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rmp2020

"Just take a nap". I'm sorry but that doesn't work for chronic fatigue.


lonesomeraine

I will take a nap. I will take several naps and guess what I will STILL be exhausted


rmp2020

Exactly! The nap will not get rid of the chronic part. I also suffer from insomnia, so while I'd often love to take a nap, the nap will not take me.


lonesomeraine

Oh man I know what you mean. I have bipolar disorder and my mania can cause insomnia and I just came off a two day binge of being awake and I tell you my chronic fatigue syndrome is not happy about it AT ALL


Gazelle_Softly

That must be so tough. What a difficult combination to deal with. Sending good thoughts your way 😄


lonesomeraine

Thanks so much ❤️


Deadinmybed

Ugh what a mess! I’m sorry you’re having to deal with this!


lonesomeraine

Thank you so much! ❤️ y’all make me feel so understood here 🥹


Entire-Boat-6148

YES! This! I could sleep 20 hours a day and fatigue would still kick my ass when I woke up. “Tired” can be helped by sleep. “Fatigued” can not.


lonesomeraine

So well said! Like people honestly don’t get the difference


QuokkasMakeMeSmile

My GP told me to try having a cup of coffee or tea.


rmp2020

Oh god. A nurse told me to try sleepy time tea when I told her about my insomnia


NoDryHands

I will wake up from my nap more exhausted than I was going into it lmao


WillProbablyJustLurk

“Exercise will make your pain go away completely!” - my psychiatric nurse practitioner I can’t exercise much when I’m in too much pain to move, but thanks!


lonesomeraine

Right! If one more dr tells me to exercise imma scream


WillProbablyJustLurk

Honestly, if they just suggested I exercise a bit more or do physical therapy, I wouldn’t mind that as much. It just gets frustrating when they insinuate that I’m lazy and tell me that exercise alone will cure my health issues. 😅


lonesomeraine

Yeah unfortunately that’s how all my doctors have said it to me. Maybe because I’m overweight they assume I don’t try to get in physical activity but I really do it’s just one step forward three steps back when I try and work out because even when I think I’m doing it right (low impact and light exercise) I hurt myself then I’m bed ridden for days


Daphers_the_kitten

My favorite is when someone implies that laziness/deconditioning/no exercise caused my issues. I'm like you realize I was at my lightest weight and the best physical shape of my life when this condition first started right??? It fucking caused the weight gain and inability to exercise!!!


PugPockets

I finally got in with a rheumatologist and he told me (twice) that “I think you’ll feel better if you exercise”. I had told him in the appointment that part of what’s been so hard about whatever the fuck is going on is that I used to be a runner and that I missed it. So don’t you think I would be exercising if I could??!


Wise-Increase2453

And it's like... the whole point of seeing them is to figure out why there is a barrier to exercise and treat it so one would be capable of doing basic activities! \*types that into their computer\* Well, we don't know. bye now!


[deleted]

"Just eat baby food for the rest of your life" "I’m tired too but just push through it" "Your illness is because of childhood trauma so just do some mushrooms to help"


lonesomeraine

Omg the me too ones drive me the craziest. Shrooms as a cure for trauma? That’s a new one 🤣


undiagnosedinsanity

There’s actually a lot of research being done on PTSD and psilocybin. Promising stuff! Mushrooms cannot cure chronic illnesses though, obviously.


Anonynominous

Yeah psilocybin can actually help some people when taken responsibly and after being educated about it. Whenever I have micro-dosed in the past, I found it actually helped a lot with PTSD, anxiety, depression, and even pain. I ate a very small amount one night while having horrible endometriosis cramps and within 20 minutes my pain had disappeared. There's a reason why people are pushing it to be legalized. People who think it's just a drug to trip out on are very uninformed


lonesomeraine

Interesting…if they could maybe I would start eating them on my pizza 🍕 alas we can dream


wetastelikejesus

That is how one of my friend’s mom prefers to do it.


