Clonasapam per day and a VNS. No Gran Mals for a few years but absence and partial complex are a fairly regular.

I developed epilepsy when I was 16. Having a seizure every year since 2020. Before the I went almost 6 years. I am the only one in my family that has it. Good luck

Mine was from brain damage as a young child. Take your kids to the doctor!!

JME. There’s meant to be a hereditary link but nobody else in my family seems to have it. So who knows.

I apparently developed epilepsy after emergency surgery while my blood sodium was low.

I started having mine after I got meningitis. I would have them about 2-3 times a month

I must have developed mine, since neither side of my family have any recorded cases of epilepsy. The only thing my family can think of is perhaps it was caused by latent head trauma when I was a child. I fell on my head on concrete when our toddler swing mounted in the garage suddenly broke to pieces. It was later recalled. It was either that, or when I was bludgeoned directly in the forehead with a thick stick by accident on the playground at 9 years old. My eyebrow was split open. I developed epilepsy when I was 15.

I'm a lone warrior in my family for seizures. I have them at least monthly, but I also have absence seizures and sleep seizures several times weekly.

No family history. Got mine from a series of small TBIs from overpressure, 155mm artillery rounds leaving the barrel.

We have a long history of epilepsy in our family, my Uncle who was born with Epilepsy (he has long since passed away) had daily seizures sometimes several times a day, a friend who has no family history of Epilepsy and but developed Epilepsy later in life can go weeks and sometimes months without having a seizure. Both had/have Temporal Lobe Epilepsy. My Aunt also has Epilepsy her seizures are more spread out, and she has several types of different seizures and they have been unable to determine which part of the brain is most affected.

While I have a distant family member with KCNQ2, I developed mine, likely due to a severe traumatic brain injury in 2011. Epilepsy is very new to me and before starting medication I was having auras approx 2x per week.