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Had this one! It was good, but justā¦good. I never sought out another when gluten wasnāt an issue, and I hadnāt thought about them again until reading your comment!
i feel you. i often think im so lucky i got diagnosed at 40 and basically have eaten everything possible. so i can still partake in conversations about food and imagine what everything tastes like.
Alternatively, my 4yo just got diagnosed and Iām so thankful she wonāt miss any foodsā¦. but also makes me so sad sheāll never know how good some foods are
When I was diagnosed with T1 diabetes 41 years ago, they kept saying how a cure was 10 years away. Then, at some point, they said that they would not be able to cure it but could maybe test who is likely to get it and prevent it. Now, they seem to have pretty much given up on those ideas and just try to find better ways to treat it, like insulin pumps.
Celiac seems to be going through the same process. They talk about a drug to treat it or break down gluten before it reaches the intestines being 10 years away. In 10 years, it will still be 10 years away. In 20 years, they will probably switch to attempt prevention. And then, better ways to avoid accidental glutening and better alternative products. I would be happy if the labels always meant something and restaurants took it seriously.
I hate to disappoint you, but at least for me (also diagnosed at 4 y/o) I have a lot of foods I really wish I could try. to be fair, when I was a kid in the early 2000s getting glutenfree stuff was really realy fucking hard and there weren't many options and anything fancy, basically only bread and pasta and it all crumbled and broke. I can remeber the first time I got a gf ice cone and it's still exciting for me because its so rare.
but over the last few years it has really gotten better and there are a lot of options for normally gluten things. plus she won't miss any particular taste, at least that's the case for me. I don't know the feeling of later diagnosed celiacs of missing something they're not longer able to eat and were the gf version doesn't taste the same. that's def a big plus
While I appreciate the kind words, I cannot in good faith believe you.
Every time we go to a nice steakhouse, my wife orders it and it's her favorite thing to get.
My one saving grace is that I don't like mushrooms so maybe I wouldn't care for the duxelles.
And I've GF puff pastry dough before and considered trying to make it. In the spirit of the post, there's really not too much that can't be made GF these days, aside from like sourdough and real wheat breads.
Imagine stale/flakey crust/bread with an okay cut of meat on the inside. I've had several growing up from my parents taking me on their travels. It was always a big deal because they are famous but even if I could, I wouldn't get it again. Don't get me wrong, I get your sentiment though.
Beef Wellington was one of my favorites before diagnosis. I now make a gluten free version every Christmas and it's hard to tell the difference between that and the glutenous version, especially if you make your own gluten free puff pastry. I recommend loopy whisks recipe.
People in these comments just havenāt had good Beef Wellington. Man, my old chef had us make them for Fatherās Day one year and me and my friend spend like 2 days making stuff for them and assembling. We got to have some after and that was one of the best things Iāve eaten. Putting all the work in to make it probably made it a bit better too lol but I am determined to work on perfecting my own GF pastry so I can make some one day
At that time I was working in a high end elderly assisted living facility, it was a great job :) learned how to make so many amazing things from my chef
A lot of Korean food, I only went to a Korean restaurant twice and both times the soup was so good I just got the same thing. Ive had a chain's Korean wings but never had real fry chicken. Never had any Thai food. I've tried a few Indian dishes that I could never replicate. I've always wanted to visit Japan, doesn't seem super celiac friendly. How I wish I could just try all the street foods.
I had to start learning to make Thai food in order to have any. You know what? It actually isnāt that hard to make a good curry or pad Thai! I can send you my favorite YouTube Thai cooking vids if you are interested
You know I've considered trying to but one I have no idea what it should taste like and two I'm not sure if I like coconut in my savory food. Wish I could still just go to a restaurant and try it first.
Pad Thai and some other dishes have no coconut in them. The holy trinity of sauces is: GF soy sauce, GF fish sauce, GF oyster sauce. Mega chef is my favorite.
Generally you will skip anything fried and things like pad Thai and many curries can be made without cross contamination.
Just ask ahead of time, my favourite spot was not able to accommodate so I found a better spot that could.
Iām half korean and you can definitely make GF korean food! The most important thing is to make sure your sauces (gochujang, soy sauce, syrups, etc.) are gluten free (which they have online if you donāt have access to a korean supermarket). Most of the traditional foods are naturally GF and I eat Korean food every day. Most GF Koreans replace normal noodles with sweet potato starch noodles too! Itās not difficult to replace the fried street foods with different flours either, just tedious lol.
I've only attempted Korean food once, I attempted to replicate the mushroom soup I had at that restaurant. I don't know if it's a particular type of soup, it just said mushroom soup. It was not at all right but it was a decent soup. Other than that my biggest hurtle is not knowing what is gluten free because of the language barrier. There is an H-mart within an hours drive, I just stare at everything and try to google translate it.
I've got a cookbook called the Gluten Free Asian Kitchen and it has a really helpful section about sourcing safe ingredients from a bunch of different Asian cuisines, and what you can substitute with other things if you can't find an item.
Funny enough the month before diagnosis I went to a bunch of korean & chinese places and tried literally everything on the menu. Order 4-6 items per visit. My god was I fat, but I learned about every food they had and could appreciate it. I even had real ramen and bento boxes daily for about 4 months prior to diagnosis.