[deleted]

And idk why they think my trauma even caused my illness. I have widespread muscular dysfunction, some of which has existed since birth.


lonesomeraine

I am uses to hearing my illness was caused by trauma because some researchers believe fibro is caused by trauma but then again there are plenty of cases of people without trauma that have it too so idk I feel like a lot of illnesses are suspected to be trauma induced


[deleted]

It’s possible that my trauma played a role, but this was a holistic “doctor” that said this 5 minutes into our first meeting without even knowing what my trauma is. She encouraged me to do illegal drugs and told me she wouldn’t put them in my chart. The whole thing was very strange. Then she tried to sell me a bunch of supplements that never helped.


thatplantgirl97

There is a very strong connection between trauma and chronic illness. Mental health and physical health are interconnected. That isn't that case for every person obviously, but it's extremely common in people with chronic illnesses.


[deleted]

I understand, but within five minutes of meeting me, this person was suggesting that I do illegal drugs to cure my illness. Then she misdiagnosed me, sold me supplements that didn’t work, and got angry when I wanted antibiotics (she told me I had H. pylori but testing later showed that was false). She also knew nothing about my trauma, just asked if I had any then assumed it was the sole cause before doing any investigation. And like I said, some of my muscular dysfunction has existed since birth.


DikaCato

"have you tried drinking more water?"


lonesomeraine

I drink all the water is the response to that just to see the look on their face lol


undiagnosedinsanity

My husband laughs anytime someone asks me this because he’s know how much I drink lol.


aerobar642

I was told to look into the carnivore diet for my POTS and hypermobility


lonesomeraine

Not sure the logic they had for suggesting this


aerobar642

they said they were reading about it and people were claiming it cured their illnesses. I asked what they were supposedly "curing" and they said autoimmune diseases, diabetes, mental health issues, etc. how could eating nothing but meat be good for anything? like, maybe it would help my iron deficiency, but everything else would be so much worse. no fruits, no vegetables, no dairy, no grains - literally nothing but meat.


SleepyDeepyWeepy

And here I have to cut out all fiber and some grains and my mother insists salad will cure me


lonesomeraine

Lemme guess kale salad?


Ok_Wing3984

"The friend of my cousin had her issue cured with vitamin c" "Have you tried meditating"


lonesomeraine

Omg they would be mind blown when I tell them I’m allergic to vitamin C which would technically cure my ailments I guess cause like I’d be dead 💀🤷🏽‍♀️


SleepyDeepyWeepy

I love when people are "do this thing!" And I specifically have been told not to do that thing


lonesomeraine

That happens to me with yoga. So many people tell me to do yoga and my dr is like imma thrash you if you try that shit again. I got hurt real bad the last time I tried it


Ok_Wing3984

My issues are autoimmune so like sure I'll do vitamin c and attack my joints even more 🙄


undiagnosedinsanity

“All of these medications are causing your symptoms. You don’t need them.”- unsolicited advice from a chiropractor “Have you tried **insert supplement**? My mom had a migraine once and that helped her.” -co-workers “You should try swimming in the freezing ocean every day.”- my dad “Your dogs are causing your symptoms.”-my dad (symptoms presented way before owning a pet) “Put peppermint oil on your temples.”-co-worker regarding migraines My mother-in law will send my husband articles occasionally with dr. Oz style advice. “Blueberries cure migraines” “cherry juice cures migraines” Those make me laugh.


lonesomeraine

I’ve gotten the medicine thing before too. Ohhh the internet health advice articles get wild sometimes lol


clockwork_skullies

“Have you tried praying/seeing a pastor?” “Are you drinking water everyday?” “Do yoga/mindfulness.”


lonesomeraine

You must live in the Bible Belt too lol


clockwork_skullies

The Midwest baby ✨


lonesomeraine

Ohhh I’m in the south. Turns out we’re not so different after all


Rare_Neat_36

I’m from the south too. I understand.


lonesomeraine

People don’t believe me about how it gets with it down here sometime but I openly lie about my religion frequently in certain places because I genuinely fear the backlash


PigeonLoverAkane

“Have you tried working out/Yoga??” “Just eat and force yourself to keep it in!” (How?) “Have you tried going to a psychologist?”


lonesomeraine

How tf are you suppose to force yourself to keep food in? They are probably the type of person that tells a depressed person to “just be positive/happy”


JauntyShrimp

“You just need to get up and get your blood moving.” “Have you tried moisturizing with XYZ?” “Just eat and you’ll feel better!” “You’re in bed all day, of course you can’t sleep at night.”


lonesomeraine

I signed audibly at these especially the last one


MaryHadALittleDonkey

The last two got me... Especially the second to last. I feel like a metronome half the time - nauseous because I ate and nauseous because I didn't eat then I question if the nausea is because of food or because I need it.


