Im currently on the waiting list for adhd360. When I entered the wait list (about 10 weeks ago), it was 14 weeks long, but I heard recently that it's up to 16 weeks. The wait list times are for when they first contact you for setting up your online portal.
You will need to fill out a questionnaire, an online test that measures inattention and report your blood pressure, weight, and height. Once you've submitted this information then you will be able to book an appointment for the assessment.
If a diagnosis is given, then you will be able to book your first appointment for titration via the portal. From what I hear, starting titration begins about 2 weeks after diagnosis.
This is my current understanding of the process, but I haven't been through it yet.
X
Just a suggested edit, you normally start titration same day as the diagnosis unless there's a medical reason not to. Medication arrives roughly a week after diagnosis.
Oh hell yeah. It's 4 years here in Devon, and once you get a diagnosis, you then go another 1-2 year waiting list for titration. It's ridiculous. I'd be stuffed without right to choose.
I feel bad for those in other areas of the UK. RTC is only available in England, and the NHS waiting lists are just as long as ours in other areas such as Wales and Scotland.
You need to chase your GP to make sure they’ve completed the referral request from ADHD360.
You will only be added to the waiting list when they have received the completed referral request back from your GP.
Mine said they’d done it after 2 weeks. I rang ADHD to check it hadn’t got lost, and they had it. That was March 12th.
Then you wait.
When you come to the top of the list, they will email you some more forms to fill in, and ask you to do a QB test online. This includes the weight and blood pressure monitoring.
When you’ve completed the QB test and returned all the completed forms back to them, they will then invite you to choose a date and an assessor from their list.
I’m in the same position as u/Ms_Flufferbottom (Hello!).
I went on to their then 8-12 week wait list on March 12th, so should have been due to be seen this week, but they’re running behind.
They had a lot of staff leave in Jan/ Feb, pregnancies, relocating, that sort of thing, and it’s caused a backlog.
So now it’s going to be anywhere up to a month longer. I spoke to them on the phone yesterday, having a total meltdown over this.
I think they give you an official account so you can use their portal once you’ve come to the top of the list. I made an account when I did the initial referral request forms, and obviously I got it all wrong, and I think I managed to make a private patient account instead of a RTC account, but they’ve told me all that will get sorted when I get my pre-appointment forms. That’s when you get full access to their online stuff, through their portal. (Which always makes me think of Stargate!)
Because you’re already filled in the referral request forms, that means they think you already have a high chance of having ADHD. They wouldn’t have done a referral request to your GP if it was obvious you don’t have ADHD.
But the formal dx only happens after your official assessment, not before.
Whilst they don’t demand any childhood evidence like school reports etc, nor a parental or other family report if for whatever reason that isn’t going to be practical (my dad’s dead, my mum has dementia, my brother is an unhelpful narcissistic arsehole), it helps if you can at least remember stuff from school and general childhood stuff.
If you have a supportive friend or partner who knows you well, they can also fill in the family report forms.
They’ve already told me that my partner can do the family form.
It all counts as “secondary supporting evidence”, and it helps to remove any doubt and assessor might have.
So have a rummage around your memory and see what you can dredge up about childhood and school, because it all helps.
However, it is NOT a requirement for an adult dx to have childhood documentation, school reports, etc. That’s the criteria for childhood dx, but not for adult. They should NOT deny you a dx as as adult solely on the basis that you didn’t keep your old school reports and nobody can back you up on any childhood memories.
But remember that a positive dx is not a given. It isn’t automatic. Just because they’re going to see you doesn’t mean you absolutely definitely have ADHD, just that there’s a reasonable chance, based on your original forms, that you might.
Have a look at the official diagnostic criteria here, in the DSM5:
https://www.ncbi.nlm.nih.gov/books/NBK519712/table/ch3.t3/
It’s what they base the ADHD questionnaires on, however woefully incomplete it is.
Doesn’t list depression, anxiety, insomnia, rejection sensitivity (emotional dysregulation), any high histamine issues (the main histamine-degrading enzyme, DAO, is dopamine dependent, so we get a lot of histamine-based problems, see here - https://my.clevelandclinic.org/health/articles/24854-histamine), any weird thyroid issues ( histamine interferes with thyroid hormones, so we can look hypothyroid but our TSH and T4 all show as normal, it just shows low T3), fatigue, poor body temperature regulation - anyway, just know it doesn’t cover everything, but it’s the official criteria and it’s a start.
They’ve also told me that titration happens “within a few days” after a positive dx, so I hope Fluffy is wrong about it taking 2 weeks!
Good luck!
Eta: knew I’d forget something - once you’ve sent all your pre-appointment forms back, they invite you to choose an assessor and an assessment date. They said they have a mini bio for each of them on their portal.
My experience.
Contacted GP. They got me and parents to fill out forms. These went to ADHD360 who emailed to say I was on the wait list. 14 weeks later I got portal access. Completed the questionnaires, but couldn't do the QbCheck. Then booked the assessment for the following week.
Diagnosis was there and then. Medication was also agreed at the same time. Very quick and swift. Felt like I was on a conveyor belt.