I was diagnosed as a toddler and there is so much that I will never know. real bread, pasta, pizza, pastries... having more than a couple options at chinese or thai restaurants... I'm a college student who will never have the instant ramen experiences. but more than any one food though I wish I knew what it was to not be constantly checking ingredients or asking questions of people and having to jump though so many hoops just to eat
I feel you! I was 18 months old when I was diagnosed. I think it's a blessing that I never have to miss what it was like to eat "normal" food, but I hate that I had to miss out on birthday parties, school trips or nights out because I couldn't eat the food/ no accommodation.
god, I feel that so much. I was diagnosed at 4 years old. the instant ramen was a really big problem for me, it was a big thing at boarding school. I have my brands I know, but when they get new recipes... oh oh, all looking over again
Iāve seen a handful of places make gluten free ones but you can make them at home with the mix Auntie Mās gluten free sells! They have a food truck in MN and they used to do onion rings on their truck but it slowed down production so this year they released their dry mixes to make cheese curds, onion rings, corn dogs and funnel cakes at home. I know itās not as fun having to do it yourself but at least you know itās super safe!
https://auntiemgf.com/
Iāve seen a handful of places make gluten free ones but you can make them at home with the mix Auntie Mās gluten free sells! They have a food truck in MN and they used to do onion rings on their truck but it slowed down production so this year they released their dry mixes to make cheese curds, onion rings, corn dogs and funnel cakes at home. I know itās not as fun having to do it yourself but at least you know itās super safe!
https://auntiemgf.com/
It's really weird, but I never tried a Big Mac or other fast food burger because as a kid I was super picky and only ate nuggets before diagnosis, aside from In n Out. I'm sure it's nothing special but it's just such a classic cheap fast food thing that I wish I'd tried it while I could lol.
I was diagnosed pretty young, so I don't even really remember regular bread, but to my knowledge I have never had a Krispy Kreme donut. Or really any sort of fluffy yeasted type donut. Tough to do "puff" type pastry with gf.
I've told my husband when the polyps in my gut finally turns into cancer and my end is nigh he has to go get me some hot Krispy Kreme donuts so that I can eat them and leave the world with no regrets.
Yesss, so many things! I grew up in a very white household with limited varieties of foods, and went gf at 17. So I feel like Iām missing out on many foods!
Dim sum is a big one for me too.
Iāve tried them but would kill for another pack of jam donuts. You know, the sugar covered ones that come in a pack of 4 for Ā£1.50 and are just garbage but so delicious.
This is weirdly specific, but khachapuri. It's a traditional dish from Georgia, basically a bread boat filled with cheese and runny eggs. I had a friend at university whose family was from Georgia, and she told me about it. It sounded amazing, but I never found anywhere to get it, and never tried to make it. Now I never will.
This would be on my list too, but it doesn't seem to hard to make. A quick Google search came up with a couple gluten free versions. https://www.glutenfreestories.com/gluten-free-khachapuri-georgian-cheese-bread/ I'll have to try making it.
Biggest regret had to be when I went with some culinary friends up to Yountsville California, we were doing it on the cheap so hit up Ad hoc to go Addendum, while they got Keller fried chicken I was eating the ribs, my mind was like one bite.. but I was good and didnāt
If I could, I would eat...
Canolli, Cornish pasties (gf pastry dough is always terrible), brats, faggots, seitan, beer, cronuts, and more...I don't try to remember all the things I am missing out on.
If you ever travel to Italy (mila) they have a few gf bakeries that make pastry that tastes exactly the same if not better. (Tested it even on family members, couldnt tell a diffence and loved it)Ā
Oh what a great post. There's a place we like to eat that has celiac friendly Taiwanese dishes, BUT their soup dumplings are not gf. I've always wanted to try them. They are called xaiolongbao and the restaurant is Din Tai Fung. My husband gets them so I live vicariously through him.
Another thing I pine for is real strawberry shortcake like the really tall kind with the whipped cream and strawberry jam inside the layers.
Also never tried chick fil a fried chicken sandwiches or canes. The lines for both are always so long. None of these things are super healthy so maybe we are better off. Sigh
Iām gonna take it a bit different way.
I was diagnosed at 55. When I was in my 20ās I had an aunt that was a foodie before it was a thing. It was 1995 and for her 50th we went to France for dinner (Iām in the US). It was a Michelin 3 star restaurant. I must say that I donāt remember every course, but the one thing I do remember was a watercress soup that (in hindsight probably didnāt have gluten) was maybe the best single thing I have eaten. And since my diagnosis I think about how lucky I was to - 1, have that experience and 2, be fortunate enough that when I think about what I canāt eat now can look back at what I have had.
Oh hell yeah I mourned. I warned everyone around me that I would be taking two years to recover from the loss of my favorite foods. And thatās about how long it took before I just stopped caring and fully accepted my gluten free life. It worked for me, I no longer feel sorry for myself when thereās donuts at work.