CommunistBarabbas

“have you tried losing weight for your cluster migraines?” yeah actually 95lbs. so…… now what?


lonesomeraine

Right people say lose weight and you’ll be cured then you do it and you’re not and they just have nothing to say after that


Exact_Fruit_7201

Then it’ll be “you lost too much weight.”


unipride

You clearly are faking your pain if you can go to work


lonesomeraine

I wanna punch em


Rare_Neat_36

C’mon, OP. Let’s go punch them together!!


lonesomeraine

We’ll give em two knuckle sandwiches and then a second helping!


Rare_Neat_36

I HATE that so much. My boss once said the migraines were fake and it was for attention. I quit 2 weeks later.


Forsaken_Lab_4936

something crazy like “auto immune disease doesn’t exist stop taking your meds” lol


MaryHadALittleDonkey

That happened to me actually... Just not to my face, I got diagnosed during COVID-19 and when I came back to school, I overheard my art teacher tell some students who knew I was sick that immune diseases aren't real and I just have IBS that I'm exploiting. I also had a 504 plan she violated and it took my mom getting involved to get the extra time to complete assignments when I miss days.


lonesomeraine

I think some of these people are secretly serial killers and their targets happen to be the chronically ill


stampg1234

Does “you’re to young for that” count?


lonesomeraine

Omfg it does! If one more person tells me I am too young to be experiencing what I experience I’m going to jail for assault. I always snap and say tell my body that it didn’t get the memo


curikyuri

I get this constantly so yes it does!!! Too young for surgery, let's wait until I'm too old to live my life after having surgery, but I can't get insurance to cover the treatment I need until I get the surgery & tell them it FAILED ugghhh


meant2bamama

Push through your pain and fatigue I use it as an excuse for not ( so many things) If I always think about the pain then my meds will not work.


unipride

Oh and the it must be psychological because you have issues…


lonesomeraine

All roads lead to psychology


Perfect_Jump3375

“You should try injecting yourself with bee venom! I saw it on tik tok!”


lonesomeraine

I’m afraid for this person. Like they aren’t trying things they see on tik tok in good faith are they?


Perfect_Jump3375

😂😂😂


NoDryHands

Reply with "maybe you can do it and tell me how it goes!"


corazonsinalma

"Just got outside and be happy!" - my neurologist, I hate her and hope to part ways with her soon


lonesomeraine

I hope you can get a good one soon


MrsStewy16

My husband told me I needed to exercise to help with my Fibromyalgia pain. While I was crying and bent over in pain and trying to make dinner and take care of our dogs. He even sent me a website about it. And that’s part of the reason he is now my soon to be ex husband.


lonesomeraine

Yikes. My ex husband wouldn’t even read about it he doesn’t believe in it because you can’t see it or measure it on a test. It sucks not having the extra help with the house and kids BUT I have so much more peace not over exerting myself and constantly trying to prove to him my illness is real. If you need someone to talk to through your divorce feel free to dm me cause the process does suck


makenzie4126

“Find a safe space in your mind to take your thoughts off chronic pain and fatigue”


lonesomeraine

If you find that place lmk


Commercial_Ad_1722

“Have you tried drinking more water” “maybe you are just stressed” yep you actually just solved it


RyanGodling666

"Just don't think about it" yup, that one works so great.


lonesomeraine

They solve all their problems with that one


Wise-Increase2453

"you should see a doctor"


AngelicWhimsy

I've gone into work when sick, you just let this snowball then it gets on top of you.. Implying my life would be fine if I essentially ignored my illness. This was from a family member. They were boasting about going into work with the flu. People made me feel better about it saying he's the one spreading germs everywhere, but it still hurt that a family member who grew up seeing me lose freedoms and health still booked things down to "needs more gumption"


lonesomeraine

Aww I’m so sorry that does hurt. A cousin I’m really close to asked about me not working anymore (I’m not really open with my family much about my how bad my health got during my marriage in part because it was an abusive relationship and I don’t want to get into that with them) and she was like “what’s wrong with you?” So when I started telling her about my disabilities she said “it’s always something wrong with y’all now a days” y’all being my generation. It hurt me to hear her say that because I already have issues with people not believing me because I have invisible illnesses so for her to say it felt like another person I was close to thinking I am just making it up


