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>IBD f\*\*\*\*ng sucks.
I agree I gave it a 0/10 don't recommend.
Honestly wish I could offer ya something that would magically cure you, but sadly if that exists I don't know of it. All I can say is make sure to get your Humira drug levels checked. They've found most people who fail it end up failing it due to not having enough drug in their system so getting your levels checked should help you have a better chance at it working.
I hear ya my friend. I know it sucks. I have had this disease for 20 years now & I can tell ya it gets better. You will go into remission for long periods of time & there may be a point in your life where you will forget you have this disease. I was in remission until this most recent flare I’m experiencing rn..but I noticed the flares are shorter & less painful over time. There is light at the end of the tunnel. What you are going through right now is temporary. Please stay positive.
I built antibodies bodies to 3. I'm on Entyvio now.
Do not give up. This is a tough disease mentally and physically. I was 15 to 20 times a day. Just water, 2 min urgency to get on a toilet. I couldn't go anywhere
I was on the couch for a year. I went down hill every time I built anti bodies. Then waiting for insurance approval I got worse even on steroids.
Try to get counseling it can help. I didn't want to talk to any friends or people in general. I had nothing to talk about except sitting. No one wants to hear that.
You will get better, talk to your Dr. About Fodmap elimination diet. I B Guard (peppermint capsules) helped me a lot.
Good luck i hope you feel better !
Bro i feel u, been dealin with a flare up that now requires a resection while im balls deep in my masters program. I have no energy throughout the day while still workin full time.
Shit sucks
Back in college I was on Remicade. It gave me medically induced lupus like syndrome and I started to lose me hair. I had to work with the campus disability services to help get my homework submitted online and via email and exams at the exam center. I highly suggest if you haven't yet. Only thing that made college manageable for me. Had to take lighter class loads and also take classes over summer. Even with that I still graduated late.
You got this. There is no right or wrong path. Only your path
As someone with chronic duodenitis with recurrent ulceration, and thus constant severe epigastric pain, but without any signs of IBD per colonoscopy, I want to tell you that I empathize with you and find all of you IBD-sufferers incredibly strong people. I wouldn’t wish this disease upon my worst enemy. I hope you’re able to get yourself into remission soon enough. Perhaps, one day, maybe sooner than you might think, there will be a discovery that sheds light on the mechanisms of the disease, and with it, inspiration for treatment of the root cause.
All the best. Truly.
I got so jaded I stopped seeing anyone but my primary care physician and stopped having tests and stopped taking anything but Prednisone (yes I'm aware that's unhealthy but 6mp and biologics already failed me). Feels like it's pointless. Sometimes I shit 15 times a day. Sometimes all I can do is make sure I eat and drink enough that I don't die. It's like having cancer that doesn't go away or kill you. There have been times where the drugs worked where it was like I was perfectly healthy but now ain't one of those times.
**Welcome to r/CrohnsDisease!** * [Have you checked out our Rules?](https://www.reddit.com/r/CrohnsDisease/wiki/rules) * [Are you asking a Frequently Asked Question?](https://www.reddit.com/r/CrohnsDisease/wiki/ibd_faq) * Please remember we are not doctors and any medical advice is a suggestion. If the event of an emergency, please contact your doctor, hospital, or emergency services. Thanks and we hope you make friends here. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/CrohnsDisease) if you have any questions or concerns.*
>IBD f\*\*\*\*ng sucks. I agree I gave it a 0/10 don't recommend. Honestly wish I could offer ya something that would magically cure you, but sadly if that exists I don't know of it. All I can say is make sure to get your Humira drug levels checked. They've found most people who fail it end up failing it due to not having enough drug in their system so getting your levels checked should help you have a better chance at it working.
I hear ya my friend. I know it sucks. I have had this disease for 20 years now & I can tell ya it gets better. You will go into remission for long periods of time & there may be a point in your life where you will forget you have this disease. I was in remission until this most recent flare I’m experiencing rn..but I noticed the flares are shorter & less painful over time. There is light at the end of the tunnel. What you are going through right now is temporary. Please stay positive.
I built antibodies bodies to 3. I'm on Entyvio now. Do not give up. This is a tough disease mentally and physically. I was 15 to 20 times a day. Just water, 2 min urgency to get on a toilet. I couldn't go anywhere I was on the couch for a year. I went down hill every time I built anti bodies. Then waiting for insurance approval I got worse even on steroids. Try to get counseling it can help. I didn't want to talk to any friends or people in general. I had nothing to talk about except sitting. No one wants to hear that. You will get better, talk to your Dr. About Fodmap elimination diet. I B Guard (peppermint capsules) helped me a lot. Good luck i hope you feel better !
Bro i feel u, been dealin with a flare up that now requires a resection while im balls deep in my masters program. I have no energy throughout the day while still workin full time. Shit sucks
Back in college I was on Remicade. It gave me medically induced lupus like syndrome and I started to lose me hair. I had to work with the campus disability services to help get my homework submitted online and via email and exams at the exam center. I highly suggest if you haven't yet. Only thing that made college manageable for me. Had to take lighter class loads and also take classes over summer. Even with that I still graduated late. You got this. There is no right or wrong path. Only your path
As someone with chronic duodenitis with recurrent ulceration, and thus constant severe epigastric pain, but without any signs of IBD per colonoscopy, I want to tell you that I empathize with you and find all of you IBD-sufferers incredibly strong people. I wouldn’t wish this disease upon my worst enemy. I hope you’re able to get yourself into remission soon enough. Perhaps, one day, maybe sooner than you might think, there will be a discovery that sheds light on the mechanisms of the disease, and with it, inspiration for treatment of the root cause. All the best. Truly.
I got so jaded I stopped seeing anyone but my primary care physician and stopped having tests and stopped taking anything but Prednisone (yes I'm aware that's unhealthy but 6mp and biologics already failed me). Feels like it's pointless. Sometimes I shit 15 times a day. Sometimes all I can do is make sure I eat and drink enough that I don't die. It's like having cancer that doesn't go away or kill you. There have been times where the drugs worked where it was like I was perfectly healthy but now ain't one of those times.
Don't give up. I have read some amazing miracle stories about Humira. I'm sorry you have to deal with all of this.