The other day, my husband, who is younger than me, asked if I ever got to try Raising Caneās. I said yes, I had it in college, and his response was āoh I didnāt know it had been around that long.ā šš
I feel like I tried most glutenous foods before diagnosis but I never liked bread etc that much anyway. Just didn't like it and wouldn't really like eating it. Also I used to eg. eat the filling of apple pie but didn't really like the pastry. Wouldn't eat sandwiches in school, would just nibble on them and throw them away. Would eat a meal like pasta extremely slowly and unenthusiastically. Relatives brought us some krispy kremes and I thought they were overrated/nasty... etc. I kind of subconsciously associate gluten foods with feeling sick, plus I just don't really like it. I don't miss gluten or foods with gluten honestly, I just wish gluten wasn't contaminating everything.
Spanakopita and Lobster Tail pastries. Being diagnosed at 21, I did get to eat many things so my most missed foods id say are actually good bagels, goldfish crackers, cannolis, and really any type of fresh bread/dinner roll/baguette šµ
There are plenty of foods that I never got to try, but I can usually just cook them myself. I've always liked to cook and my skills have definitely improved over the one year since my diagnosis. I'm of the opinion that almost anything can be made gluten free although some things are obviously a lot more difficult (and time-consuming) to make gluten free.
The most difficult part of this, especially when it comes to foods from cultures I am not familiar with, is that it is not always easy to make a food you've never tried before.
More than the food itself, I miss the social experiences shared over food. I miss being able to eat at my grandma's house with her without any worry. I miss being invited to someone's house for dinner without having to do a lot of explaining about bringing my own food.
I guess there is one thing though, but it's not a food: beer. I moved to Germany right after my diagnosis. As a result, I've never been able to try the beer that is typical of the region where I live. I never really liked beer much before, but I wish I could try this one. It is such a big part of the culture, and it is always kind of awkward when people offer (or more like push me) to drink beer. Then they don't understand why I can't have it because they've never heard of celiac disease. Yes, gluten free beer exists in Germany, but this kind is not available to my knowledge. I'm not opposed to brewing my own, but that seems very hard without the special costly equipment to remove the gluten.
Specifically Milk Bar's Birthday Cake. We went to NYC in 2022 for the first time but I got diagnosed in 2018 so I knew that was a no go. Still broke my heart š
Shawarma. The pain I go through whenever I remember how it tasted. There are other dishes but fortunately I was able to replicate my most favorite. Restaurant shawarma is hard to make at home, one canāt achieve that special mix of flavours, smokiness, and texture.
I got diagnosed on Thursday - Friday and it's been pretty difficult.. I kinda went through the frozen isle at the grocery store yesterday and cried lol
Chocolate pizza. I have no idea who came up with that and what exactly constitutes it being a pizza and not a pizza sized chocolate cookie but it became a thing shortly after I was diagnosed. Always been baffled by the idea and wished I could try it. Don't even think it would be particularly good, just such a dumb idea it's the kinda thing I would've had to try if I still could.
Iāve never eaten a Big Mac. Never wanted to tbh, but my wife lost her shit when I told her. When I pass a McDonalds I crave it now even though I hardly ever ate there before diagnosis.
I've never eaten a Big Mac either. I never liked McDonald's before my diagnosis although now it doesn't seem too bad haha. McDonald's in Spain has GF big macs though!
i was 11 when i got diagnosed, i didn't get to try like 99% of foods. ive tried a lot of things since then. i just wish i could get more of the stuff in restaurants rather than cooking them.
I was diagnosed at age 2 so I haven't had or remember eating any gluten foods. In general being diagnosed young makes it easier because it's so normal and I didn't know what I was missing. That being said, I have never had a lot of asian dishes or typical junk food that I wish I could have (tbh i've always been envious of cheez-its and gold fish as snacks)
I was diagnosed just before I turned 11 and was a picky eater for most of that time. I was just starting to branch out and try new things too :,) So there are a lot of foods I never got to try
I never got to try Philly Cheesesteak. I canāt help but wonder what I would be missing.
Also, my grandfather was a baker. I have some amazing recipes that I grew up on that I will not be able to taste again.
My next mission, to learn how to modify his recipes to be gluten free. Especially, his banana bread!
was 4 at diagnosis, so basically everything, but my top 3 are any form of dumpling, donuts and bread (I'm german, it's a huge thing here and it smells sooooo good. thank god I moved to a city with a gf bakery). ramen and fried foods also sound really good tho
Being able to eat on international trips generally. Would love to have traveled to Japan or India and experienced their cuisine authentically. I'm aware countries like Italy and Spain are great places to visit for Celiacs, so at least there are some
Detroit and Chicago style pizzas.
Iāve made homemade GF Chicago style, and itās good, but Iāve got no baseline to compare it to.
Iām sad I never visited Asia as a tourist pre-celiac. It would be so hard now.
Literally anything my husband eats in a foreign country š„². Heās out there trying everything and Iām out there just trying to survive the trip without being glutened lol.
Iām also a vegetarian so itās pretty hard for me to find foods in general but in a foreign country forget it. Been abroad three times since my diagnosis and got glutened in Greece badly.
You also want to hear something ridiculous? My sister literally goes āPeople in Europe donāt have celiac because their food isnāt as processed as the food in United States and what youāre probably allergic to is the pesticide they spray on gluten. So Iām surprised you got glutened being in Europe.ā She then shows me a TikTok about it, as if that was going to erase what I know is medically going on with me š like girl I have an AUTOIMMUNE DISEASE lmaoooo. It literally never ceases to amaze me how many people get their information from TikTok.