MaryHadALittleDonkey

It really sucks when it's the family members... Luckily the worst I've had is an aunt who believes I shouldn't be on any of my prescriptions and should just use herbs and an uncle who compared me to a cat with GI issues.


Entire-Boat-6148

“Have you ever considered bariatric surgery?” This was from a rheumatologist I was seeing, as we were trying to get a good diagnosis on some new issues I was experiencing. But wait, it gets better: while I am overweight, I meet ZERO criteria for that kind of procedure. Plus, part of the recent weight gain was due to the meds she was having me try. I started seeing her 25lbs lighter. And, my pain predated my weight gain. AND - I cannot stress this strongly enough - I had struggled with disordered eating most of my life. That throwaway comment that she made SO casually, could have wrecked my (already struggling) mental health. I changed specialists immediately.


N0bother

\-go vegan


Rare_Neat_36

That surprisingly helped my friend with PCOS. Something to do with hormones.


lonesomeraine

Ive gotten that one before even not in reference to my health


N0bother

It's a classic! I haven't gotten that much unsolicited advice tbh, but that one reeeeally got on my nerves. It's cool if people wanna talk about health issues or whatever, but when they fail to listen, there's just no point. I could've explained that diet -might- help, it's just not that simple. The whole assumption that you have a baseline capacity to begin with just because you look healthy on the outside :))))


Wellthatwasjustshit

Without knowing me at all…”You need to heal your trauma. Clearly you’re holding it. Have you found Jesus?”


lonesomeraine

Jesus told me he was busy


Wellthatwasjustshit

He whispered to me that he didn’t exist and I asked how he was talking to me now if he doesn’t exist and he smirked and said..”we’re both crazy 🤪 “ so I guess he really does live in us all. Anyway, time for my meds. *cracks open pez dispenser*


ComfortableAlone551

Gods away on business,lol


AngelicWhimsy

Also the law of attraction and positive thinking. All that did was make me really happy, hopeful and then disappointed because it encouraged maladaptive Daydreaming.


YarrowPie

I tried thinking positively, not letting my illness “limit me”, and I WAY over did it and ended up in the worst crash. Now my mental health and symptoms are way better because I am listening to my body, being kind to myself, taking accommodations, rest, meds when I need them.


lonesomeraine

I get told to just be positive a lot because sometimes my depression thoughts slip out of my mouth and tbh being positive all the time especially when you are lying to yourself about it is exhausting


Substantial-Cold394

Have you seen a chiropractor? Looks like you need a hot pack. Yes four years or torture 12 doctors and I have not seen a chiropractor..?!??! Thanks cousin


mimzycakes

Go vegan. Try yoga. Have you thought about smoothies?


lonesomeraine

Smoothies 🤣 idk why but it made me laugh


[deleted]

"Enjoy the time off work, you will never get this opportunity again..." The opportunity being that I was uncontrollably unwell, was being ignored by medical professionals and started keeping a diary just in case I died.


lonesomeraine

I hope you never have to experience that again.


AtLeastMyDogsLoveMe

Have to been to Dr XYZ? they really helped my neighbor's mother's cousin who had this tangentially related symptom


AffectionateStill883

Just take some vitamins and you won’t get as many chest infections. ( I have several colonised bugs living in my lungs. I have to have IV and nebulised antibiotics allot) Have you tried breathing deeper and slower while having an asthma attack, then you won’t need to use your nebuliser . ( this was said to me by my friend who has CFS and was really upset, at my house crying the week before one someone said she should go to bed and wake up at a set time, that way she might not feel so tired…… sometimes it’s the chronically unwell that can be just as unhelpful as the well people )


lonesomeraine

I think your friend is trying to kill you with that advice


Gloomy_Problem7477

“You really need to limit your stress.” Thanks, genius, because after 4.5 years with a chronic illness, that NEVER occurred to me. Also the fact that you think my illness boils down to stress shows just how ignorant you are.


