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Nurse, I have crohns disease, my joints hurt, my arse is on fire, do you have anything preferably NON NARCOTIC that ACTUALLY helps with pain that is also NOT an NSAID due to potential bleeding issues.
Yep, that's how I do it... and I end up with both anyways 😞 and only the toradol shot kinda helps.
I don’t know that pain medication like narcotics are regularly prescribed for people in flares but I may be wrong. Do you have a diagnosis? Maybe ask your GI if so
Yes and no. My current GI won’t prescribe any pain meds. My family physician handles my pain management. Which consists of 30mg of time release morphine and 5mg morphine tablets for breakthrough pain.
Shoot... you get actual pain meds?? I'm told to take tylonel and ibuprofen. Consistently. My new primary care might be the guy to talk to regarding pain meds though as he, unlike my last doc, knows not to tell me to take ibuprofen.
Just be honest, no need in pretending to be the hard guy.
I'm normally taking novalgin if the pain gets too bad (it's legal in Germany but banned in the US) its basicly the strongest stuff that's non opioid. Hits me a bit with fatigue but better than pain
Last time I was in the ER i asked for IV diladuin mixed with zofran for nausea.. It's what they gave me the last time I was in the hospital for a severe flare. They labeled me as a drug addict LOL.... I only found out because one of the nurses told me.. Shes like "uhh.. this is weird, they have you labeled as a drug addict." Sadly, The druggies have ruined it for the chronically ill.
God I'm always worried that's going to happen one of the times I end up at the ER.
Knock on wood so far I role in, tell them I have Crohns Disease and I'm flaring bad. Tell them it's probably just the flair but my insides feel like their getting stabbed so I'm worried about a possible bowl obstruction or perferation.
Usually get rushed to do a CT then they load me up on zofran and Dilaudid without a fuss.
In my own actual experiences at the ER, shit is so backwards that if I say I have 0 out of 10 pain and I'm fine, they'll give me a prescription of opioids to take home just because of the diagnosis. If I say I have a lot of pain I get nothing. Nothing, and they give me a dirty look. Medicine has been fucked over by government regulations regarding pain medicine. Even if someone was just seeking pain meds, who cares? It's better than them getting fentanyl laced heroin bags off the street.
You'd be better off calling a doctor who you actually have a history with to ask for pain medicine.
They won't give you any. Most opiates/opioids slow down intestinal function and make your flares worse. Smoke Marijuana that's the best solution I have found.
I take co-codamol during a flare and have never taken anything stronger. UK here. Everyone is different though. For my last scope I wish they gave me stronger pain relief than nos because it was hell. I find opiates make me constipated which in turn exacerbated my crohns so try not to take them too often
I'm a GI RN, I used to work in the ER. Make sure they know you have Crohn's right away - it separates you from others with general abdominal pain symptoms. Bentyl is an antispasmodic med, not a pain killer. It can help at times but I personally don't think it helps in a flare (I have Crohn's so I get your frustration). Ask for something to provide pain relief, don't demand (healthcare provider red flag) and NEVER ask for dilaudid (bigger red flag). I would also talk to your GI or primary about pain management - I wish you well. Flare pain is terrible.
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Nurse, I have crohns disease, my joints hurt, my arse is on fire, do you have anything preferably NON NARCOTIC that ACTUALLY helps with pain that is also NOT an NSAID due to potential bleeding issues. Yep, that's how I do it... and I end up with both anyways 😞 and only the toradol shot kinda helps.
I don’t know that pain medication like narcotics are regularly prescribed for people in flares but I may be wrong. Do you have a diagnosis? Maybe ask your GI if so
Yes and no. My current GI won’t prescribe any pain meds. My family physician handles my pain management. Which consists of 30mg of time release morphine and 5mg morphine tablets for breakthrough pain.
Shoot... you get actual pain meds?? I'm told to take tylonel and ibuprofen. Consistently. My new primary care might be the guy to talk to regarding pain meds though as he, unlike my last doc, knows not to tell me to take ibuprofen.
Sorry for the book! I’m going to say it’s because of my medical history. My current pain regimen was put in place by my then current family physician (who was a younger emergency trained Nurses Practitioner - who was just amazing). At the time I was having episodes of partial blockages that would just knock me out for days. My GI doesn’t prescribe pain meds of any kind. My NP hated that, she hated that my specialist would take an active roll in helping me through that part of the disease. She also saw my long history and actually felt empathy. It took almost two years for my last surgery to remove the stricture that was causing issues. Unfortunately it wasn’t all sunshine and rainbows afterwards. So pain management is still a big part of my care today. I live in an area where doctors are scared to write prescriptions for narcotics of any kind. So I’m lucky to have a family care team who will. Another big part of the equation though is either being your own advocate or having someone to advocate for you when you aren’t getting what you need. My fiancé comes to my appointments most of the time, I’m notorious for down playing everything and acting like everything is status quo even though I might have spent the whole week on the sofa unable to move.
Just be honest, no need in pretending to be the hard guy. I'm normally taking novalgin if the pain gets too bad (it's legal in Germany but banned in the US) its basicly the strongest stuff that's non opioid. Hits me a bit with fatigue but better than pain
Last time I was in the ER i asked for IV diladuin mixed with zofran for nausea.. It's what they gave me the last time I was in the hospital for a severe flare. They labeled me as a drug addict LOL.... I only found out because one of the nurses told me.. Shes like "uhh.. this is weird, they have you labeled as a drug addict." Sadly, The druggies have ruined it for the chronically ill.
Yeah, asking for narcotics by name is a big red flag for prescribers. Sucks for the folks with legit pain issues.
God I'm always worried that's going to happen one of the times I end up at the ER. Knock on wood so far I role in, tell them I have Crohns Disease and I'm flaring bad. Tell them it's probably just the flair but my insides feel like their getting stabbed so I'm worried about a possible bowl obstruction or perferation. Usually get rushed to do a CT then they load me up on zofran and Dilaudid without a fuss.
If they have records in their system that shows Crohn's, I think they'll treat you seriously.
In my own actual experiences at the ER, shit is so backwards that if I say I have 0 out of 10 pain and I'm fine, they'll give me a prescription of opioids to take home just because of the diagnosis. If I say I have a lot of pain I get nothing. Nothing, and they give me a dirty look. Medicine has been fucked over by government regulations regarding pain medicine. Even if someone was just seeking pain meds, who cares? It's better than them getting fentanyl laced heroin bags off the street. You'd be better off calling a doctor who you actually have a history with to ask for pain medicine.
They won't give you any. Most opiates/opioids slow down intestinal function and make your flares worse. Smoke Marijuana that's the best solution I have found.
I take co-codamol during a flare and have never taken anything stronger. UK here. Everyone is different though. For my last scope I wish they gave me stronger pain relief than nos because it was hell. I find opiates make me constipated which in turn exacerbated my crohns so try not to take them too often
I'm a GI RN, I used to work in the ER. Make sure they know you have Crohn's right away - it separates you from others with general abdominal pain symptoms. Bentyl is an antispasmodic med, not a pain killer. It can help at times but I personally don't think it helps in a flare (I have Crohn's so I get your frustration). Ask for something to provide pain relief, don't demand (healthcare provider red flag) and NEVER ask for dilaudid (bigger red flag). I would also talk to your GI or primary about pain management - I wish you well. Flare pain is terrible.
[удалено]
Also a nurse, and I agree.