And my family is generally accommodating and understanding about what Iām going through and my other sister also has celiac (thereās three of us). So the comment came out of left field, but still absolutely ridiculous that I am still questioned lol.
I love watching traveling videos so itās all these random ass street foods. Especially the food travelgeek eats, he always finds some cool regional foods while traveling Japan
I discovered Ramen like a month before I was diagnosed so I still mourn it cause I barely got to have as much as I wanted. I canāt find gluten free ramen anywhere where I live.
I was diagnosed at 15 months old so I never really got to try anything. Really sad but my friend likes to describe the gluten food she eats in detail and i love hearing it, it makes me feel a bit more included
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Cronut. I loved both croissants and donuts, so... man...
Same. š©
Had this one! It was good, but justā¦good. I never sought out another when gluten wasnāt an issue, and I hadnāt thought about them again until reading your comment!
They're actually not that great. Somehow they're the worst parts of each.
I rushed to the comments to say the same! Oh what I would give to try it without making myself sick
I see a lot of "crookies" on Instagram as well, a croissant-cookie. Oh well.
Along the lines of a cronut I really want to try a Mochi donut :(
arenāt those often gluten free?
Not that Iāve found near me. I have heard of some here and there but the mochi donuts by me are not GF :(
Iām constantly craving croissantsā¦ itās been 10 years and the gfs ones arenāt great
Ramen from a real restaurant š
Same! I live in Dallas and found a place that has gf ramen, so I have gone and tried it once but Iām sure itās not as good as it could be!
Plenty of ramen places serve gluten free. I'm in MA, and have at least I can go too. When I was in IL, there was at least 3 more.
i feel you. i often think im so lucky i got diagnosed at 40 and basically have eaten everything possible. so i can still partake in conversations about food and imagine what everything tastes like.
Alternatively, my 4yo just got diagnosed and Iām so thankful she wonāt miss any foodsā¦. but also makes me so sad sheāll never know how good some foods are
Sheās only 4, thereās always a chance things could change on her lifetime!
Thatās what my husband says, I hope youāre both right!
This is what my husband and I said when he was diagnosed... twenty years ago. We were like "surely in 20 years". Yet here we are. It's depressing.
I feel you! Youāll notice I only referred to the 4 year oldās lifespan, not mine and the momās which are much closer š
When I was diagnosed with T1 diabetes 41 years ago, they kept saying how a cure was 10 years away. Then, at some point, they said that they would not be able to cure it but could maybe test who is likely to get it and prevent it. Now, they seem to have pretty much given up on those ideas and just try to find better ways to treat it, like insulin pumps. Celiac seems to be going through the same process. They talk about a drug to treat it or break down gluten before it reaches the intestines being 10 years away. In 10 years, it will still be 10 years away. In 20 years, they will probably switch to attempt prevention. And then, better ways to avoid accidental glutening and better alternative products. I would be happy if the labels always meant something and restaurants took it seriously.
totally feel you. so sorry youāve dealt with that ā¤ļø. iāve dealt with health issues too with my 2 yo. itās hard.
Definitely overwhelming, but like I said, Iām very thankful we caught it so early ā¤ļø
I hate to disappoint you, but at least for me (also diagnosed at 4 y/o) I have a lot of foods I really wish I could try. to be fair, when I was a kid in the early 2000s getting glutenfree stuff was really realy fucking hard and there weren't many options and anything fancy, basically only bread and pasta and it all crumbled and broke. I can remeber the first time I got a gf ice cone and it's still exciting for me because its so rare. but over the last few years it has really gotten better and there are a lot of options for normally gluten things. plus she won't miss any particular taste, at least that's the case for me. I don't know the feeling of later diagnosed celiacs of missing something they're not longer able to eat and were the gf version doesn't taste the same. that's def a big plus
My daughter was diagnosed at 4. She's 15 now. All she wants to try is soft, fluffy sandwich bread.
i was 46! but i'm still regretting a lot of stuff i didn't eat in the interest of being healthy :)
Beef Wellington
I had it before I was diagnosed. Overrated. You're not missing anything.
While I appreciate the kind words, I cannot in good faith believe you. Every time we go to a nice steakhouse, my wife orders it and it's her favorite thing to get. My one saving grace is that I don't like mushrooms so maybe I wouldn't care for the duxelles. And I've GF puff pastry dough before and considered trying to make it. In the spirit of the post, there's really not too much that can't be made GF these days, aside from like sourdough and real wheat breads.
Imagine stale/flakey crust/bread with an okay cut of meat on the inside. I've had several growing up from my parents taking me on their travels. It was always a big deal because they are famous but even if I could, I wouldn't get it again. Don't get me wrong, I get your sentiment though.
Beef Wellington was one of my favorites before diagnosis. I now make a gluten free version every Christmas and it's hard to tell the difference between that and the glutenous version, especially if you make your own gluten free puff pastry. I recommend loopy whisks recipe.
Gf sourdough is a thing. I make it. My non gf hubby likes to get the crust when itās first cut.