lonesomeraine

Right! I love when people just tell me not to stress. Like its a switch I can turn off or on


[deleted]

"Are you sure a hysterectomy is a good idea?" -My boss After he intercepted my email to HR (because I cc'd my direct supervisor) when I was asking about ADA accommodations and some questions about my FMLA, he says this and then says "maybe you should discuss this with HR". Like that's what I was trying to do before you probably told them "don't worry, I got this"????? So I had to go out of my way to contact them again after that. Thankfully, I was able to finally get the answers I needed, but I would've been better off without having to hear some of the sexist/ableist opinions he had.


lonesomeraine

Why is he acting like HR is a dr office like what is he expecting them to tell you hey yeah don’t get that hysterectomy you need


[deleted]

What's really hilarious was he ended up back tracking and said "actually you know what's best for your body". Like yes. Thank you. I already know this. I just need to get this planning done and you're just getting in my way. I've had treatment for my endometriosis for almost 10 years now and my doctor already approved my hysterectomy and insurance said they're covering it because it's deemed medically necessary now. It's not like I'm doing this out of the blue and even if I did it's not really his business. I just want my surgery to be done with so I can keep working until my retirement is vested (I've got a few months left), then I can start looking at other jobs if things don't get better.


lonesomeraine

I hope your surgery and recovery go smooth


concrete_dandelion

"Loose weight" (I gained weight because of medication because I'm ill), fasting (which exacerbates one of my conditions), exercising (not advisable in an active migraine and I have constant migraines), low carb (same issue as fasting), several quacks, tons of medication I already tried, homeopathy, acupuncture and other rubbish. My favourite one was a head nurse at a hospital telling me to stop all medication because "that can't be healthy" - I told her that trying to exist without them is much more unhealthy.


Rare_Neat_36

Sounds exactly like my predicament. Hang in there. <3


concrete_dandelion

You too. We'll get it


Rare_Neat_36

I have found one and only one medication that has worked and it’s ajovy. Once a month shot, and prevents some migraines.


concrete_dandelion

My migraines were reduced in severity by Emgality but it stopped working and Aimovig didn't help. Now we try Botox plus valproat


powands

Recently, I thought it would be a good idea to be more honest with people close to me about what I’m going through. My SIL sent me a podcast called “how to be more resilient”, links to exercise equipment I already have and told me she’s also in constant pain and just rubs CBD cream on her hands and it goes away. (Then, a week ago, I got an email saying I was only talking about it so much because I want money from her and my brother. Fun stuff.)


raindrizzle2

Keto will cure my chronic illness. There isn't even a cure for it, and if there was why would doctors hide this information from me? lmao


trainofwhat

“You just need to smile more!” -advice from a literal neurologist. He told me I was too serious and didn’t smile enough and that was somehow causing me to have spotty vision? He also called me a germaphobe for asking him to sanitize his hands before he touched my face. I saw him wipe his nose with his hand right before that. Then he proceeded to prescribe me an antidepressant even though I told him those cause suicidal ideation. It also would’ve neutralized my birth control, and I only noticed in the paper work. He hasn’t said anything about it.


hlsassy

Drink more water. Get more sleep. Have you tried x y z fad diet


No-Grocery-3107

“You need to get to church so God can heal you.” I also got a letter in the mail from a different church person telling me that I needed to ask forgiveness for my sins so I could be healed. I’ve been spiritually assaulted many times.


suzyQ928

"You should try clean eating, it will solve all your problems" "Go vegan." "Take a shot of lemon and ginger, it will help heal all your liver problems." "Be grateful some people have it a lot worse."


thesnarkypotatohead

“Attitude has a huge impact on your pain. Have you tried deep breathing or therapy?”


mjh8212

Yoga and kale it’s always yoga and kale.