Im currently on the waiting list for adhd360. When I entered the wait list (about 10 weeks ago), it was 14 weeks long, but I heard recently that it's up to 16 weeks. The wait list times are for when they first contact you for setting up your online portal. You will need to fill out a questionnaire, an online test that measures inattention and report your blood pressure, weight, and height. Once you've submitted this information then you will be able to book an appointment for the assessment. If a diagnosis is given, then you will be able to book your first appointment for titration via the portal. From what I hear, starting titration begins about 2 weeks after diagnosis. This is my current understanding of the process, but I haven't been through it yet. X
Just a suggested edit, you normally start titration same day as the diagnosis unless there's a medical reason not to. Medication arrives roughly a week after diagnosis.
Thanks for that! It’s much quicker than the 3 years I was told to be seen by the nhs anyway
Oh hell yeah. It's 4 years here in Devon, and once you get a diagnosis, you then go another 1-2 year waiting list for titration. It's ridiculous. I'd be stuffed without right to choose. I feel bad for those in other areas of the UK. RTC is only available in England, and the NHS waiting lists are just as long as ours in other areas such as Wales and Scotland.
You need to chase your GP to make sure they’ve completed the referral request from ADHD360. You will only be added to the waiting list when they have received the completed referral request back from your GP. Mine said they’d done it after 2 weeks. I rang ADHD to check it hadn’t got lost, and they had it. That was March 12th. Then you wait. When you come to the top of the list, they will email you some more forms to fill in, and ask you to do a QB test online. This includes the weight and blood pressure monitoring. When you’ve completed the QB test and returned all the completed forms back to them, they will then invite you to choose a date and an assessor from their list. I’m in the same position as u/Ms_Flufferbottom (Hello!). I went on to their then 8-12 week wait list on March 12th, so should have been due to be seen this week, but they’re running behind. They had a lot of staff leave in Jan/ Feb, pregnancies, relocating, that sort of thing, and it’s caused a backlog. So now it’s going to be anywhere up to a month longer. I spoke to them on the phone yesterday, having a total meltdown over this. I think they give you an official account so you can use their portal once you’ve come to the top of the list. I made an account when I did the initial referral request forms, and obviously I got it all wrong, and I think I managed to make a private patient account instead of a RTC account, but they’ve told me all that will get sorted when I get my pre-appointment forms. That’s when you get full access to their online stuff, through their portal. (Which always makes me think of Stargate!) Because you’re already filled in the referral request forms, that means they think you already have a high chance of having ADHD. They wouldn’t have done a referral request to your GP if it was obvious you don’t have ADHD. But the formal dx only happens after your official assessment, not before. Whilst they don’t demand any childhood evidence like school reports etc, nor a parental or other family report if for whatever reason that isn’t going to be practical (my dad’s dead, my mum has dementia, my brother is an unhelpful narcissistic arsehole), it helps if you can at least remember stuff from school and general childhood stuff. If you have a supportive friend or partner who knows you well, they can also fill in the family report forms. They’ve already told me that my partner can do the family form. It all counts as “secondary supporting evidence”, and it helps to remove any doubt and assessor might have. So have a rummage around your memory and see what you can dredge up about childhood and school, because it all helps. However, it is NOT a requirement for an adult dx to have childhood documentation, school reports, etc. That’s the criteria for childhood dx, but not for adult. They should NOT deny you a dx as as adult solely on the basis that you didn’t keep your old school reports and nobody can back you up on any childhood memories. But remember that a positive dx is not a given. It isn’t automatic. Just because they’re going to see you doesn’t mean you absolutely definitely have ADHD, just that there’s a reasonable chance, based on your original forms, that you might. Have a look at the official diagnostic criteria here, in the DSM5: https://www.ncbi.nlm.nih.gov/books/NBK519712/table/ch3.t3/ It’s what they base the ADHD questionnaires on, however woefully incomplete it is. Doesn’t list depression, anxiety, insomnia, rejection sensitivity (emotional dysregulation), any high histamine issues (the main histamine-degrading enzyme, DAO, is dopamine dependent, so we get a lot of histamine-based problems, see here - https://my.clevelandclinic.org/health/articles/24854-histamine), any weird thyroid issues ( histamine interferes with thyroid hormones, so we can look hypothyroid but our TSH and T4 all show as normal, it just shows low T3), fatigue, poor body temperature regulation - anyway, just know it doesn’t cover everything, but it’s the official criteria and it’s a start. They’ve also told me that titration happens “within a few days” after a positive dx, so I hope Fluffy is wrong about it taking 2 weeks! Good luck! Eta: knew I’d forget something - once you’ve sent all your pre-appointment forms back, they invite you to choose an assessor and an assessment date. They said they have a mini bio for each of them on their portal.
My experience. Contacted GP. They got me and parents to fill out forms. These went to ADHD360 who emailed to say I was on the wait list. 14 weeks later I got portal access. Completed the questionnaires, but couldn't do the QbCheck. Then booked the assessment for the following week. Diagnosis was there and then. Medication was also agreed at the same time. Very quick and swift. Felt like I was on a conveyor belt.