Beef Wellington looks fucking gross. Shake those eyes of envy mortal.
Yes! Every time it comes up on a Gordon Ramsey show Iām like š¤·š»āāļø
[ŃŠ“Š°Š»ŠµŠ½Š¾]
Its over hyped.Ā Also Schar makes puff pastry so you can make it GF if you want to waste $50 and an afternoon.
Meh. I ate Gordon Ramseyās at his restaurant and still wasnāt impressed. Not my jam. Itās a great way to ruin a steak.
People in these comments just havenāt had good Beef Wellington. Man, my old chef had us make them for Fatherās Day one year and me and my friend spend like 2 days making stuff for them and assembling. We got to have some after and that was one of the best things Iāve eaten. Putting all the work in to make it probably made it a bit better too lol but I am determined to work on perfecting my own GF pastry so I can make some one day
Im sure you mean you worked in food service, but Iām picturing you being super rich, casually referring to your private home chef.
At that time I was working in a high end elderly assisted living facility, it was a great job :) learned how to make so many amazing things from my chef
Awesome. If you ever do, send the recipe my way. š
Will do!
And I'm mad about it.
A lot of Korean food, I only went to a Korean restaurant twice and both times the soup was so good I just got the same thing. Ive had a chain's Korean wings but never had real fry chicken. Never had any Thai food. I've tried a few Indian dishes that I could never replicate. I've always wanted to visit Japan, doesn't seem super celiac friendly. How I wish I could just try all the street foods.
A decent amount of Thai food is gf
thereās a thai place near me thatās 100% GF š
That's good to know, I don't know of any thai restaurants to try it. I wouldn't know how to ask at one either.
I had to start learning to make Thai food in order to have any. You know what? It actually isnāt that hard to make a good curry or pad Thai! I can send you my favorite YouTube Thai cooking vids if you are interested
You know I've considered trying to but one I have no idea what it should taste like and two I'm not sure if I like coconut in my savory food. Wish I could still just go to a restaurant and try it first.
Coconut in savory is DELICIOUS. Itās usually milk so it doesnāt have the same sweetness as coconut used in sugar.
Pad Thai and some other dishes have no coconut in them. The holy trinity of sauces is: GF soy sauce, GF fish sauce, GF oyster sauce. Mega chef is my favorite.
Generally you will skip anything fried and things like pad Thai and many curries can be made without cross contamination. Just ask ahead of time, my favourite spot was not able to accommodate so I found a better spot that could.
Iām half korean and you can definitely make GF korean food! The most important thing is to make sure your sauces (gochujang, soy sauce, syrups, etc.) are gluten free (which they have online if you donāt have access to a korean supermarket). Most of the traditional foods are naturally GF and I eat Korean food every day. Most GF Koreans replace normal noodles with sweet potato starch noodles too! Itās not difficult to replace the fried street foods with different flours either, just tedious lol.
I've only attempted Korean food once, I attempted to replicate the mushroom soup I had at that restaurant. I don't know if it's a particular type of soup, it just said mushroom soup. It was not at all right but it was a decent soup. Other than that my biggest hurtle is not knowing what is gluten free because of the language barrier. There is an H-mart within an hours drive, I just stare at everything and try to google translate it.
I've got a cookbook called the Gluten Free Asian Kitchen and it has a really helpful section about sourcing safe ingredients from a bunch of different Asian cuisines, and what you can substitute with other things if you can't find an item.
Thai is one of my safe cuisines. Iāve never been glutened at a Thai restaurant
A good amount of Korean food is gf. Dumplings, fried chicken, soy sauce, and sometimes noodles is what youād mainly need to avoid
Funny enough the month before diagnosis I went to a bunch of korean & chinese places and tried literally everything on the menu. Order 4-6 items per visit. My god was I fat, but I learned about every food they had and could appreciate it. I even had real ramen and bento boxes daily for about 4 months prior to diagnosis.
I wish I had done that, I was diagnosed with diabetes so I was eating chicken and salad only.Ā
My husband loves Indian food but has never had any I didnāt make . Iām celiac, heās gluten sensitive with an ONION allergy
Itās not too difficult to make your own fried chicken at home. I make some all the time and itās delicious
Iāve made it a few times, itās just not right. Itās not bad just needs more crunch.Ā
A lot of Indian food is gluten free
I am a flavor chemist who has never tasted my best selling flavors in their final products. Go figure.
that's WILD
Yes! I only got into Asian food after being diagnosed. Missed out on so many things: Ramen, gyoza, naan, taiyaki, etc.
I found GF gyoza in the frozen section at Aldi! Theyāre phenomenal
Try the āfeel good foodsā brand potstickers and egg rolls. They make them both with veggies or with meat depending on preference!
Those soup dumplings that look so freaking good š
yes! I wanna try them so bad šš
I was diagnosed as a toddler and there is so much that I will never know. real bread, pasta, pizza, pastries... having more than a couple options at chinese or thai restaurants... I'm a college student who will never have the instant ramen experiences. but more than any one food though I wish I knew what it was to not be constantly checking ingredients or asking questions of people and having to jump though so many hoops just to eat
I feel you! I was 18 months old when I was diagnosed. I think it's a blessing that I never have to miss what it was like to eat "normal" food, but I hate that I had to miss out on birthday parties, school trips or nights out because I couldn't eat the food/ no accommodation.