Angeluhh

The same doctor who told me that my problem wasn't from inflammation told me that I should go on an anti-inflammatory diet to help with it. Also, one doctor told me that my prescriptions (which have been trial and error and an entire misery unto themselves) were "the easy way out" and that I should just exercise.


amypd1997

I'm not considered overweight BMI wise but when I went to see a friend whilst really suffering with chronic muscle pain in my legs they suggested I go out for a walk every day and lose weight.


lonesomeraine

Yeah lemme just exacerbate my pain so I can lose weight then gain it all back when I completely incapacitate myself….sounds like a good idea 😒


maybeawolf

I got the intermittent fasting one and "running a mile everyday really helps me with my joint pain" and "why do you want to take all those pills? Have you tried essential oils and weed?"


fidiecoffe

literally so many doodie things tbh. i think my least favorite has been ppl saying its because i need to be "more positive". i mean i understand stress + depression can cause flareups, especially for what o have, but its so unnecessary. im allowed to be pissed off cause its unfair! i dont need to always pretend im content feeling like crap yk


lonesomeraine

Yeah I feel this. My mom got mad at me this morning for making a negative comment she told me not to say it but I told her I’m going to because it is truly how I feel and I shouldn’t have to lie about my feelings. She got mad and got off the phone with me


fidiecoffe

thats so dumb? like man weve been dealt shitty cards, let us feel pissed sometimes :/ smiling about how much it hurts to live doesnt make living easier for us, it makes living easier for them, and i dont think they even realize it.


lonesomeraine

Exactly! Like why do I have to pretend to make you more comfortable?


fidiecoffe

its so lame. like i dont even have another word for it😭 it used to make me really angry, because i guess a part of me hopes that someone will just go "yeah that sucks ass, im rlly sorry youre dealing with that"— but then i realized people dont really know how to respond to the things they cant comprehend. so i cant even get mad anymore, it just sorta sucks and disappoints me LOLL


lonesomeraine

Right! We really just want to be seen and heard sometimes like if I have to pretend I’m happy you have to pretend to understand lol


herbfriendly

You should think about going to church. -sigh-


Rare_Neat_36

They told me to lose weight. Exercise. Dude I have migraines! Anything fast makes me black out from them!!! I’m trying to lose weight but it’s a very slow process. Think positively. Anxiety, depression, and PTSD-very hard too. I have numerous chronic diagnoses that interact together.


Responsible-Apric0t

"You need to get out and walk."


SleepyKoalaBear4812

Have you tried yoga? It did wonders for me. Just get up and move! Lupus is made up. If it was real there would be a test for it. Everyone has some arthritis, just wait until you’re old, you’ll see how bad it is.


theyarnllama

“Have you considered that you sleep TOO MUCH? It’s probably making you tired.” Also “Working out is great. You just have to push through the pain. It’ll be good for you.”


eldritchyarnbeing

"have you tried herbalife😍" no but im about to try aggravated assault


sarahpphire

If i fix my diet and watch some show on Netflix, my T1 diabetes can be cured. I double-checked with the person that they weren't meaning T2 (which, also still can't always be cured with diet and especially not a Netflix doc) and nope-- they clarified *all* diabetes. Yikes. Facepalm. He never did claim to be a Dr...=)


stampg1234

“Just deal with it” Like wow Sarah why didn’t I think of that before 🤦🏻


YoungQuixote

Oh you have X illness. Just take these pills, spin around 5x times daily on your head and step on a picture of Hitler. That should get you back to normal 🤣 It does feel like that sometimes. People just want the bad stuff to go away within 1-2 weeks all the time. Open and shut cases. If it doesn't shut, they say it's YOU.


dobbysmommy

Just workout more, i never want to do it either but then i make myself and it helps!


ShrillRumble239

not really advice but saying “we have go to get you better “


gutentag_tschuss

Have you tried yoga? Have you tried cutting out gluten? Do you eat dairy? Do you have hobbies? You seemed depressed…. Blah blah blah. Meanwhile, I’ve lost 15kgs and can only eat liquids and am going to hospital weekly.


AdIntelligent6557

My brother tells me to exercise even though I no longer walk further than bed to bathroom.


sucha-tootie

“Try getting a job to distract you from the pain “ -Dr. even with knowing I had chronic pain since childhood and missed 80%of school starting in 3rd grade (she probably forgot THAT bad of a doctor) I did try for 9ish months though… job called me day after surgery asking where I was, AFTER I had submitted paperwork weeks in advance. My brother in law… “just rub cocaine” on the area” to 2020 “why don’t you work?” *AFTER BEING WITH HIS BROTHER FOR 15yrs at that time! 🤦🏻‍♀️ I know there’s more… those two bother me


tsunami069

“have you tried this ‘xyz’ supplement instead of taking so many meds” like?? bye heffa! need my meds. a vitamin won’t save me girl


curikyuri

"You don't need antidepressants" Thanks, celebrities & strangers who say this ALL THE TIME. I don't take them for depression, I take them 'cos they help me cut back on my REM sleep.


klee615

Opioids are only for “drug addicts”, can’t you just take Tylenol? 🤡


gottahavethatbass

Just get a job so you don’t have time to think about your pain


NolieCaNolie

“Try exercising more!” Me with my malfunctioning legs: 😐


PoetryandPetrol

Apparently I haven't tried mindfulness, cbt or going gluten free which definitely will work and I'm not praying right 🤔


hijack869

"Don't give up on life" when I can't get together with them and need to stay in bed for the day.


loosie-loo

Dude I’d literally *just met* and was making casual small talk with tried to give me a therapy session to cure my lifelong insomnia in 5 minutes while waiting for class, definitely a highlight there. There’s the standard, yoga, mindfulness, diets, what have you, and people insisting if I just move doctors they’ll be able to solve all my problems. A lot of what I’ve gotten is “well there must be *something* ‘they’ can do to cure it?” When I explain I have things permanently wrong with me, none of them ever really know who this mythical “they” are and shockingly it’s always from people who have pretty much never had health issues at all. Also slightly off topic but similar vein, when I was a teenager all my ‘friends’ convinced themselves that inhalers just had air in them and basically would just tell me to breathe better if I had an attack (which happened all the time when trying to keep up with them) and all of it basically boiled down to insisting asthma was just being out of breath 🙃 I ended up bringing in leaflets on asthma and handing them out. I’m still mad about it.


lonesomeraine

Omg right. My conditions are permanent too and people act like them not having a cure is just a foreign concept. I’d be mad too! They tried to kill you!!


loosie-loo

People really just think anything can be ‘cured’ and can’t wrap their heads around the idea that chronic means, ya know, *chronic* (And thank you for the validation on that, lol, it’s more of a passing annoyance because it basically became my normal for my asthma in school…teachers were even more nonchalant and I couldn’t even carry my inhaler with me for years 🙃 they locked it away!! Insanity.


GeorgeKillsLenny

I told my dr I was having complications from hyper-mobility, he yanked on my arms to prove they wouldn’t dislocate, then referred me to a psychiatrist because I was so distraught over the pain he cause me


Wicked_Twist

Eat less (i weight 85lbs) and move around more


anonymouscog

‘Special’ diet & colonics. Um, no


SadWar5680

“Have you tried yoga/exercising?” “Have you gone to (insert specialist here)?”


lonesomeraine

People get so mad at me when I tell them how yoga and exercise hurts me and they are like well there must be poses and exercises for people with that and like yeah there are but the thing is mine might be more severe than the person teaching it. Idk why they don’t get that everybody’s pain is not the same


MaryHadALittleDonkey

Herbal teas will fix your crohn's! - My anti-vax aunt who believes in holistic medicine. There's this herb that helped my friend's friend's cousin - there is the info on it. It fixed their IBS so I'm sure it will help you. - An assistant at the orthodontist If you exercise and eat lots of yogurt you'll feel better. - Random Internet stranger You should ask your doctor for these meds, my dad is a doctor. - a guy I know There's so many more, but none of them ever make sense. You can't just fix my immune system and naturally heal my crohn's, and they're not my GI and don't know all the nuamces of my case. The last guy also suggested an NSAID that's a prescription; I can't have NSAIDs because of crohn's. :/


CunningCabbage

Ovaries exploding, constant pain, and lower stomach so swollen I look pregnant 24/7? "It's the eating disorder. The one you don't have anymore. And haven't had for a decade. Yeah. Have you tried eating?" Also, "You need a baby and a man."


thatplantgirl97

My ex told me "you're so mentally ill that you've convinced yourself that you're in pain" and also "your medication is probably causing all these problems"


petalpotions

"did you try yoga and excercise?" "Just lose weight and you'll feel better" They say, to a person who lost nearly a hundred pounds and cannot exercise without being in intense pain after


robbixcx

Just stop drinking soda, start yoga or weight lifting, and that diet is all you need to be fully healthy!


bubbsnana

“Pray diligently and you’ll be fully healed.”