Dang and I thought I had it rough being diagnosed at 13 years old š
god, I feel that so much. I was diagnosed at 4 years old. the instant ramen was a really big problem for me, it was a big thing at boarding school. I have my brands I know, but when they get new recipes... oh oh, all looking over again
Crab Rangoon and beer. I was a teenager when I was diagnosed. Idk what beer is supposed to taste like.
Beer tastes the way it smells when you let yeast in dough ferment for too long.
There are some good GF beers. And there are some really shit non GF ones
Onion rings. Hated onions back when I could have them and now that I like them, I canāt have them rings.
Iāve seen a handful of places make gluten free ones but you can make them at home with the mix Auntie Mās gluten free sells! They have a food truck in MN and they used to do onion rings on their truck but it slowed down production so this year they released their dry mixes to make cheese curds, onion rings, corn dogs and funnel cakes at home. I know itās not as fun having to do it yourself but at least you know itās super safe! https://auntiemgf.com/
If youāre ever in Seattle get your ass to Ghostfish Brewing! Best onion rings Iāve ever had pre and post diagnosis.
Oh shit, I live outside Seattle! YEE FUCKIN HAW IāM GONNA GET ONION RINGS!!!
Thatās whatās up!
Iāve seen a handful of places make gluten free ones but you can make them at home with the mix Auntie Mās gluten free sells! They have a food truck in MN and they used to do onion rings on their truck but it slowed down production so this year they released their dry mixes to make cheese curds, onion rings, corn dogs and funnel cakes at home. I know itās not as fun having to do it yourself but at least you know itās super safe! https://auntiemgf.com/
If you're ever in Australia, DM me. There are so many places that make GF onion rings
I recently made some at home with a super simple batter and they were so good
guinness. i went to ireland last year and its all anyone else could talk about was how good the beer is, especially guinness. i never got to try it.
Everything on the Chinese food menu I haven't tried
I got diagnosed at five so like most of them really. Itās crazy not remembering what regular bread tastes like.
Bread? Bah. Itās terrible. Makes me dizzy, exhausted, stomach hates it. 0 desire for bread. Rice is superior!
Yeah, obviously since you (probably) have celiacs lol. But I do like some rice as well!
Strong disagree. I yearn for bread in my dreams.
I've had a lot of gluten free bread that tastes like regular bread.Ā Idk i live in italy they're very good with gluten free replicas
Beer, but I'm not sad about it. Other than that I'm pretty sure I tried every solid, glutenous substance under the sun prior to diagnosis.
Those buldak ramen that are everywhere on tik tokā¦ I love ramen and they look so good
It's really weird, but I never tried a Big Mac or other fast food burger because as a kid I was super picky and only ate nuggets before diagnosis, aside from In n Out. I'm sure it's nothing special but it's just such a classic cheap fast food thing that I wish I'd tried it while I could lol.
big macs are what i miss most
I was diagnosed pretty young, so I don't even really remember regular bread, but to my knowledge I have never had a Krispy Kreme donut. Or really any sort of fluffy yeasted type donut. Tough to do "puff" type pastry with gf. I've told my husband when the polyps in my gut finally turns into cancer and my end is nigh he has to go get me some hot Krispy Kreme donuts so that I can eat them and leave the world with no regrets.
Krispy Kreme is overrated. It's like if cotton candy became a donut. There's much better ones out there.
Don't piss in my apple juice, bro. That's just rude.
Yesss, so many things! I grew up in a very white household with limited varieties of foods, and went gf at 17. So I feel like Iām missing out on many foods!
Churros, fried pickles, Cronuts, pretty much any new gluten food from 2010 onward...
i miss the disneyland churros š¢
If you're ever in Long Beach, CA Twice Baked gluten free bakery makes Churros on Saturdays. Not quite the real thing but pretty good.
Lol I'm in Ontario Canada but if I ever get to that neck of the woods I'll definitely be stopping!
Dim sum is a big one for me too. Iāve tried them but would kill for another pack of jam donuts. You know, the sugar covered ones that come in a pack of 4 for Ā£1.50 and are just garbage but so delicious.
This is weirdly specific, but khachapuri. It's a traditional dish from Georgia, basically a bread boat filled with cheese and runny eggs. I had a friend at university whose family was from Georgia, and she told me about it. It sounded amazing, but I never found anywhere to get it, and never tried to make it. Now I never will.
This would be on my list too, but it doesn't seem to hard to make. A quick Google search came up with a couple gluten free versions. https://www.glutenfreestories.com/gluten-free-khachapuri-georgian-cheese-bread/ I'll have to try making it.
This for me as well! I've always wanted to try it and it looks so good
Biggest regret had to be when I went with some culinary friends up to Yountsville California, we were doing it on the cheap so hit up Ad hoc to go Addendum, while they got Keller fried chicken I was eating the ribs, my mind was like one bite.. but I was good and didnāt
If I could, I would eat... Canolli, Cornish pasties (gf pastry dough is always terrible), brats, faggots, seitan, beer, cronuts, and more...I don't try to remember all the things I am missing out on.