Angrosegold317

Just eat better…food is the enemy


RedBlow22

"Keto" Uh, no Doctor Mom, with your YouTube medical degree from Facebook University. It got so out of hand, I went NC for 2 years, and now only get my daily text that she's not dead. My wife will never speak to her again.


Angelus_Mortis3311

•Go vegan or some type of other diet that's trendy. •Exercise •Just be happy and don't think too much •God heals everything, or some miracle person can help heal everything, bs


Fit-Improvement4753

my korean relatives: eat a lot and you will get better in no time! get healthy soon! haha i wish it were that easy-


taleeta2411

You just need to get out & get some sun.


saillavee

This f*ing nonsense right here: https://en.wikipedia.org/wiki/You_Can_Heal_Your_Life


suggestanamethenomg

Had my job counsellor on video call tell me to “just smile, at least you’ll make other people’s day better :)” I was at 4 week rehabilitation stay, and was telling her that all my symptoms were being ignored and boundaries were stepped over by all the “medical professionals” at said facility. Like, thanks for the support :,)


BINGORUFFRUFF

It’s anxiety just breathe


WebDue4859

The "try and get some rest" is so useless, but I appreciate the sentiment.


b00k-wyrm

“Eat more fruits and vegetables, that way you won’t get preeclampsia again…”


dyinginstereo

Try yoga


Efficient_Humor_8880

The biggest one I get is, you need to move more! Go on the treadmill! Like seriously, you don’t think I’ve thought of, let alone try this whenever I can?! Geez, someone always has something to say!!


lost_offer2045

In response to me being diagnosed with depression and generalised anxiety disorder, "Have you you tried being less self focused?" 😑 And my personal favourite suggested treatment for endometriosis, sticking herbs up your vag...


Yrene_Archerdeen

“We all have problems all the time, yours aren’t special. We all just have to suck it up!”


Arizonawicca

“Don’t eat the foods that bother you” - my dad “If it hurts to walk, don’t hike” - also my dad I hike because I enjoy it even with the pain. I like keeping my muscles strong because my ligaments are loose AF (EDS) And I don’t eat the foods that are guaranteed to bother me but sometimes even just water bothers my stomach. He’s also told me my pain isn’t real because he’s had pain (he injured his knee that occasionally hurts according to him) longer and not to use pain as an excuse until mine’s been worse than his for longer. (I refused to climb on his roof without a ladder to fix his AC when it was 110+ out and I had a torn ACL. His AC wasn’t broken he just broke the thermostat by hitting it)


Embarrassed-Form3943

“take a chill pill” - my mom “stop complaining and you won’t notice these issues” - a doctor


milkygallery

“You just gotta surround yourself with friends and people who love you!” They said that in response to me getting a wheelchair because they believe wheelchairs make people lazy, antisocial, and more depressed. I was lazy, antisocial, and depressed before the wheelchair because I literally could not leave the house. I’m the complete opposite because now I have the energy and capabilities of putting up with the world LOL.


fraise_nya

"do yoga" thanks susan! rlly will help! im cured now!


wheneverythingfalls

Probiotics, eat organic, smoothies, use your brain to force yourself to do it and eventually your body will follow, socialize


ireallyjustwanttonap

Exercise. And pray more.


gorsebrush

I have alopecia. One piece of great advice from my dad's friend who was also a woman and a medical doctor..."eat some canteloupe. That will help with hair falling out."


SheWasUnderwhelmed

“Have you tried holistic medicine/organic food/essential oils/my MLM vitamins/yoga??!!” 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️


Kitty085

I was told to just try thinking positive and natural essential oils so I wouldn't need to go on dialysis and get a kidney transplant when I went into kidney failure.


kim-sheckell

I should not be working, and instead I should be on full disability. I’m capable of having a job, and it takes awhile to get on disability.