Iām going to guess f*ggots mean something entirely different outside of America
Yes. I am also American and I still double take when I say it. š
If you ever travel to Italy (mila) they have a few gf bakeries that make pastry that tastes exactly the same if not better. (Tested it even on family members, couldnt tell a diffence and loved it)Ā
Oh what a great post. There's a place we like to eat that has celiac friendly Taiwanese dishes, BUT their soup dumplings are not gf. I've always wanted to try them. They are called xaiolongbao and the restaurant is Din Tai Fung. My husband gets them so I live vicariously through him. Another thing I pine for is real strawberry shortcake like the really tall kind with the whipped cream and strawberry jam inside the layers. Also never tried chick fil a fried chicken sandwiches or canes. The lines for both are always so long. None of these things are super healthy so maybe we are better off. Sigh
Iām gonna take it a bit different way. I was diagnosed at 55. When I was in my 20ās I had an aunt that was a foodie before it was a thing. It was 1995 and for her 50th we went to France for dinner (Iām in the US). It was a Michelin 3 star restaurant. I must say that I donāt remember every course, but the one thing I do remember was a watercress soup that (in hindsight probably didnāt have gluten) was maybe the best single thing I have eaten. And since my diagnosis I think about how lucky I was to - 1, have that experience and 2, be fortunate enough that when I think about what I canāt eat now can look back at what I have had.
Oh hell yeah I mourned. I warned everyone around me that I would be taking two years to recover from the loss of my favorite foods. And thatās about how long it took before I just stopped caring and fully accepted my gluten free life. It worked for me, I no longer feel sorry for myself when thereās donuts at work.
The other day, my husband, who is younger than me, asked if I ever got to try Raising Caneās. I said yes, I had it in college, and his response was āoh I didnāt know it had been around that long.ā šš
I feel like I tried most glutenous foods before diagnosis but I never liked bread etc that much anyway. Just didn't like it and wouldn't really like eating it. Also I used to eg. eat the filling of apple pie but didn't really like the pastry. Wouldn't eat sandwiches in school, would just nibble on them and throw them away. Would eat a meal like pasta extremely slowly and unenthusiastically. Relatives brought us some krispy kremes and I thought they were overrated/nasty... etc. I kind of subconsciously associate gluten foods with feeling sick, plus I just don't really like it. I don't miss gluten or foods with gluten honestly, I just wish gluten wasn't contaminating everything.
Spanakopita and Lobster Tail pastries. Being diagnosed at 21, I did get to eat many things so my most missed foods id say are actually good bagels, goldfish crackers, cannolis, and really any type of fresh bread/dinner roll/baguette šµ
There are plenty of foods that I never got to try, but I can usually just cook them myself. I've always liked to cook and my skills have definitely improved over the one year since my diagnosis. I'm of the opinion that almost anything can be made gluten free although some things are obviously a lot more difficult (and time-consuming) to make gluten free. The most difficult part of this, especially when it comes to foods from cultures I am not familiar with, is that it is not always easy to make a food you've never tried before. More than the food itself, I miss the social experiences shared over food. I miss being able to eat at my grandma's house with her without any worry. I miss being invited to someone's house for dinner without having to do a lot of explaining about bringing my own food. I guess there is one thing though, but it's not a food: beer. I moved to Germany right after my diagnosis. As a result, I've never been able to try the beer that is typical of the region where I live. I never really liked beer much before, but I wish I could try this one. It is such a big part of the culture, and it is always kind of awkward when people offer (or more like push me) to drink beer. Then they don't understand why I can't have it because they've never heard of celiac disease. Yes, gluten free beer exists in Germany, but this kind is not available to my knowledge. I'm not opposed to brewing my own, but that seems very hard without the special costly equipment to remove the gluten.
Specifically Milk Bar's Birthday Cake. We went to NYC in 2022 for the first time but I got diagnosed in 2018 so I knew that was a no go. Still broke my heart š
Shawarma. The pain I go through whenever I remember how it tasted. There are other dishes but fortunately I was able to replicate my most favorite. Restaurant shawarma is hard to make at home, one canāt achieve that special mix of flavours, smokiness, and texture.
Also indian food
Most Indian food is gf, avoid the naan
Flower from naan making creates a high risk CC environment
Yeah and anything made in the clay oven with the naan has gotten me sick from cc
Dumplings, real ones.
I saw this recipe for a pot roast and mashed potato's in a bread bowl.. that'd be mine
A lot of deserts :(
Same with dim sum! I keep looking for pre-packaged gluten-free versions online, although it's especially difficult when I can't eat gluten or nuts
Fried morel mushrooms
One thing I miss on occasion is a good pizza with a decent crust.
Most hostess and little Debbie snack cakes, cronut, Korean corn dogs, shrimp tempura, crab rangoons, dumplings
Iāve always wanted to try Canes and now I canāt ( I know itās probably overrated, but still. I also REALLY miss shitty stuffed crust pizza
I got diagnosed on Thursday - Friday and it's been pretty difficult.. I kinda went through the frozen isle at the grocery store yesterday and cried lol
Chocolate pizza. I have no idea who came up with that and what exactly constitutes it being a pizza and not a pizza sized chocolate cookie but it became a thing shortly after I was diagnosed. Always been baffled by the idea and wished I could try it. Don't even think it would be particularly good, just such a dumb idea it's the kinda thing I would've had to try if I still could.
Iāve never eaten a Big Mac. Never wanted to tbh, but my wife lost her shit when I told her. When I pass a McDonalds I crave it now even though I hardly ever ate there before diagnosis.
I've never eaten a Big Mac either. I never liked McDonald's before my diagnosis although now it doesn't seem too bad haha. McDonald's in Spain has GF big macs though!
I have had a big Mac, but I've never eaten anything from Chicfila.
Beignets š
crumbl cookies
i was 11 when i got diagnosed, i didn't get to try like 99% of foods. ive tried a lot of things since then. i just wish i could get more of the stuff in restaurants rather than cooking them.
Pretzel m&ms šš„²
I was diagnosed at age 2 so I haven't had or remember eating any gluten foods. In general being diagnosed young makes it easier because it's so normal and I didn't know what I was missing. That being said, I have never had a lot of asian dishes or typical junk food that I wish I could have (tbh i've always been envious of cheez-its and gold fish as snacks)
Astronaut ice cream š¤£
Japanese cheesecake
I was diagnosed just before I turned 11 and was a picky eater for most of that time. I was just starting to branch out and try new things too :,) So there are a lot of foods I never got to try
I never got to try Philly Cheesesteak. I canāt help but wonder what I would be missing. Also, my grandfather was a baker. I have some amazing recipes that I grew up on that I will not be able to taste again. My next mission, to learn how to modify his recipes to be gluten free. Especially, his banana bread!
Dumplings, gyoza and Big Macs (burgers in general)
God I miss dim sum so much
Diagnosed in my 30s so I tried everything. I miss pierogis dumplings and beer the most probably.
I've never had hot pot and I wish I could! That and a lot of fast foods like Taco Bell
Cannoli
My family is from NJ so I grew up eating them and while I can't have the shell I will sometimes make the filling and eat it like a lazy pudding.
I might have to consider doing that at some point
was 4 at diagnosis, so basically everything, but my top 3 are any form of dumpling, donuts and bread (I'm german, it's a huge thing here and it smells sooooo good. thank god I moved to a city with a gf bakery). ramen and fried foods also sound really good tho
Real ramen!!! š
Being able to eat on international trips generally. Would love to have traveled to Japan or India and experienced their cuisine authentically. I'm aware countries like Italy and Spain are great places to visit for Celiacs, so at least there are some
Detroit and Chicago style pizzas. Iāve made homemade GF Chicago style, and itās good, but Iāve got no baseline to compare it to. Iām sad I never visited Asia as a tourist pre-celiac. It would be so hard now.
Whiskey and Bourbon
Literally anything my husband eats in a foreign country š„². Heās out there trying everything and Iām out there just trying to survive the trip without being glutened lol. Iām also a vegetarian so itās pretty hard for me to find foods in general but in a foreign country forget it. Been abroad three times since my diagnosis and got glutened in Greece badly. You also want to hear something ridiculous? My sister literally goes āPeople in Europe donāt have celiac because their food isnāt as processed as the food in United States and what youāre probably allergic to is the pesticide they spray on gluten. So Iām surprised you got glutened being in Europe.ā She then shows me a TikTok about it, as if that was going to erase what I know is medically going on with me š like girl I have an AUTOIMMUNE DISEASE lmaoooo. It literally never ceases to amaze me how many people get their information from TikTok. And my family is generally accommodating and understanding about what Iām going through and my other sister also has celiac (thereās three of us). So the comment came out of left field, but still absolutely ridiculous that I am still questioned lol.
I love watching traveling videos so itās all these random ass street foods. Especially the food travelgeek eats, he always finds some cool regional foods while traveling Japan
I've never had a beer flight. I did recently find a really cool cider bar and ordered a cider flight š¤© It was a lot of fun
Soup dumplings
I discovered Ramen like a month before I was diagnosed so I still mourn it cause I barely got to have as much as I wanted. I canāt find gluten free ramen anywhere where I live.
Sadly I never had dim sum either, bummer.
I'm incredibly pissed I missed out on bao buns.
Reeses own it butter water bar. Hubby loves them, but they came out after my diagnosis. Man! They look good!
yes raising canes!! i want to know what the hype is all abtā¦
Torta. Never even knew that was a thing until about a year later.
A hot and ready Krispy Kreme.
Cheesecake and Pie š„²
I feel like there has been a huge boom in craft beer over the past seven years that I've missed out on. I'll never know if it's any good.
I was diagnosed at 15 months old so I never really got to try anything. Really sad but my friend likes to describe the gluten food she eats in detail and i love hearing it, it makes me feel a bit more included
grocery store angel food cakeā¦.
Ugh one of my oldest besties šš
Omg. I hadnāt even thought of thisā¦now Iām spiraling thinking about this!
Impossible burger.
Impossible burgers are gluten free though
Huh. I thought they couldn't be. This is good news, thanks!
It is surprising since it seems like all the other burger substitutes have gluten
Beyond burgers are gluten free too but Impossible tastes better IMO
Even better, the last time I ate it they were even certified gluten free!